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Need help with daughter’s Orthostatic hypotension

My daughter was diagnosed with Orthostatic hypotension. She is in the middle of a growth spurt and is 13 years old. She gets dizzy upon standing. She is drinking 3 liters of fluid and taking 1 tablet of salt per day, but symptoms still persist. I’m getting worried. Anyone have experience with a similar situation?
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Avatar universal
Has she had a tilt?  Any other symptoms?
7 Comments
No tilt test so far.  Her blood pressure reading recently was-

after lying down 5 min-97/53, heartrate 61
after standing 1 min-99/60, heartrate 79
after standing 3 min-100/54, heartrate 76

Any thoughts? Thanks!
Tbh that's a pretty normal response... her diastolic is 53 bc her tpr is low at her age( which is a good thing)... she responds pretty appropriately.

Does she have other symptoms?
The only other symptom, which she has had since she was a toddler, is that she can't tolderat the heat.  The doc said she has postural orthostatic hypotension, but he nurse through around the term Postural Orthostatic Tracycardia-POTS.  By lookin at her blood pressure and heart rate, can you tell which it may be?  I cannot figure it out.  
Oh, I should've reread and used spellcheck.  Sorry!
No worries.

They are both a type of dysautonomia.

Orthostatic hypotension is when your bp significantly drops upon standing.

POTS is postural orthostatic tachycardia syndrome.  It's when your heart rate significantly increases on being upright.

Based on her readings I would not categorize her as either.

Since she has had heat intolerance she she was a child has she been checked for organelle dysfunction?
No, she has not been checked for organelle dysfuntion.
If your on the east coast I suggest seeing Dr. Heather Lau at NYU.
973741 tn?1342346373
One of my son's who was also 13 last summer had orthostatic hypotension.  It was a bit disconcerting because some of his falls were pretty dramatic.  Notably, he fell into our quartz counter top hitting his cheek bone and then was out cold on the floor for a second.  Black eye as a result.  Scared the poop out of me!  For him, this happened most earlier in the day when he would not have eaten or drank enough.  Especially bad if he slept in which he did a lot last summer (this year sports make that difficult and we're not having the issue as much because he gets up and eats).  So, the doctor told him to get up and eat first thing in the am.  He does this.  And we work on his overall daily hydration.  He plays soccer and has one to two long practices a day all week long and runs in the mornings for conditioning.  So, now he has a water bottle with him at all times to try to stay on top of it.  

Anyway, is there any pattern to when she is experiencing symptoms?  My doctor led me to believe this was not uncommon for kids of this age.  And suggested too that he stay aware and get up slowly from seated or laying positions.  
1 Comments
No other symptoms (just dizziness upon standing from a lying down position), but can't tolerate the heat too much.  She is going through a growth spurt right now. The doc said she has postural orthostatic hypotension, but the nurse through around the term Postural Orthostatic Tracycardia-POTS.  By looking at her blood pressure and heart rate, can you tell which it may be?  I cannot figure it out

Here are the results-
after lying down 5 min-97/53, heartrate 61
after standing 1 min-99/60, heartrate 79
after standing 3 min-100/54, heartrate 76

I am getting so worried about her.  Thanks.


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