I have a few questions......have u had a history of infections? have u had any traume to ur head or neck?
have u been tested for a thyroid issues?
Y did u have the spinal fusion?
have u been tested for Lupus?
My mom, sister and myself all have fibro, and we all have different symptoms....it will manifest differently as well.Also be aware that chiari is often misdiagnosed as fibro.....find a good dr....get testing and make sure u understand ur dr.....if the dr doesn't fit- get another one till it's a good fit.
keep me in the loop as to how u make out.
My general doctor tested me for everything under the sun. He checked thyroid, diabetes, and B12 as well as a bunch of other things. I don't have a history of infections and I had no trauma. It just came on all of a sudden & it just won't leave. I had some idiot neuro tell me I had conversion syndrome and it was just anxiety. What a crock of sh--. He said I needed a psychologist. I had spinal fusion due to a herniated disk in my neck. Surgery was the only option. I don't know if I was tested for Lupus or not. My primary is sending me to see a Rheumatologist. I was told that they can diagnose systemic problems or autoimmune problems. I hope its not Lupus. I don't have any type of rash, just numbness tingling, pain and burning. I am losing hope. why won't this go away? I don't understand? If it was anxiety, why isn't it gone by now. I am NOT anxious every minute of every day. HELP!!! What is wrong with me?
.....as u found out not all drs are worthy of their diplomas....I was given meds yrs ago for anxiety.....since u had a surgery on ur neck...that's where u should start....how long ago was the surgery, the last MRI? .....I was tested for Lupus and told borderline...whatever that means...also told fibro, chiari and cervical spinal stinosis...and also hashimotos thyroiditis...which my labs do not warrent meds, but the US showed nodules.....I really think ur surgery site is sthe place to start......Good Luck and let me know how ur appoint goes......
May have a diagnosis Thank GOD. Its not really the one that I want, but at least its something. Thorasic Outlet Syndrome. My test came back abnormal (so the tech has said.) My pulse was completely lost on my right side when my hands were raised. Thats usually when I get the pain. The left side was very weak. When I bring my hands back down, thats when I feel more tingling numbness and painful sensations in my arms. I am having trouble doing everyday things like washing my hair, or doing dishes, reaching up to get something. My numbness is constant, but pain comes and goes. I've been living with this for 6 weeks. Anyone know anything about it..... Still have to see the Dr. to confirm it. THEN WHAT!
I never heard of this, but from what I did find so far, it is similar in nature to carpel tunnel.....I would suggest to start another thread with the dx as ur lead.....
If I find ne ething else out I will advise.
I have had other Drs tell me that this could be Fibromyalgia. I don't have chronic fatique, just mainly the numbness and tingling. Could Fibro manifest itself in this way? The Dr.'s say that it can, but it seems strange to me. anyone heard of it before?
It doesn't sound like fibromyalgia... at least not to me. Have you seen a Neurologist ?
I have seen 4 neurologists and none of them know what this is. They think it is something systemic. My arms are constantly numb and my right arm gets very painful cold and heavy everyday. The diagnosis of Thorasic outlet syndrome was also thrown out there too. Where the arteries in the shoulder are pinched due to reduced blood flow.
I am getting very frustrated. I'm afraid I will never be normal again...
Stay positive...u r on the right road by doing research urself.....we must learn more about our dx and symptoms and teach out drs!!!....I am sure u will find the right dx and treatment.
Have they tested you for Lyme Disease? I had that years ago and symptoms were similar. Do you live somewhere that a deer tick could have bitten you? I would be tested, just in case. Goodluck!
As a matter of fact, I am getting blood tested tomorrow for that. But I have heard that blood tests for that aren't always accurate. Sometimes you have to do a Western blot test. My Dr. is also checking for lead and mercury toxins in the blood just in case.
The best blood test for Lyme takes a couple weeks to get back due to the steps they have to take. They took a simple test on me that came back negative, but the second test came back positive, which was the most accurate test.
This is almost exactly what happened to me. My symptoms were the same. Long story short I was told it was my neck causing my symptoms even though I had blurred vision and all sorts of things that could not possibly be related. I ended up having a c 5/6 spinal fusion. The surgery greatly worsened the problem. Mine ended up being probable lyme and I have improved greatly since taking treatment. I thought I would lose my job as well. I could hardly walk for months. The testing for lyme is so inaccurate. Mine was essentially negative but I had the rash, the symptoms and I recovered from treatment.
Thoracic outlet syndrome could not possibly cause all the symptoms you have. It can cause the cold arm and loss of pulse though.
I'm still waiting to hear from my Dr. regarding Thorasic Outlet Syndrome. My arm right arm goes numb and tingling everyday about 15-20 minutes after I get up and it gets very cold. I'm afraid that the Lyme disease test will come back negative and he won't run another test to confirm it. I don't have a rash or anything else.
If your test comes back negative (and it usually does), especially if it was the ELISA, lyme will probably be dismissed. I was told I didn't have it either despite having the rash, all the symptoms, being an avid hiker etc...I saw numerous doctors including 5 or 6 neurologists. I got the fibromyalgia diagnosis of course. Not saying you have lyme but it is a possibility. Less than 50% of people remember seeing a rash. I didn't remember the rash until I saw a picture of a lyme rash over a year later. I never even heard of lyme at the time. If you want to learn more about lyme you can go to lymenet.org.