That sounds really painful. Your doctors who examined you and came up for the reason why they think it is happening had no suggestions on how to help?
It sounds like maybe your nerve injury is causing your scalp to be super sensitive, I know that happens in traumatic brain injuries sometimes. Could you try a different haircut? Or maybe a topical product with a skin-numbing ingredient, like they sell for itchy bug bites?
If all else fails, you might need to see about a change in medication.
Same happened to me for 4 years. Do a porosity test. I have Low porosity hair but had no clue. Everything sits and your scalp and product builds up. Any product with silicone in it sits on top instead of soaking into hair. Off the list of shampoos I chose the cheapest Vo5 kiwi clarifying shampoo and conditioner and it’s atarting to work. Prescription shampoo did not. It was an absolute nightmare. Good luck!
Yes, everyone thought I was crazy. No one actually examined my hair. Not even dermatologist. He just asked series of questions and called it seborrheic dermatitis. Only one friend said it looked like little knots underneath. Everyone told me nothing was wrong with my hair and leave it alone even though it looked like a freak show. Good luck!