Aa
A
A
A
Close
Heart Disease Community
20.2k Members
Avatar universal

POTS it too much pain.

I am 19 years old and I was recently diagnosed with POTS.  It started with me being very tired and having exhausted a sore muscles.  Then I passed out.  

I thought I could go on with my life but now I feel like I a dying.  I am in college.  I go for five hours a day for five days a week and I have already missed all the days that I can.  I am tired all the time.  My muscles hurt, my chest hurts, my stomach is hurting after meals.  I can hardly get through the hours of school and I feel weak, dizzy, and close to tears all day long.

My doctor does not know much about the desease but he prescribed beta blockers and they make me feel worse. I am going to lose my insurance if I quit school but every week that I return to school I get sicker.  I am really scared that I am going to end up in the hospital.  I want to get better but without insurance what chance do I have?  Is there anything that I can do to get insurance if I quit school.  Is there anything that I can do?  I am scared.  I don't know if I can make it through school and I am getting weaker and weaker every day.

Please give me some advice.  What do I have to do to get better?  What can I do as a job if I cannot get through school or stand for five hours?  Am I ever going to get better?

My parents do not understand that this is not just a cold or an infection.  They dont understand that it really hurts.  What am I to do?  How can I make them understand?

Please help.

Sincerely,

Lauren
3 Responses
251395 tn?1434494286
Hi Lauren...

check out www.****.***.  This website is very helpful in explaining different treatment options for this condition.

Good luck and I hope this helps.
Avatar universal
Hey there,

I just had an ablation done on my heart (27 y/o) and afterwards and currently seem to be exhibiting some charecteristics of POTS and it stinks!  When I get up my heart races and then eventually returns to normal but it makes me feel tired, dizzy and lightheaded.  I have gone through all of your same thought patterns, how am I going to keep my job, what will I do if I can't and loose my insurance, how am I going to make a living.

If your doctor isn't very familiar with POTS you should get a 2nd opinion.  They have told me to increase my salt and fluid intake.  Also, try to get up a slowly when you do.  This should minimize so of the blood rushes.  Also, I would ask your doctor to put you on a 24 hour monitor so you can see what is happening with your heart.

The other thing is anxiety.  I know that I am making things probably worse by the amount of worry that I am carrying.  So I am working at just focusing on a day at a time.  Thinking I will be disabled the rest of my life just throws me into a bigger rut that I don't need right now.  So, try to  remain in the present and battle through each day.

Let us know how it is going!
Avatar universal
I would check with my state about medicaid insurance. You will have to go to city hospitals for your treatment. But, if you are not working and/or have a low income. You should be able to recieve medicaid.

If you are worried about insurance this may be a avenue you can take. Call Medicaid at 1-800-392-2161 and see if you can recieve benifits. They pay for your doctors, hospital and medications as a part of the service.

                                                           Good Luck To You,
                                                                                        James
Have an Answer?
Top Heart Disease Answerers
159619 tn?1538180937
Salt Lake City, UT
11548417 tn?1506080564
Netherlands
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Is a low-fat diet really that heart healthy after all? James D. Nicolantonio, PharmD, urges us to reconsider decades-long dietary guidelines.
Can depression and anxiety cause heart disease? Get the facts in this Missouri Medicine report.
Fish oil, folic acid, vitamin C. Find out if these supplements are heart-healthy or overhyped.
Learn what happens before, during and after a heart attack occurs.
What are the pros and cons of taking fish oil for heart health? Find out in this article from Missouri Medicine.
How to lower your heart attack risk.