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12mm haemasheild greft repair complex.

I have recently found out that heamashield graft has started to narrow. At an appointment back in March I was told that I could be facing surgery within 6 months time and that doctor would be discussing me at a MDT meeting. This meeting took place in July an they ruled that its would be complicated to fix and that it would be best to leave me. I then got told that there would be a second MDT meeting to take place in August to discuss further options and was advised they may opt for a stent to be placed and redirecting to occur. But on conclusion  they have again decided it would be to complicated and it's best to just leave me. I kinda feel that I am not getting the full truth and to be told I could be facing surgery to then not has made me extremely stressed.
I asked about having a cathiter as they would be able to investigate better but this has not been discussed and I feel like the reason this may not be a option is because when there using words like its complex it's another cop out off telling me the truth that they can't fix the graft. This has had a massive impact I haven't slept proper since March and they wont tell me what I need to look out for. Has anybody else been in a situation like this?
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Avatar universal
You need another opinion at an UNRELATED INSTITUTION.  Are you in the states?
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