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Nausea and Vomiting

Several years ago I was not able to eat hardly at all, and I was in pain all the time.  I went through several tests and eventually was diagnosed with pseudotumor cerebri.  I had surgery to have an AV shunt put in.  Over the last few years, I've been having issues with my headaches again so my primary care doctor thought that rapid weight loss would help lower the amount of fluid that is always constantly building up in my brain.  Therefore, he suggested weight loss surgery.  In December 2019, I got a laparoscopic sleeve gastrectomy.  Ever since the surgery, I barely eat because I am literally throwing up all day.  I had a CCK done and my liver and gallbladder have been checked and everything seems fine.  My primary doctor has put me on Marinol because he has tried all other nausea and vomiting medicines on me and none of them worked.  The Marinol has significantly slowed the vomiting.  However, I don't want to settle for being on medicine and being sick all of the time.  I want to find out the underlying cause of what is going on with me.  I have researched all that I can and I can't find any answers.  And this is not a nutrition problem because when I am able to eat, I don't eat junk food.  I eat pretty healthy when I am able to eat, which is not very often.  I exercise, I do yoga.  All of my bloodwork has come back as fine.  The surgeon that did my gastric sleeve surgery, basically told me that the CCK was the last option as far as knowing what is going on with me.  He left me feeling pretty helpless so I am turning to the online medical community for the first time in my life.  I need answers, please help!
1 Responses
973741 tn?1342342773
Well, you've really been through a lot.  I'm sorry about that.  The headaches are bad?  I read about  pseudotumor cerebri and that's hard.  There are underlying causes as you are aware and the issue of working on your weight through the gastric bypass surgery makes sense since being over weight is one of the known factors contributing to this condition even though they don't know why. There are other things that may play a role as well that I'd make sue you know aren't going on so you can rule them out.  https://www.healthline.com/health/pseudotumor-cerebri#treatments  The nausea and vomiting are SINCE the gastric bypass surgery? Have they checked for ulcers? Some people can get ulcers at the connection of the bypass.  This can lead to some chronic issues of nausea and vomiting. Have they ruled out stricture as well?  What about the headaches? Are they better?  The marinol works but you are just not wanting to take medication?  I understand that.  I'm often the same way.  Want to know WHY it is happening.  I have chronic headaches and simply medicating them gets frustrating as I'd like to know WHY I have them to work on THAT but at the same time I don't want the headaches so go ahead and treat them regularly to function.  Long way of saying I understand where you are coming from.
9 Comments
The headaches are like something that I have never felt before in my life.  They are really bad.  The nausea and vomiting started as soon as I woke up from the gastric bypass surgery and it has been a problem every single day since.  However, before my pseudotumor cerebri was diagnosed, I had a lot of nausea and vomiting but it wasn't like it is now.  They have checked for ulcers and stricture and ruled it out.  My headaches have not gotten any better since the surgery.  I'm losing weight, I have lost like 45 pounds since surgery so I am not understanding why the headaches are still so bad.  Also, its not that I don't want to take the medication because it does help a lot but I just want to know the underlying cause so that it can be fixed.  I am just at the end of my rope with this.  Also, the surgeon that did the gastric bypass surgery told me that there was nothing else that he could do, which really upset me because he has basically just threw his hands up and said "oh well".   I don't know what else to do.
Is the sleeve something they remove once you get to your goal weight, or are you stuck with it? How many pounds are you before you reach your weight-loss goal? Because it seems like your secondary goal (after the headaches) is to get rid of the side effects of the gastric surgery, and yet if the headaches are better once the weight is gone, you don't want to get rid of the sleeve [if it can be gotten rid of] until you've reached the target weight.

Have you ever talked to a dentist about your headaches? I've had headaches like you are describing once in my life, and come to find out they were related to a tooth that was slowly cracking. My doctor did all kinds of workups for the headache and basically came to a diagnosis that had nothing to do with my teeth (teeth weren't even on her radar), but when the tooth finally broke off (right at the gum line, it was odd as heck), my headaches were gone.
The sleeve is definitely not something that can be removed.  Basically what they did was go in and they cut off half of my stomach and then sewed me back up.  This is done so that weight loss can occur by cutting down the amount of food intake significantly.  I honestly wish that I would've never gotten the sleeve gastrectomy.  The headaches are the exact same as they were before.  The headaches are contributed to the pseudotumor cerebri.  My main concern is the nausea and vomiting and my headaches.  But right now, I'm just trying to find out why the vomiting is continuing every single day.  I don't understand it.  Literally, there are days that I am driving and I have to throw up in my mouth and hold it there until I can pull over somewhere.  I know that is bad to say but the vomiting is really a problem and continues to be a problem.
I don't want to ask questions that you find too basic or annoying, and suppose the following risks that. But since you're at your wits end and nobody else is posting with ideas, I had a thought. Once when I was sick, my doc had me drink water to stay hydrated, but warned me to take it literally one teaspoon at a time, not more, and ten minutes apart. He warned me that even drinking one normal mouthful out of a glass would be too much and cause me to have a vomit reflex a few minutes later, and he was right. So I had water one teaspoon at a time, ten minutes apart, and got a lot of water down in the end without vomiting. Is there a possibility that since your surgery was so recent, there might be enough inflammation still that the vomiting could be eased by an approach like that? I know that after gastric surgery you don't have room for much more than a half a cup of food in your stomach at once, but have you tried eating in ridiculously tiny amounts, spread out ten minutes per teaspoon?
I was given a medicine type cup for drinking small amounts of water since surgery.  I am very careful about how much water I drink.  That was a good idea though.  However, I've already been doing that.  And I am hardly able to eat.  I sometimes go 2-3 days without eating.  I have NO appetite but when I do eat, it is very very little and I follow the food guidelines very closely.  I do not eat anything that I am not supposed to eat.  
I was referring to the tiny amount (literally a teaspoon or less, and a ten-minute wait between bites) rather than if it was water or food being swallowed. I wish I could remember the medical reason my doctor gave, it was a surprising one (it had to do with muscles higher up than the stomach having a spasm reaction, and that it could become automatic). Anyway, if the medical instructions don't work even though you are following them to the letter, and assuming you've had it with vomiting, it doesn't seem like it would hurt to try changing your intake to teeny-weeny bits spread out over time, and see if it helps your esophagus or stomach stop spasming.
I will try the tiny sips but tinier than I usually drink.  Thanks.
Good luck. You'll find the weirdest part is not the small size of the food or sips, but the seemingly long wait in between each spoonful. But it did keep me from vomiting, and I was only sipping water and had been vomiting that all up.
Well I did the teaspoon of water every so often and still was vomiting all day long.  I hate feeling like this!
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