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Avatar universal

2 Ovarian Cysts, 2 months Heavy Bleeding, Dr says wait and see

In early March, I miscarried at 5-6 weeks. I bled for 2 weeks. Had a normal period (7 days) in April, but a month long one in May. Called dr, said to come it if it lasted more than 4 weeks. It didn't. 12 day one in June.

-7/23 got period
-9/10 gyn exam w/urine and blood drawn
-9/12 nurse calls, 6.22 tsh, 28 prolactin, low T4, not pregnant, not anemic, and no STDs. Set me up with fam prac and ultrasound app
-9/13 fam prac app, says I have pituitary tumor or cancer, set up MRI and endo app
-9/14 pelvic/transvag ultrasound
-9/16 MRI
-9/17 results from fam prac dr - pituitary and thyroid good. Bloodwork in a month. If levels dropped, I'm fine. If not, I keep the endo app in Nov.  
-9/24 call from the ob/gyn's nurse. She told me that I have 2 'simple cysts'. One ovary had a 3 cm cyst and the other ovary has a 5.4 cm cyst.  I am supposed to call them on the day my next period starts and they will schedule another ultrasound to check the size of the cysts after that period ends.

So I ask what to do with my current bleeding issues and she seemed SURPRISED!!! that I was still bleeding. I have half dollar size clots coming out when I go to the bathroom, in the shower, and occasionally during the day. 5-10 a day. Oh, well, I am supposed to wait another 2-3 weeks, and if I am still bleeding, call them back then and they can put me on birth control.  When I said birth control was NOT an option because I want to get pregnant, she kind of beat around the bush with "well, we'll see."

In this time of waiting, I've done my research and wonder if I may have polycystic ovary syndrome? My symptoms are similar to those with it except for that I have no male hair growth (thank goodness!).  I'd gladly go get a completely different second opinion, but don't want to go through this all again only to be told a 'wait and see' diagnosis.

Need advise!!! Sorry for the wordiness, but so many details and I want some sound answers. Please help!
3 Responses
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603463 tn?1220626855
MEDICAL PROFESSIONAL
Hi!
If you were my patient, I would have to advise you that I think you are smarter than your doctors.  From your symptoms, lab work and ultrasounds, PCOS sounds very probable.  If you were my patient,  and wanted another child, I would re-do the ultrasound to check for resolution of the ovarian cysts and if they are gone, I would consider starting you on Clomid or Metformin to induce ovulation.  I would consider starting Metformin in the meantime, to reduce insulin sensitivity and help the Clomid work when the time came for it.
Helping you to ovulate will help you to have regular normal periods and will also speed up the time to conception.  PCOS explains your elevated prolactin level too, so I would probably not be too concerned about that.  I would follow your thyroid in 3-6 months. It is possible that you are going to need some replacement thyroid hormone too.
Hope this helps!
Dr B
Helpful - 1
Avatar universal
Thank you for your answer. Yes, I think my drs are not too bright. I just called the other hospital in La Crosse, Wi to make an appointment with them and they asked if I had seen the fertility dr. Who? Didn't know the guy existed. Forget Fransican Skemp/Mayo Clinic!
Helpful - 0
Avatar universal
forgot to mention, over the past 15 years, I have had the occasional month long period when I am stressed out. Have them maybe once a year. I was treated in '07 when I had a 3 month long one. They didn't do any tests, just gave me 7 pills (one a day) to take and it stopped it. Didn't have a long one for a few years after that. Also, about 3-12 months after taking pills, did lose about 20 pounds, but was also working a job where I was on my feet 8 hrs/day plus regular exercise. Not sure if that matters?
Helpful - 0

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