Aa
Aa
A
A
A
Close
480092 tn?1208986162

Can not find my original post/ have not eaten much for over a year/ help

I am 99 pound and can not eat. I have had all tests except stomach scope and biopsy. I would really love some support here and no one replied to my post or I just can not find it perhaps. Here it is again, Below.

Starting in around the year 2001 or so, I was diagnosed with Hepititas C related arthritus and Chronic Pain Syndrom with muscular atrophy. Then shortly after, Cavernous Hemangioma of the liver which has been growing over the years.

Then in 2004 I had a bought of Thrombosis and neurological problems with limbs after that. Migranes and eye pain started. Dizzy spells. Then a year ago I stopped being able to eat. I have been loosing a lot of weight and I am 99 pounds.

I have been fallling down in the day and hanging onto furniture while the house spins getting in and outer body sensations, flashes of lightning and shadows and halos. At night I sometimes wake in a moment of convolsions unsualy trying to gasp for air and at first think earthquake. Last night the convulsion lasted a long time and I was partialy awake and was hallucnating, seeing and hearing things. My neck was contorted backwards and I thought it would snap. I shook violently unable to speak. I was very sleepy after but fought to stay awake all night.

I am having bladder problems, memory problems and can not remember how to cook or what i am doing half the time.

I smell burnt weird strange intense smells no one else can smell. I am cold all the time or too hot. Some days my limbs wont move when I need them to. Sometimes my joints are in so much pain I can not walk or lift up my arms. I have worm like feeling up my spin and in my limbs and uncontrolled movements.

I AM ON NO MEDICATION AND I DRINK NO ALCOHOL. I DO NOT USE DRUGS.

Doctor disbelievs me about the convolsions. He wont send me back to a neurologist, wont give me a brain scan. 3 yrs ago I had a EEG, but not the kind where they sleep deprive you. Three years ago I was not convulsing. Of course the scan was normal. but I frequently hallucinate if I have had insomnia. How accurate is an EEG?

I get up to 2 months of insomnia at a time.

My diagnoses? Mental illness of the personality disorder disociative disorder type. With possible Schizophrenia and or Bipolar Disorder on top. A doctor, not a psychiatrist gives me this diagnoses before I even sit down in his office to talk to him. I had never met him before. He treated me with absolute contempt. I went to him out of respect for my physician who asked me too.

My husband and I say............" what the heck kind of schooling did these doctors get? something physical  is obviously being missed......NOT MENTAL! It doesn't take a brain scientist to figure that out.

Now I am stuck in a small town with a label and they don't let patients move to other doctors or they are labelled difficult. I have had this doctor for 4 yrs. He does not believe you can have a concious sezier or convulsion. What planet is he from?

I am fed up, hurt and so very angry.

Help.
7 Responses
Sort by: Helpful Oldest Newest
Avatar universal
Upper middle abdominal pain after eating may be from a gastric ulcer. It's a dull, deep, constant pain, and it's typically better on fasting. Vitamin C, aspirin, and all drugs containing acid may cause this ulcer, and they cause pain when you already have an ulcer. Diagnosis is with endoscopy.

If the pain is under the right rib cage, this is usually from gallbladder (or bile ducts). Pain is like a constant cramp, lasting from minutes to hours. Pain often radiates in right shoulder or scapula.

About your other problem - with brain...In intestinal fungal infection (candidiasis), a substance acetaldehide enters the blood and brain and causes symptoms, like in - hangover (often described as foggy mind, also sleepiness..).

But if your problems are more punctuate, as one with swallowing and other, then you should see neurologist. Epilepsy or transient brain ischemia may cause your problems. Even with neurologic examination (done in neurologist's office) some impaired brain function may be determined.
Helpful - 0
480092 tn?1208986162
I am seeing my surgeon this friday. She is nicer than my reg doctor. Yet she cancelled my first endoscope and now I am waiting for my June 13 booking. I am going to talk her into moving it up closer as one can only loose so much weight.

She had me try Metimucill and I almost lasted 2 weeks on it. BOY OH BOY...that made everything worse! Just one little pill a day and lots of water. It was making things worse just like Nexium does and acidophillis made things worse too.

weird.
Helpful - 0
480092 tn?1208986162
Hi there again,

The pain is in my upper stomach. not really in my throat. When I had a barium swallow, it showed miled acid reflux. Nothing major. I do not usualy get heart burn and swallowing creats no pain at all. Sometimes I have choking bouts and trouble swallowing even water. Not due to pain but more like my body isn't working with what my brain wants to do.

As far as thrush, I have expected it for some time cause I do have what you describe. But no doctor seems to matter about it. I am on Beclomethason which can cause oral thrush but I rinse out my mouth always.
Helpful - 0
Avatar universal
Painful swallowing is called "odynophagia". (You might want to search).

Painfull swallowing may be from neurological reasons, or from gastrointestinal reasons, like reflux. You feel any heartburn? If reflux was causing your swallowing pain, then you'd also had pains after you lying down. If pain was from reflux, obvious inflammation of esophagus would be found on esophagogastroscopy.

Do you have oral thrush (tongue coated with thick white patches), or itching anywhere?
Helpful - 0
480092 tn?1208986162
Thanks for the input. You sound like you know what your talking about.

Yes, I can not eat in the sense that if I do, I get immediate intense pain. Does not matter what I eat. The pain lasts 12 hours and is as intense as labor pains. My stomach also bloats and the food sits in the stomach for 6 to 15 hours. I feel poisoned and can not breath very well. I get nausea and sometimes throw up. I get reffered pain to my shoulder blades and can hardly take in a breath. I have been this way for a year and a few months. It always follows the same pattern. A few days to a week were I can eat small bits of certain things with lots of pain. Then I go a month or two and can  not eat anything without serrious pain at a level 9 or 10. So I don't eat and I live on tea, which oddley enough feels the best on my stomach. Sometimes I can have Equate nutritional drinks.
Helpful - 0
Avatar universal
About EEG:

EEG is quite accurate and sensitive in discovering abnormal brain waves. But it can detect seizures only during an attack, not before or after that. Hospitalisation and constant measuring of EEG would be needed to "catch" eventual seizures.

Change of smell and other symptoms you describe may arise from some physical problem in the brain, CT or MRI would be necessary for that. I don't know how you will convince doctors to order you for these investigations. You may remind them that you have cavernous tumor in liver, and thrombosis, which both may affect other organs including the brain.

Your symptoms resembles ones in stroke, but it's hard to tell much here online, without making physical examination.

You were not able to eat? What do you mean - not able to swallow?
Helpful - 0
480092 tn?1208986162
The pain when I eat is imediate. it is like being in labor with birth pains but they may last 12 hours with no let up.
Helpful - 0
Have an Answer?

You are reading content posted in the Gastroenterology Community

Didn't find the answer you were looking for?
Ask a question
Popular Resources
Learn which OTC medications can help relieve your digestive troubles.
Is a gluten-free diet right for you?
Discover common causes of and remedies for heartburn.
This common yet mysterious bowel condition plagues millions of Americans
Don't get burned again. Banish nighttime heartburn with these quick tips
Get answers to your top questions about this pervasive digestive problem