What can I do about my kinked bowel/GI issues? I have a redundant colon.

[harleyadam]

Advertisement
Hello!

     This is my first time reaching out to a community like this but I am so frustrated with the medical system and just don't know what to do. I have severe abdominal pain every morning to the point where I can't get out of bed pain ranges from 7-10/10. My pain gets better throughout the day especially if I have a BM. Sometimes when I am constipated I will feel very dizzy and out of it and it puts pressure on my vagus nerve. There are times when I get a sudden urge to go and once I release I have passed out on the toilet from the drop in blood pressure.
     I am unable to hold a job, have had to drop most of my classes, I cannot function like a normal human being as there are some days I can't get out of bed. I went to the GI I got an endoscopy and colonoscopy. They showed internal hemorrhoids and mild gastritis as well as a redundant colon. I have had 3 occasions where I have gone to the ER for a kinked bowel. They usually have me stay there overnight and slowly it unkinks but in the meantime my pain is intolerable without pain medication. I am always sent home being told nothing is wrong.
    I feel like whenever I eat the extra twist in my colon gets kinked and causes me pain during digestion. When my GI did the colonoscopy and endoscopy and nothing showed up he said to stop even taking stool softeners that nothing is wrong with me and to just eat healthy and drink more water. I pleaded with him and said I can't function on a daily basis I can't keep a job my life is falling apart but I got no empathy. I was trying to have him do a barium Xray or a motility test but he said since nothing showed up on previous tests there was no reason.
   I feel like my only options are probably to suffer or get surgery on my redundant colon, unless further tests show something else. I have cut out gluten, corn and dairy for years now. I have now cut out red meat and only eat small meals of rice/veggies and maybe chicken or fish. I drink plenty of water every day. I don't feel like these changes are solving the issue. How do I get a GI doc to actually try to figure out what is going on with me and help me find a solution so that I can enjoy my life? I have medi-cal insurance Monarch group and I am in southern california.