Since she was born, she constantly held her thumb in her fist, so tight at times, I couldn't really break her from it until she was about 2 years old. She's just started school this year and she doesn't talk as well as we'd like, so we had a speech theropist come out and check on her (said she'd out grow it), but she noted my daughter was "disabled" because she can't grasp a pencil or scirrors right and she has problems with motor "vision"? EVERYTHING I was reading about MArfan's totally discribes my daughter to a T!!
*Flat narrow feet (quite long)
*VERY long fingers
*A dip in her chest
*very flexable more in her hands
*Muscle weakness in hands (can't grip pencils correctly)
*The roof of her mouth always was high but narrow and had a very hard time bf'ing her because her teeth would cut into my nipple...
*Thin and tall with long arms and legs
She's only seen a doctor a few times, butthe doctors we see are very fast during visits because she's a twin. The other twin is perfectly normal. She talks, does very well in school and doesn't have anything wrong with her hands or vision.
I'm just wondering what else this could be. Every other tissue disorder NEVER mentions what she has (vision and grasping issues) and then for the school to say she was disabled really ticked me off. I'm just trying to find answers and I don't want to look crazy if I took her to the doctors to figure this out and them tell me "nothings wrong". Obviously something is wrong is she's "disabled"...