I will see a new CHF specialist in May but have a nagging question that needs some kind of answer.
In May 2000 I had a Hickman catheter place and put on constant
infusion of Primacor. The doctor at that time said it would have to be permanent until I could qualify for a transplant. Even with the medication I still had up and down days.
In January 2001 I developed many bloods clots in my chest which
was believed to be caused by the Hickman. The catheter was removed on Jan 12 and Primacor was stopped.
My question is, are the survival rates for people stopping this
medication reduced? Despite the discontinuing the drug, I have
felt pretty good. I can't help but wonder if I will have more complications now.
Thanks for any answers or comments.