Aa
Hello, I'm a newbie to this forum
I am a newbie to this forum, but do belong to a few others.
Well, once again I am awake, not moving much yet as it generally takes me up to an hour before I can function somewhat normally. Stiff muscles, legs that feel like they are encased in concrete, foggy, fuzzy head, shoulders and neck very painful, I feel like a slug in the mornings, lol. So, I have to sit down, take my meds and wait for them to begin working before I can attempt to do anything. This thing really *****! A huge part of my problem is that I don't sleep well, I know this, and when I do sleep it's not a good quality sleep. I have been up for over an hour now & my eyes are already heavy & I'm so tired I could crawl back in the bed!
Then there's my hubby, bless his heart. No matter how hard he tries he will never "get it". He has his own pain issues but works everyday. He had a quadruple by-pass in 2001 and was back at work 21 days later & out of hospital 5 days post-op! He has a hard time understanding why it is that he may ask me to do something during the day and then be disappointed when he comes home and it's not done. His theory (and it works for him) is to push through the pain and do what you have to do. What he fails to realize is that if I do that it will set me back sometimes for days and cause bad flare ups with lots more pain. He tries to understand but it is causing arguments between us now. Not bad ones, I just get frustrated that I can repeat myself over and over and he still doesn't understand even though he says he does. If he truly understood he wouldn't stress his importance of just "doing what you have to do" and just get it done mentality. I am at my wits end here.
I have Chronic Fatigue, Fibromyalgia, Panic/anxiety attacks, sleep disturbances (insomnia), half of my thyroid has been removed due to a large tumor, they have since found a tumor in the remaining left side, and there is also a tumor in the right humerus bone that we are just watching now for over a year. Dr has had comcerns about my white blood cells being a little high for over a year now and sent me to an oncologist for a blood workup (showed nothing out of the ordinary). On top of all these, I broke my rt hip as a teenager (1981) water skiing & have had 5 surgeries on it over the years and now have a partial artificial hip, broke my right knee in 2001(tibia plateau) spiral fractured it into 8 pieces and had to be pinned together, totaled my car & broke both bones in right ankle(2004) compound fracture & have had 5 surgeries on it,ended up with MRSA for over a yr & couldn't walk, drive,or leave the house at all. Had left shoulder surgery for impingement^ the rt one hurts but they won't touch it due to the tumor(which they are just watching along w/the nodule on what's left of my thyroid) Sometimes I feel like a ticking time bomb!
Then there is the moodiness, feelings of despair, loneliness, isolation (self inflicted I think) bc going out is just too much trouble.
So, there it is, there is probably some things I left out, but this now is my world. And i went from having a well paying career, nice car, a feeling of accomplishment & being needed to a shell of that being who I am now. God it looks so bad seeing it all in black and white!
Any and all comments and support greatly appreciated...Thanks for letting me vent...it feels good. :
Well, once again I am awake, not moving much yet as it generally takes me up to an hour before I can function somewhat normally. Stiff muscles, legs that feel like they are encased in concrete, foggy, fuzzy head, shoulders and neck very painful, I feel like a slug in the mornings, lol. So, I have to sit down, take my meds and wait for them to begin working before I can attempt to do anything. This thing really *****! A huge part of my problem is that I don't sleep well, I know this, and when I do sleep it's not a good quality sleep. I have been up for over an hour now & my eyes are already heavy & I'm so tired I could crawl back in the bed!
Then there's my hubby, bless his heart. No matter how hard he tries he will never "get it". He has his own pain issues but works everyday. He had a quadruple by-pass in 2001 and was back at work 21 days later & out of hospital 5 days post-op! He has a hard time understanding why it is that he may ask me to do something during the day and then be disappointed when he comes home and it's not done. His theory (and it works for him) is to push through the pain and do what you have to do. What he fails to realize is that if I do that it will set me back sometimes for days and cause bad flare ups with lots more pain. He tries to understand but it is causing arguments between us now. Not bad ones, I just get frustrated that I can repeat myself over and over and he still doesn't understand even though he says he does. If he truly understood he wouldn't stress his importance of just "doing what you have to do" and just get it done mentality. I am at my wits end here.
I have Chronic Fatigue, Fibromyalgia, Panic/anxiety attacks, sleep disturbances (insomnia), half of my thyroid has been removed due to a large tumor, they have since found a tumor in the remaining left side, and there is also a tumor in the right humerus bone that we are just watching now for over a year. Dr has had comcerns about my white blood cells being a little high for over a year now and sent me to an oncologist for a blood workup (showed nothing out of the ordinary). On top of all these, I broke my rt hip as a teenager (1981) water skiing & have had 5 surgeries on it over the years and now have a partial artificial hip, broke my right knee in 2001(tibia plateau) spiral fractured it into 8 pieces and had to be pinned together, totaled my car & broke both bones in right ankle(2004) compound fracture & have had 5 surgeries on it,ended up with MRSA for over a yr & couldn't walk, drive,or leave the house at all. Had left shoulder surgery for impingement^ the rt one hurts but they won't touch it due to the tumor(which they are just watching along w/the nodule on what's left of my thyroid) Sometimes I feel like a ticking time bomb!
Then there is the moodiness, feelings of despair, loneliness, isolation (self inflicted I think) bc going out is just too much trouble.
So, there it is, there is probably some things I left out, but this now is my world. And i went from having a well paying career, nice car, a feeling of accomplishment & being needed to a shell of that being who I am now. God it looks so bad seeing it all in black and white!
Any and all comments and support greatly appreciated...Thanks for letting me vent...it feels good. :
Hello, sorry I haven't posted in awhile, I have just not felt much like chatting I guess. Well, that isn't quite right either...I would love to have ppl to talk to during the day while I am alone, but really just don't know and am not sure how or what to say. Pretty sad, huh?
I really just wanted to ask how everyone is doing and feeling today. I hope all of you are doing well, and feeling as good as possible trying to deal with this awful crap we have gotten so lucky to have in our lives.
I hope to hear from you guys soon, take care of yourselves...
~Cindy
I really just wanted to ask how everyone is doing and feeling today. I hope all of you are doing well, and feeling as good as possible trying to deal with this awful crap we have gotten so lucky to have in our lives.
I hope to hear from you guys soon, take care of yourselves...
~Cindy
thanks for your reply, it always seems to help when you know you're not alone. I hope to keep in touch with you as well as others. I am already finding that just talking about it with others has helped me more than I thought it would or could.
So, thank you to everyone, add me to your friends list if you want. I will be glad to chat whenever, as I am on disability and am home all the time and most always on my computer!
So, thank you to everyone, add me to your friends list if you want. I will be glad to chat whenever, as I am on disability and am home all the time and most always on my computer!
Welcome!
I wanted to let you know that you are not alone...so many of your symptoms are exactly what many of us are dealing with also, on a daily basis.
Are you currently seeing a Dr that is supportive of your Fibro/CFS diagnosis and helping you find a medication that will work for you?
If you don't have a wonderful relationship with your Dr, I can't encourage you enough to change Dr.'s and find one that you are comfortable with. As often and as quickly as symptoms can change, you definitely need a Dr that will listen and react with new ideas to help you.
I understand completely about your situation with your hubby! For me personally... multiply that times 4! I have three kids and one hubby that don't get it. Regardless of what I say or how often I say it, they still think I'm being lazy or just trying to get out of doing something. If the truth were told, I still work circles around all of them when it comes to daily household chores, and basically I'm just looking for a little validation that what I do is appreciated? Ya' know? Oh and it would be great if someone else would do some painful chores for me... but as it is, I just do what I can --when I can....and if they don't like it... oh well??
I also have sever anxiety and stress/panic - BUT - this seems to be a biproduct of the Fibro. So with the Fibro Medication, Savella, my anxiety is lessening.
I really don't know what the point was of my ramble... LOL... but please feel welcome and vent anytime you need! ((HUGS))
I wanted to let you know that you are not alone...so many of your symptoms are exactly what many of us are dealing with also, on a daily basis.
Are you currently seeing a Dr that is supportive of your Fibro/CFS diagnosis and helping you find a medication that will work for you?
If you don't have a wonderful relationship with your Dr, I can't encourage you enough to change Dr.'s and find one that you are comfortable with. As often and as quickly as symptoms can change, you definitely need a Dr that will listen and react with new ideas to help you.
I understand completely about your situation with your hubby! For me personally... multiply that times 4! I have three kids and one hubby that don't get it. Regardless of what I say or how often I say it, they still think I'm being lazy or just trying to get out of doing something. If the truth were told, I still work circles around all of them when it comes to daily household chores, and basically I'm just looking for a little validation that what I do is appreciated? Ya' know? Oh and it would be great if someone else would do some painful chores for me... but as it is, I just do what I can --when I can....and if they don't like it... oh well??
I also have sever anxiety and stress/panic - BUT - this seems to be a biproduct of the Fibro. So with the Fibro Medication, Savella, my anxiety is lessening.
I really don't know what the point was of my ramble... LOL... but please feel welcome and vent anytime you need! ((HUGS))
Thanks so much for the response. I agree with you about family and friends learning about these issues too. But what if they just don't havce the desire to learn? It can be quite frustrating.
I slept last night, but still feel as though I didn't get enough sleep. I could lay down right now and go right back to sleep...lol. Crazy huh?
To find your posts go to your home page and on the top left you will see a menu there. You should be able to click on posts and find yours. as far as others...type in their screen name in the search bar and it should pull theirs up too.
I look forward to chatting with you more, thanks for the vote of confidence.
I slept last night, but still feel as though I didn't get enough sleep. I could lay down right now and go right back to sleep...lol. Crazy huh?
To find your posts go to your home page and on the top left you will see a menu there. You should be able to click on posts and find yours. as far as others...type in their screen name in the search bar and it should pull theirs up too.
I look forward to chatting with you more, thanks for the vote of confidence.
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Bad Eggs!!!....:)))
I'm new to the forum also; and I have not learned how to "find" posts I've made, or "track" other members.
It helps to vent...especially to those who have similiar experiences. It takes family/friends a long time to understand but, with lots of education about our disorders, they'll learn along with you.
Just a short comment about "Panic Attacks/Anxiety"...you do realize these are secondary to your CFS/fibro?
Add in sleep deprivation(even the government recognizes this as a form of torture)... your brain is overwhelmed with too much stimulus; and has difficulty processing.....boom, anxiety.
Self isolation is a protection mode....don't worry about it too much. A few years ago, I was so isolated, I was not only homebound, I couldn't venture out my door. As you work a health program on SLEEP, fatigue, "brain fog", pain...you'll learn how to adapt better.
Right now, be KIND to yourself!