feel like i am being fobbed of

[alison713]

hiya i have been diagnosed with fibromialgia now for 4 years ,the pain seems to be getting worse ,im allways at the doctors complaining as i feel every day i am getting worser i have no enery at all ,i have allso been really poorly with a breast infection so doctor says its ,then i go back to be toold its a inflammed ribcage ,to then be told its part of my condition ,i am allso experiencing pain at back of  my headat the top now ,and dizziness and feling sick does anybody else feel like this the pain is not a headache pain more of a burning pain  feel like the doctors dont want to no they just keep sending me away with more tablets which dont work thanks for reading this would love to hear of anybody else with the same condition as me thanks alison

[MargueriteF]

Thank you for doing all of this on the forum. If a person has to have a "disorder" it's kind of nice to know you're not alone. Like all of you, I am use to being extremely active and I have 6 children. I used to teach theater and ride horses and teach English and do Shakespeare plays and direct and on and on...now I am home on a heating pad, hobbling between chairs and my couch.

I will be very interested in knowing about your natural healing information. I am very afraid to take the drugs they have prescribed for me. My sister has the same diagnosis that I do and the drugs they put her on have altered her personality and her life. She is almost bi-polar, it seems, from the meds. I can't even count how many she's on!

Thanks for the full information.
MargueriteF

[PlateletGal]

Hi alison,

Probably in a matter of days, you are going to be seeing additions to the Health Pages. I'm going to be including treatments for both fibromyalgia and Chronic Fatigue Syndrome. I will include VARIOUS treatment, including natural treatments. I think everyone should have ALL of the information to make an informed decision about their health. I guess what disturbs me the most about these pharmaceutical companies, is their influence over so many physicians. Physicians rely on them and their medications to treat illnesses such as fibromyalgia.... so many of the other treatments for these illnesses often get missed.

[alison713]

hiya ,as you all no ive changed doctors if you read my post, im not sure what medication would be the best to put to them ,i have never been offered nothing like all the members on this sight ,i dont want to ask for something that is going to knock me out aas i have children and have to do school runs i have no choice i go everywhere in a taxi as walking is out trhe question ,i dont want to ask for a medication get offered it and then it gives me bad side effects but i no the medication i have been getting isnt helping at all ,allso any health supplements i could get myself  from my local pharmacy ,thankyou to all that answer kind regards alison

[PlateletGal]

Hi alison,

We are going to have a guest physician, who has done research on fibromyalgia, CFS and other conditions. I think he will be participating early next month and will answer members' questions. I will keep everyone here posted.

[alison713]

HIYA I AM ON AMITRIPTILINE AT NIGHT ,ALLSO ALL THEY HAD ME ON WAS CO CODAMOL FOR ABOUT 2 YEARS I TOLD THEM THEY ARE NOT EVEN TOUCHING THE PAIN ,THEY THEN GAVE ME DICLOFENIC ,WASTE OF TIME ,NOW NAPROXEN ,I ASKED IF THERE WAS ANYTHING STRONGER AND SHE SAID NO THERE ISNT ,WHAT A WASTE OF TIME AGAIN ,I ALLSO ASKED IF THERE WAS ANYTHING SHE COULD PRESCRIBE TO BOOST MY ENERY LEVELS I WAS TOLD NO ,I EXPLAINED I HAVE 4 CHILDREN WHO ALLWAYS NEED ME ,I HAVE NEVER BEEN A LAZY PERSON SO I CANT HANDEL FEEL THIS WAY ,I SIT AT HOME AT NIGHT WHEN LITTLE ONES ARE IN BED AND JUST CRY I FEEL SO GUILTY AS I HAVE NO ENERY AT ALL ,WITH THE DIZZENESS ASWELL ITS AWFUL I CONSTANTLY FEEL LIKE I AM GOING TO FAINT WHEN I HAVE MY CHILDREN WITH ME ,MY LITTLE BOY ACTUALLY SAID A FEW WEEKS AGO  WHY DONT YOU DO ANYTHINK FUN WITH US ANYMORE I WAS HEARTBROKEN ,SORRY TO MOAN BUT I THING IT DOES HELP TO TALK TO SOMEBODY WHO UNDERSTANDS  HOPEFULLY MY NEW DOCTOR WILL HELP KIND REGARDS ALISON

[PlateletGal]

Hi alison,

I'm glad you responded. I think like CFS,  fibromyalgia alone can be a disabling condition and many people don't realize that all of the symptoms of fibromyalgia are classic autoimmune disease symptoms.

The swelling in your breast and pain could be due to several things... but I definitely wanted to mention ruling out something that I knew about and especially if they told you that you had a breast infection and antibiotics failed to resolve your symptoms. In the article I read, several cancer center doctors had even missed this diagnosis with this woman ! So that's why I recommended printing the article out and making sure that you get a complete examination and consider making sure that this is ruled out.

How is your physician currently treating your fibromyalgia ?

[alison713]

thankyou so much for your replies ,i am changing doctors tomorrow ,they can then see me in 48 hours after registering ,so i will keep you all posted ,i will not walk out of there this time with just tablets again i will ask for more tests to be done ,i have 4 children my youngest are only seven and 5  if anything happened to me because the doctors couldnt be bovered with me ,they would truly pay ,for years i coped with all my kids its been the last 3 monthes  i seem to of had a flare up that just wont go away and everyday i seem to get worser with something else happening ,i used to be so active ,i used to work ,loved spring cleaning my house ,now i have no motivation at all the pain i can handle ive had that for years and it just comes apart of your life ,but this pain in my breeast is not normal ,i will keep you all updated and let you no how i got on ,im so glad i found this sight ,thankyou and take care alison

[Jac567]

do not be fobbed off, I was fobbed off for two years and told I had upperlimb disorder and it would get better! My saving grace was practise got a new young doctor who sent me to rhumatology to rule out other conditions and when she told me you have fybromyalgia, I was relieved because I knew something was very wrong. You know your body and if you have pain or an infection in your breast then get it checked out ask for a referral to see a specialist. I am assuming because you have fybro they hang everything on that. I now know I am vitamin D deficient and I have Hyperthyroidisim ( last week it was Hypothyroidisim) a nurse told me you are hypo and a doctor told me you are Hyper!... so remember the doctor is only human and they do not feel or see your pain so be very insistent about it. Do come back and let us know how you get on.. I hope you get it sorted.

[Ree4tu]

The breast pain you are describing could be costochondritis which is an inflammation of the cartilage that joins the ribs to the chest bone.  It causes sharp chest pain inside the chest and the pain increases with any exertion including deep breathing.  It can come and go or last for a long time. The pain can radiate up the back of the neck. I have this on and off  for years even before my Fibro diagnosis.  It is a condition associated with Fibromyalgia, but I agree with PlateletGal, other serious conditions should always be ruled out first.  I didn't realize it could be associated with breast cancer, so it is good to check in to.

Warmest Regards,

Ree4tu

[PlateletGal]

P.S. ~ The symptoms are basically the same as a breast infection... but this is something that you should be aware of because, although very rare, it is often misdiagnosed.

Best,

Plateletgal

[PlateletGal]

Hi allison,

I recently read an article in my local newspaper about a woman who had a "breast infection" for years. She was misdiagnosed and later found out she had inflammatory breast cancer. It is very rare and often missed by physicians.

I don't want to scare you, but this is something I think you should definitely read, print out and discuss with your physician (better safe than sorry).

http://www.cancer.gov/cancertopics/factsheet/sites-types/ibc

[alison713]

hiya the doctor says breast infection i dont no ,i dont think none of them no ,it was slightly swollen and very sore to touch allso veins were a lot more prominent than right breast ,allso warm to touch ,i was given antibiotics ,which didnt work ,i was then told it was part of my fibro ,then i was told it was a swollen rib cage ,i have decided today to change my doctors ,as i feel they cant be bovered ,i wish i wasnt getting all these symptoms ,i dont like being housebound i used to be so active and independant ,,can you get fibro in your chest or breast i dont no ,thanks for your reply kind regards alison

[PlateletGal]

Breast infection ? Can you describe your symptoms ?