Major Surgery with CFS

[lvfrogs]

Has anyone on here had major surgery since they were diagnosed with CFS?  I am scheduled for surgery next week, possibly two surgeries and am wondering if the CFS affects your recovery.  I would think that it probably does, but wanted to know if anyone had experience with this.  Thank you!

[kitonthemoon]

You're mst welcomed....

I'm glad that you found info on the link useful, especially for hubby to understand more about ME/CFS.  His support and understanding is certainly important, that's for sure.
However, try not to be too disappointed when he lacks....we cannot even undertand it all, how could we expect anyone else who are not inflicted by such horrible disease see our suffering?  Yes?

I remember I used to take it to heart when hubby wasn't helping, not knowing he didn't want to act as if I was an invalid....knowing I've been so independent all my life.

Oh,,,,,my pains never went away for years to come after my surgery (abroad).  I continued working for about  5 yrs, until I had long bouts with strep throat, flu, and what knots for 6 months, then, I just collapsed and unable to move for months.

My gut tells me that you will be fine and nothing to be scared abiout,,,,,my prayer for speeding recovery.  Best.

Kit

[lvfrogs]

kitonthemoon,
Thank you again for the link. I had read that one last night but printed it out today so that I can take it with me and also so that my husband will read it too and he will understand. He somewhat understands CFS but not like he should. He still expects more out of me than I can give and doesn't quite get it. I print stuff out all the time for him to read. It is important to have that support.

I am sorry for what happened to you. That must have been scary for your family and you after the fact.  How long after that did you get a diagnosis? What did the hospital say about it taking 8 hours???
I am sorry it affected your health so poorly. I am a little worried about that too, but I HAVE to have this surgery, they are also checking my intestines again (surgery 1 1/2 years ago) and I need them to do that desperately.

I had major abdominal surgery about 1 1/2 years ago and I did alright with the anesthesia so I am not too worried but I like the advice - and I will take it with me to the hospital. So many doctors still discount CFS but you and I know how real it is!!

I will get on here as soon as I can afterwards, although that will probably be awhile.  Thank you so much for your prayers. I will keep you in mine also.

Hugs,
Colleen

[kitonthemoon]

Awwwwwwwww....you're so welcomed.
Here's one the link I mentioned among many
:http://www.prohealth.com/me-cfs/library/showArticle.cfm?libid=13409

I had endometriosis related tumors ...and I couldn't wake up form the anesthesia for 8 hours, and my family litereallly thuoght I was in a 'coma'.  At that time, I wasn't dix with ME/CFS, or FMS..so I had not idea.

My health went downward since than.

So, I'm really really concerned for thos of us who are facing surgery.   Please let me know the day and how you fair afterwards, I'd like put in extra prayers for you.

Take care.

[lvfrogs]

Thank you so much for this advice. I will do that and I am sure I will find the links. and thank you very much for the thoughts and prayers! You all are the best :)
Colleen

[kitonthemoon]

Type in your search engine on 'anesthesia and me/cfs".....
I cannot remember the articles...but, there's definate warnings on how much anesthesia we should have by ME/CFS doctors.  Please do the readings on that before your surgery.

If I can locate it, I will post it here.  

You will be in my thoughts and prayers that you will have a successful surgery, and speedy recovery.

[lvfrogs]

Thank you concerned and Patsy, I appreciate the replies. I will post on here when I can after my surgery and let everyone know.  I know that I just don't recover from things like I used to, so I know that surgery will have a major impact on my body. I will look for those books too and search online, thank you both.
I am sorry that both of you had spinal surgery as I imagine that is a hard surgery no matter what, much less with CFS and Fibro, especially.  I will keep you both in my prayers.
Thank you!
Colleen

[patsy10]

I have been diagnosed with both.  My recovery from surgery was very long and difficult due to this.  I had spine surgery in 2005.  I was wrongly diagnosed and had an unnecessary surgery. I got so much worse after surgery, could hardly walk for months.  I am better now but have never recovered.  Not saying this would be your experience though.

[concerned621]

I've had 7 surgeries on my spine. I have fibromyalgia and CFS like symptoms. 5 of the surgeries on my spine were in a 2 year time frame. It was awful. I was so ill and in such a flare up for about 2 years. If you are not feeling otherwise healthy and strong and you can wait to build your body up I highly recommend it.  Of course surgery can't always be put off and it you must have it be sure to have very good after care. Drink plenty of water after surgery, and try to have a very good diet rich in vitamins and nutrients to build you back up after surgery.  Try to do what you can to aid your body in the healing process post surgery.  Also, if you don't take supplements or vitamins and check with your doctor about what you can and cannot take post surgery because vitamins and supplements have side effects too, but I would get on a good regime.  
There are books on specifically preparing for surgery. I am sure there are specific topics  on preparing for surgery if you have CFS.  They will outline how to prepare your body before and after surgery.

I wish you the very best recovery and prayer always helps me.