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Heart desease & now PVCS Irregular beat
Hello again.... I hope everyone is doing OK. I had a stent put in a couple weeks ago and a baloon. LAD w 60% blockage was stented and a branch off of the LAD was 90% they put a a balloon there. Had an ECHO.. no damage and normal EF....
Before ALL this, For years I had Pvcs pacs iregular heart beat... Even had some kind of rhythm that the Doc put me on rythmol for... that was about 4 yrs ago. I have always been overly concerned with my heart....and even tho they told me these PVCs were not harmful, I had every test imaginable... I had yearly thalium tests ... Not sure how they didnt know I was developing blockages... I had to drop my insurance so missed going the last year... however, all tests always came back normal . The rythmol stopped the PVCS... I was thrilled! I did not knowthey were dangerious drugs until all this new development with my heart. They told me to stop taking them because they could be dangerous if one has heart desease! I then started researching.... I figure I had heart desease for much of the time I was taking them, just noone knew:(... TO get the point.... The last few days the PVCS/pacs irregular rythm are back!.... I am so scared! I was so scared of them when they were benigne... but NOW I read they are VERY dangerious if one has heart desease:( What to DO about them?? HOW to live with them??? Besides them making me feel I am a walking time bomb, I FEEL each one and always have... It is like the feeling you get when someone scares u and takes your breath away or that sinking feeling you get when falling from a cliff (like in a dream).. it is AWEFUL. THey come and go.... Had them 2 days ago off n on ... skipped a day.. had them yesterday most of afternoon ..instead of steady beat... they were like reg beat, lighter smaller beat sooner than normal and then a pause.. then same weird rythmn over and over...It would scare me so I would get up and do something...it would go away then come back for a few mins at a time...Finally last night it stayed in rythm all night is there today.. this rythm didnt seem to bother me as much if I was up DOING.. so the good side is I got ALOT done yesterday. I got on here last night and looked up PVCS when one also has heart desease... it was more than DEPRESSING... Should I get a Difibulator??? Do others of you have this??? If so, & knowing you are still alive will be of great comfort to me... Thanks so much for listening...Any suggestions or info or ANYTHING from yall would be so appreciated... I am SO grateful for a place like this to come to!
Before ALL this, For years I had Pvcs pacs iregular heart beat... Even had some kind of rhythm that the Doc put me on rythmol for... that was about 4 yrs ago. I have always been overly concerned with my heart....and even tho they told me these PVCs were not harmful, I had every test imaginable... I had yearly thalium tests ... Not sure how they didnt know I was developing blockages... I had to drop my insurance so missed going the last year... however, all tests always came back normal . The rythmol stopped the PVCS... I was thrilled! I did not knowthey were dangerious drugs until all this new development with my heart. They told me to stop taking them because they could be dangerous if one has heart desease! I then started researching.... I figure I had heart desease for much of the time I was taking them, just noone knew:(... TO get the point.... The last few days the PVCS/pacs irregular rythm are back!.... I am so scared! I was so scared of them when they were benigne... but NOW I read they are VERY dangerious if one has heart desease:( What to DO about them?? HOW to live with them??? Besides them making me feel I am a walking time bomb, I FEEL each one and always have... It is like the feeling you get when someone scares u and takes your breath away or that sinking feeling you get when falling from a cliff (like in a dream).. it is AWEFUL. THey come and go.... Had them 2 days ago off n on ... skipped a day.. had them yesterday most of afternoon ..instead of steady beat... they were like reg beat, lighter smaller beat sooner than normal and then a pause.. then same weird rythmn over and over...It would scare me so I would get up and do something...it would go away then come back for a few mins at a time...Finally last night it stayed in rythm all night is there today.. this rythm didnt seem to bother me as much if I was up DOING.. so the good side is I got ALOT done yesterday. I got on here last night and looked up PVCS when one also has heart desease... it was more than DEPRESSING... Should I get a Difibulator??? Do others of you have this??? If so, & knowing you are still alive will be of great comfort to me... Thanks so much for listening...Any suggestions or info or ANYTHING from yall would be so appreciated... I am SO grateful for a place like this to come to!
Yes, I got the holter put onthis Friday... of course they are closed until 2morrow... But I intend to tell them I need it for a longer period. Or yes the event monitor.. I wore one of those years ago, when I was first having PVCs...
She told me to take it off in 24 hrs... I knew nothing significant had been recorded.. and was wondering if I had left it on longer if it would have still worked?? I figured they were preset for the 24 hrs only so took it off.
My son said.. he wondered if it was my mind somehow relaxing & controlling them because of being near the ER or having on the holter.... Dont I WISH !.. I would trade this house for a motor home and camp out in the ER parking lot if that were the case!
She told me to take it off in 24 hrs... I knew nothing significant had been recorded.. and was wondering if I had left it on longer if it would have still worked?? I figured they were preset for the 24 hrs only so took it off.
My son said.. he wondered if it was my mind somehow relaxing & controlling them because of being near the ER or having on the holter.... Dont I WISH !.. I would trade this house for a motor home and camp out in the ER parking lot if that were the case!
Been there done that!
When I first started to have horrid episodes with runs of bi-and tri-geminy I would drive to doctor's office to get better...twice sat outside ER for a while before I went in only to be sent home an hour later with no diagnosis other than having had a few PVC's while there.....
..to add to ed34's suggestion regarding a Holter monitor..I finally got evidence using an event monitor...Holter with a button that you press when an episode begins and it records the ECG for 3 minutes including time before you pushed. Can do three recordings then you phone in data. Nice thing about this one is you can disconnect wires to take a shower... only needed a week to get several good ECG readings.
When I first started to have horrid episodes with runs of bi-and tri-geminy I would drive to doctor's office to get better...twice sat outside ER for a while before I went in only to be sent home an hour later with no diagnosis other than having had a few PVC's while there.....
..to add to ed34's suggestion regarding a Holter monitor..I finally got evidence using an event monitor...Holter with a button that you press when an episode begins and it records the ECG for 3 minutes including time before you pushed. Can do three recordings then you phone in data. Nice thing about this one is you can disconnect wires to take a shower... only needed a week to get several good ECG readings.
You can have a holter monitor for longer than 24 hours if a Cardiologist wants to catch something. It's just that most issues will be captured in that time frame. Just tell the cardiologist that you are fed up with it never happening when you are wired up, and you want the cardiologist to see what it is, so you want a holter monitor until the symptoms occur. He should comply with this.
So here is a story for ...whoever.... I spent half the night in the PARKING lot of the hospital close to the ER entrance last night.... I was having AWEFUL irregular heartbeats..I think either afib or bygimeny.... so decided to go in... We got there and they STOPPED!! I just knew they would start up again, because they had been off and on ALL DAY LONG... mostly ON. Anyway after waiting on them to kick in again for about an hr ( i exagerated earlier:) ) we finally came home... it was about midnight... they started up again 10 mins after we got home.. NO JOKE! But didnt last long thank goodness..... &To top this off I had them for 2 days prior to this... &went in to get a 24 hr monitor and didnt have anything but a beautifully regular heartbeat... until the day AFTER I took it off....
Does this happen to others??? I mean can our minds be THAT powerful????
Does this happen to others??? I mean can our minds be THAT powerful????
oh no, i posted that reply to the wrong question :( was meant for the lady who is worried about her husbands bundle blocks. Oops, sorry.
I remember when I was first diagnosed with heart disease and saw the images of just how calcified my arteries were. I read so much stuff on the internet and convinced myself I had just weeks or months to live. That was over 4 years ago and I'm much healthier now.
Well, I think an electrolyte blood test would be the first test, to check your potassium and magnesium levels etc. I assume you've had an echocardiogram?
Hello Ed, I guess I thought a stress thalium test, if all looked normal, meant you didnt have heart desease... guess not, entirely. It sounds as though you have a very good doc... those collaterals you speak of ... one of my doctors said he bet I had them even tho they didnt show on angiogram... it went back and forth whether they would stent or treat with medication. If I had come here SOONER, and researched more, I think I might have stayed with just using the meds?? SO hard to know what to do... the doc finally said he would feel much better about things if he stented and pushed that soft plaque against the arterys...??? or something like that. I sure hope yours hold out Especially long enough for the collaterals to do their thing! I wore that holter monitor for 24 hrs.. no missed beats that I felt... took it off yesterday.. TODAY my heart has been crazy with pvcs... or pacs?? Makes me so mad it didnt happen yesterday so they could see what is going on:(... It must be ODD for someone with CAD to have PVCS etc?? I have researched a little, and cant find much at all?? Just that it is more dangerous.. or can be... Do you happen to know anything on this subject?... Probably not, or you would have said.. I am just more than a little nervous over these things starting up again. Anyway.. thanks for the post. I have learned so much already from reading on here... but still so NEW to all of this..much of it is very confusing to me.
" I had yearly thalium tests, Not sure how they didnt know I was developing blockages"
Hi woogie. Just for interest, a thallium test looks at tissue for oxygen absorption, and can actually reveal lots of details which an angiogram cannot. An angiogram is useless for seeing very small vessels, and you can't see collaterals at all unless they are unusually large. A thallium test can see if blood is getting to the tissue in adequate quantities, really saying if there is a good enough blood flow. So a 90% blockage may sound terrible, but if you have developed collaterals, it will be no problem. When they open up your blockages, then the collaterals will close down again, so you get the same volume of blood, just through a different route. Sometimes it works a different way. I had collaterals feeding into my lower left artery, and the blood feeding the collaterals was coming from my left circumflex. In march this year I had a heart attack because 2 blockages in my left circumflex (over 90%) caused those collaterals to close. This meant the bottom left side of my heart was seriously short of oxygen at the front, side and back. When stents were inserted into the two blockages, the collaterals opened over a few weeks and I could feel a small improvement every day. Sometimes the collateral feeds are not adequate for exercise, but are enough of a feed to keep the heart healthy when relaxed. This was my problem before my heart attack, the collaterals feeding the bottom of my left artery were too few in number. When they recently inserted my two stents in the left circumflex, the cardiologist said he was going to really expand the artery and the lower end, to encourage more collateral growth. I think his theory has worked because even running as fast as I can up stairs, there is no symptom. I just have to hope they hold out :)
Hi woogie. Just for interest, a thallium test looks at tissue for oxygen absorption, and can actually reveal lots of details which an angiogram cannot. An angiogram is useless for seeing very small vessels, and you can't see collaterals at all unless they are unusually large. A thallium test can see if blood is getting to the tissue in adequate quantities, really saying if there is a good enough blood flow. So a 90% blockage may sound terrible, but if you have developed collaterals, it will be no problem. When they open up your blockages, then the collaterals will close down again, so you get the same volume of blood, just through a different route. Sometimes it works a different way. I had collaterals feeding into my lower left artery, and the blood feeding the collaterals was coming from my left circumflex. In march this year I had a heart attack because 2 blockages in my left circumflex (over 90%) caused those collaterals to close. This meant the bottom left side of my heart was seriously short of oxygen at the front, side and back. When stents were inserted into the two blockages, the collaterals opened over a few weeks and I could feel a small improvement every day. Sometimes the collateral feeds are not adequate for exercise, but are enough of a feed to keep the heart healthy when relaxed. This was my problem before my heart attack, the collaterals feeding the bottom of my left artery were too few in number. When they recently inserted my two stents in the left circumflex, the cardiologist said he was going to really expand the artery and the lower end, to encourage more collateral growth. I think his theory has worked because even running as fast as I can up stairs, there is no symptom. I just have to hope they hold out :)
Hi Raven.. thanks for the post!... I am not sure if he tested for that?? I need to ask... it would be wonderful if that would help! Thanks again :)
I have PVC's - turns out I have a very low magnesium level (the result of our bad diet in the U.S., not enough greens, etc.) and that can cause PVC's. I've been on magnesium supplements (under the supervision of my cardio electrophysiologist - they specialize in heart electrical issues) for about 6 months and the PVC's are barely noticeable.
Has your doc ever checked your magnesium level?
Has your doc ever checked your magnesium level?
Ally, Thank you for responding!!! I kept looking and looking... thot I was the only one here with this messed up rhythm along with the CAD... Called my doc yesterday andthey called back today wanting me to come get a 24 hr holter monitor. Wearing it NOW and OF COURSE so far the ticker is in perfect rhythm... I hope it catches it though... sometimes I go for days without the odd rhythm.
Glad you are doing well... have a gr8 weekend!
Glad you are doing well... have a gr8 weekend!
I have both. I have heart disease and SVTs in my case. And the ryhthm is always the same, but there is a difinite skipped or dropped beat. You can feel it in my pulse in my wrist. It did get severe a few years ago and was causing me to feel faint and dizzy. They would take my breath away. I was put on Amiodarone, an antiarrhythmic drug. But the side effects were really nasty. I had to be monitored to check my liver and such. I decided after nine months I would take my chances without the drug and stopped taking it. The SVT episodes were stopped while on this drug, and fortunately have not returned. That was over 3 years ago. That was my experience, though, and only mine. It never hurts to consult a doctor. Take care, Ally
Does anyone here have pvcs/ irregular haert beat that has heart desease?? My pulse is normal rythm, then it goes OFF like out of rythm for 5 up to 20 beats, sometimes longer... then back in rythm for several beats... it feels like two beats closer together then a pause then two beats.. Im sorry I dont know how to explain it... isnt racing.. it is just beating differenttly ... It is in normal rythmn now and has been for the last 5 mins...It did this uyesterday and finally in the evening iit settled down. Should I go to ER??
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