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Mystery Diagnosis

I am a 27 year old female who 4 years ago started having severe pain in the top middle part of my stomach area.  After ruling out IBS, Acid Reflux, etc, the doctor ordered my gallbladder to be removed.  Once it was removed I continued to have the same intense pain.  I then went through ERCP and CT scans of the abdomen which only revealed a small filling in my bile duct which was removed at that time.  

Here I am  4 years later and I am still experiencing this pain and have yet to find the answers.  The pain feels like someone is stabbing me repeatedly and at times I feel like I am going to pass out. I feel helpless, I have been to countless doctors and gastroenterologists who all say that I am way to young to have anything really wrong with me.  I only wish they could switch bodies with me when I am having an "episode".  

Hopefully this will sound familiar to someone!  Thank you in advance.

Brandi

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Avatar universal
i also have the same symptoms after my gb surgery which was 15 years ago, i also seeked medical help cause i was having the same symptoms i ended up having an under lying ulcer no noticable with testing but after being treated for this i was cured.
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Avatar universal
Read through this. Unfortunately, you're not the only one to experience this problem following GB surgery. You need to find an extremely good doc to work with - one who knows something about post-GB surgery problems. This problem (if that's what you're experiencing) is not easy to diagnose or handle, so it demands an excellent diagnostician: http://hopkins-gi.nts.jhu.edu/pages/latin/templates/index.cfm?pg=disease1&organ=3&disease=12&lang_id=1

Please don't give up in trying to find someone to work with you. You may have to contact one of the larger teaching hospitals in order to find someone knowledgeable about the problem.
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Avatar universal
It sound like you read my mind. I am 19 and have also had those same pains even after they removed my gallbladder. All I can tell you is you are not alone. And that doctors will never truly pay attention to you because you are young. I just think of the pains I have as phantom pains and just wait them out. My advice is, avoid fatty foods. It seems to help me. Also, your bile duck is still there, so it is probably still trying to produce bile and not having anywhere to put it.
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Avatar universal
After that ERCP you've felt better? Were any stones in removed gallbladder?
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