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I m a 36 year old mail diagnosed with Hypertrophic CardioMyopathy with Obstruction. Assemetrical septum 3.4 cm. Pressure gradient 70 mmHG 85 ejec frac and hyperdymanic left atrium. Furthermore, I have Systolic Anterior Mortion of the Mitral Valve 3-4 + severe.  One doc wants to replace the valve and papilary muscles and still believes that there is no genetic link to the desease. The other doctor seems to think that the septal myectomy will reduces the SAM leaving my native valve in tact.  Neither seems very knowledgeable. They have both told me that they are lucky if they see one of these cases per year. I really want to get the best treatment and care. This is my life!
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