Wow,
I have no idea where to start. My blood pressure will spike very high all of a sudden. Even while being on 3 different BP meds. I am now getting Severe Migraine like headaches almost every day! Profuse sweating even in the coolest temperatures. From my head to my toes, my clothes get soaked with cold clammy sweat. On tp of it, the flushing is so bad, it literally feels like my head and upper body is directly under a heat lamp with a sunburn.
I also get very anxious and have pitted peripheral edema in my legs and feet. But over the past 6 months, the upper right quadrant pain occurs quite often. I'm not sure how much more of this I can take! The CPAP I use for mild sleep apnea doesn't do anything and I wake up feeling exhausted.
I could be totally calm and super relaxed and all of a sudden, it feels like acid is going through my veins like a overdose of Niacin or that special contrast they use during a CT scan. Sometimes it last for an hour, sometimes for 5 hours. Then it happens again later on whenever it wants to.
The new Doctor I saw says it sounds identical to a Pheochromocytoma, which I agree. Even though in the past, I did have a thin slice CT adrenal scan that showed NOTHING wrong. But then again, they did not use any special contrast for this one or a MIBG which is used to locate Pheos located in the Adrenal Medulla. So he did order a new
Catecholamine 24 HR urine collection and I am still waiting for the results. The Doc said if this comes back normal, he is sending me to the Mayo Clinic because he feels that there is definitely something going on causing all of these problems. Ordinary tests have not detected anything and said it will require special imaging and tests done by a panel of professional endocrinologists who have seen the rarest problems that are only common at Mayo and never picked up by most Doctors.
I sure hope this goes quickly, because all of the illness and feeling so HORRIBLE every day is casuing me to be depressed Big Time because how I feel physically.
Anyone else out here had similar symptoms with a diagnosis of some sort? OR if any Doctors or specialists have come across a similar situation, please give me your feedback on this. I would certainly appreciate it!
Thanks a million,
Sean
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