Liver Failure and cirrhosis death, anyone go through this?

[Mary Z]

If you have lost a friend or close relative to liver failure and cirhosis, please share with me the amount of time they had in "end stage". We are trying to get some idea of what to expect....I have posted on the liver forum...but decided to ask here as well. Thank you all for your time!
Mary Z

[MarAbigail]

Well Mary, my brother was given the prognosis of only a few weeks after getting looked at after his liver enlarged so much he looked like his gut was just really fat-that's how big his liver had gotten. It literally doubled in size. He had been having issues for a few yrs, but never went to the doctor till it was too late; by then his kidneys shut down following his liver, then we pulled the plug, and he was gone. 47 yrs old is just too young to go. He left us last year and the memories of his military funeral still stick in my mind whenever i hear Taps. He's in a better place. It's ok now.

[Amyxxx]

My dad passed away 17th July 2017 he was a alcoholic with hepatitis c he was diagnosed in 2014 with liver failure they offered him treatment with a transplant but my dad made the choice to receive no treatment only a drain to remove fluid from his stomach he had that once few months after being diagnosed, they wanted him to take medication if he was not going to have the treatment but yet again he refused, he carried on drinking 8-10 cans a day of strong larger he ate at most couple fish cakes a week he went on like that until the 11th July he was admitted into hospital he had varicose veins in his stomach and wind pipe and these had ruptured he was at home for 2 weeks prior admission bleeding from his back passage and stayed quite about it, it was not until his partner found him unconscious on the floor at this point he was vominting blood so they rushed him into a&e he had 3 pints of blood given to him and taken into surgery to repair the veins they managed to stop the bleed but my dad was unconscious for 3 days in intensive care unit he finally pulled round beyond belief of the consultants they removed him from there care into a ward on the 4th day he devolved a chest infection his stomach was like he was 9months pregnant he was just skin and bone they could not do a drain on his stomach because his liver was in complete failure his blood was not clotting so they could not do the procedure on him. And that's when they took me into a side room and told me my dad has days maybe a week left to live I was heartbroken my dad was going to be taken and there was nothing I could do or the hospital could do, I had to make the decision to do no resuscitation or life support as it's only prolonging the heartache and pain for my dad, hardest decision I have ever had to make!  My dad was 58 years old I am 30 and all because of alcohol I lost the one and only man in my life, 17th July it was on a Monday I went into the hospital dad was having a bad morning they pulled me aside and warned me dad might pass away any moment I went in and sure enough my dad looked like he was meeting his maker I held his hand and told him it's ok he is ok I am ok and that I love him and within 5 minutes of that I had him from his death bed to sat up on his bed drinking and feeding him ice cream he was very confused and away with the fairys but he picked right up as the day went on he was complaining of some pain so the hospital gave him morphine and with that he was asleep for the rest of the afternoon so I left him peacefully asleep thinking I still have a bit of time I went home to get myself together I had a phone call from the hospital my dad had passed away within a hour of me leaving the nurses could not believe how quickly things changed they was sorting dad out laid his bed down looked at him and he was gone! They did not even have a chance to call me to get me back it happen that quickly. All I can take away from it was that my dad felt no pain he went peacefully and he did not know what was happening, 6 days of start to finish it all happened so quickly we didn't have time to think, and even know I can not accept the fact my dad is no longer with us. It's not something I wish on my worst enemy and I feel for anyone going through this or gone through this it's tough seeing the one you love go through such a thing! sorry it's all still very raw.

[Bubby2015]

My brother drank for almost 8yrs i knew he drank alot but it wasnt until he took himself to hospital in 2014 cause he knew sonething wasnt right. Here i thought he was getting chunky and it was a bloated belly. They had to stick needle in and pulled out alot of fluid. I asked dr if he was gonna die she said im not goin to say he is but im not going to say that hes not i will say if he doesnt stol drinking now he is going to die. He was released and by july he was drinking again ended back in hospital this time he was yellow as the sun. When released i begged and fought with him to get help he was only sibiling i had but he always had excuse. He couldnt quit cold turkey he shook and had siezures anytime after that i talk to him he was always sick sounding sayin he had to sleep sitting up was afraid to fall asleep stomach hurt real bad. Come march 22nd 2015 it all ended i recieved a phone call from my dad sayin BUBS GONE WE LOST YOUR BROTHER. My mother could not walk in his home so i being the only sibiling had to clean it out. Not to be to graphic but im telling story so othets can see the signs BUT his toilet was FULL almost to the top with black stool with bloody vomit in a waste paper bascket in front of toilet couple tissue leadin from bathroom to his bedroom to where i was told he was found on his bed. Going thru his things i noticed he wrote EVERYTHING down like DONT FOR GET TO WATCH a certain movie ON THIS DAY or CALL MOM ASK HER and MAKE SURE I CALL FOR APPT i came to realize its part of the last stage he was forgetting thongs so he wrote them down. I had people tell me he startex getting paraniod over things thats in the last stage as well he was yellow also last stage. He drank himself to death alot of drs and people think alcoholics deserve what they got. But thats not true they had an addiction addictions are not funny and and addict dont deserve what they get what they needed to get was HELP so when there back hurts stomach hurts belly bloats yellow skin forgetting things they are close to losing there life this is all i know of the liver when owned by a drinker

[An_Ally]

My father was diagnosed with liver cirrhosis in the February of last year, on Valentine's Day. It began as 'fluid on the liver', meaning he had to be drained regularly otherwise he looked like he was pregnant. In fact, when he was in hospital once, a young boy referred to him as 'the pregnant man'. In and out of hospital for months, mid summer he was referred to a strict hospital in Cambridge for a transplant. He didn't get it. We all thought it was from something in his blood that I shan't divulge in on here, but really, we all knew it was because the transplant would likely kill him and his liver was already too badly damaged. After returning home, still managing to smile, he went on two seaside holidays and on the Harry Potter Studio Tour, occasions we now realise formed his personal bucket list, and then, in late August, after a consultation with doctors, we were told he had a few days left to live. This was a Thursday. He died the following Saturday. But his last few days were lovely. It was more of a 'just die already' feeling I had after months of putting up with his 'I'm ill do whatever I want' demeanour, but not because I wanted him to, but so that he would be at peace. Anyway, in his last few days, spent at home in his own bed which I still sleep in to this day, he watched his favourite films, was visited by his loved ones and had his son (that's me by the way) constantly by his side, repaying him for all the times he had looked after me when I was poorly (from stomach bugs to a busted elbow) growing up. I'm eighteen now and it feels like he's taught me everything he knew and has now set me off in life, his job being accomplished, and has taught me to be constantly living for the day and not regretting anything. It was a nice last few days for him, really.

- An Ally

[Sunnierdays]

A man who I've known and loved for 9 years died from cirrhosis of the liver this week. He was an alcoholic. He was only 49 yrs old. I thank all of you for posting your thoughts and feelings and for sharing the details of your experiences about those that you've lost. Robert and I met through my son...they worked together at the time. Right away I liked him. We enjoyed so many of the same things and I cherish so many wonderful memories. Several years before we met, Robert and his wife divorced and he began to drink excessively. He drank himself into a coma and was hospitalized for a month. He came out of it, recovered and went into a 6 month rehab program but he had a disagreement with one of the directors there. He left and didnt graduate. After we became a couple I began to realize that he was drinking again. There were so many lies and so many broken promises...I would give him ultimatums and he would quit for awhile then I'd start smelling it on him and he would deny drinking and at times I thought I was losing my mind and would doubt myself thinking maybe I was imagining it. While we were together, he lost at least 4 different jobs. It took awhile but I began to learn that nothing I did or didnt do was going to stop him from drinking. He was going to have to want sobriety for himself. I loved him and couldnt stand to watch him kill himself. One day I asked him if he would choose sobriety for us and 2 days later he moved out telling me he believed he could handle a beer or 2 but because I did not believe that he could, he didnt want to put me through any more. After that we saw each other occasionally. We never lost touch. I never stopped loving him. The last communication we had was a text he sent 3 months ago from another state where he had moved. He said he missed and loved me and said everything was great. A few nights ago I got the call from his aunt telling me he had been in the hospital for 3 weeks on a morphine drip and had passed away that evening. My mind doesn't compute the thought that he is no longer living. He is no longer walking, talking or breathing on this earth. I had never stopped praying for him. A part of me had held out hope for him, that he could get well and that maybe someday we could be together. I grieve the loss of a man I loved dearly, a man who was a father to two children, he was a son, a brother, an uncle. I wanted to know how he may have died in the hospital. I wasnt there and it doesnt seem real that he is gone. Because of what everyone has shared and written here, somehow it has helped me to accept the reality of his death. I pray he has peace and thank God he is no longer suffering. This "disease" is so deceitful. It fools the alcoholic into believing there's no problem. It is so destructive, it destroys bodies, minds and touches endless lives. May you Robert and may all those that have been written about in all of these comments rest in peace eternally.

[TooOldForTransplant]

My mother was diagnosed with cirrhosis of the liver a couple of years ago. 6 months after she was diagnosed she had varicee bleeding. She is 76 years old today. Her cirrhosis is from complications of lupus. She has an average of an egd every two months to stop the bleeding. About 3 months ago she developed ascities with edema in feet and ankles. She couldn't eat and was very uncomfortable. They would not do a tap to release the pressure but gave her Lasik. The ascities never truly goes away. She just has varying amounts of fluid. Today she is very weak. Having trouble standing. She looked pale and even a little ashen. I'm not sure how much more she can take. She doesn't have any muscle left as she is also suffering from wasting. What I find strange is her labs come back almost normal.

[Hlihl365]

My mom is dieing of the same thing caused by lupus. She’s bedridden, confused, sees people and talked to people that are not there . She barely eats and drinks. Her urine is dark brown, she has jaundice...don’t know how much longer she has.

[gani1213]

my friend have suffered with hepatitis(not sure of the type)and liver damage.he was admitted to a local hospital where he was given iv treatment.suddenly he got serious and reffered to another hospital where he was kept in icu.after few days he shifted to normal ward and within three days his bp levels went below normal and shifted again to icu.and he was dead the next day.we are not sure how he was dead whethee due to negligence or liver damage is not curable since he was declared to be normal and suddenly he was dead.please help with some advice