Heart, cerebellum, or Fibro...?

[gootman]

I have been struggling with pain on just the left side of my body for about 20 months now.  I have been to the ER about a dozen times thinking I was having a heart attack, but every time...Costochondritis.  I have been told everything from Costochondritis to Tietzes syndrome, to Fibro.  I need help.  I have seen a rheumatologist, he told me I was at the wrong place.  I have seen 2 heart docs, and a chiropractic neurologist.  The neurologist told me one thing.  The pain is from the cerebellum.  Close your eyes, and have someone watch for twitching or rapid movement of your eyelids.  The cerebellum needs oxygen and fuel.  Fuel being the main thing fibro people are lacking.  Does anyone have truth to this?  I also have been playing the ding **** ditch with medicatons.  From Cymbalta to Savella.  Any answers?  I have also been trying acupuncture for a while now, so far this has been the only true relief I have found.  OTC meds don't help at all.  Not even with the headaches most of the time.  Has anyone ever been through this much trouble before?  Is it just me, or does my Dr. have the wrong outlook for my future care?  Please Help Me!!!

[Ricobord]

Have you been checked out for Lyme Disease?  Wisconsin is one of the most prevalent areas in the country for Lyme.  Here's a doc that gives a good overview and symptom list.  Most doctors only look for a rash and swollen knees, and don't know about things like rib pain, fatigue, GI issues, and other symptoms.
http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

You can come to the Lyme Disease forum to learn more.

[kiddthekatt]

Good morning;
   I understand your frustration, believe me. I was DXed almost 2 years ago, and I am still playing touch and go with medications. I have been coming off of Savella because the side effects snuck up on me and it was horrible. I have been so upset because I was finally able to function while taking Savella, but the side effects were too much.

  I am now taking Norco 4 times a day, Zoloft 100mg 2 x a day, Requip for RLS, and my legs are still almost worthless at this point. I also have osteoarthritis in every joint, and that just adds to the misery. Right now I'm at a stand still. I told my Rheumy that I would take no more "let's see if this works" medication. I'm done with that. I told him that I wanted to be retested, from top to bottom, that I needed answers, and that if he couldn't or wouldn't arrange this, then I would take my self to another doctor. Enough is enough!! I pray that you find relief.

gentle hugs
Angel