aortic regurg,mitral regurg,tricuspid regurg, dilated left atrium

[Nikkiwill]

Hi, I’m a 37 year old woman who has been diagnosed with mod mitral valve regurgitation, mod aortic valve regurgitation, mild tricuspid valve regurgitation and a mildly dilated left atrium. My cardiologist does not have me on any meds and just wants to monitor me with echocardiograms every year. For the past few weeks I’ve been having pinching pains in my heart and sometimes it even goes a bit down my left arm. I feel like I’m not getting enough oxygen when I breath, I’m so tired all the time and I feel like I’m having an anxiety attack. I have an appointment with a geneticist on the 24th because my doctor suspects I have a rare genetic disorder called Loeys Dietz syndrome  because of my heart problems along with others including bifid uvula. I just had an echocardiogram in February, do you think I should ask my cardiologist for another one now since my symptoms are happening more often? I have issues everyday now for the past few weeks. It’s very scary.

[Sara_MHModerator]

Hello and welcome to the forum.  We're really sorry you are having this difficulty!  It's never a bad idea to see your doctor if you have concerns or if it feels like symptoms are changing or worsening.  Mitral valve regurgitation might cause fatigue and shortness of breath. The blood coming through the left side of your heart fuels your body, bringing oxygen from your lungs to your cells. If some of that blood is flowing back into the heart instead, you might end up feeling tired or lightheaded, particularly if you’ve been active. In severe cases, you can find yourself feeling tired or short of breath even when you’re at rest.  https://www.mayoclinic.org/diseases-conditions/mitral-valve-regurgitation/symptoms-causes/syc-20350178  I do think that having anxiety can impact this as well and it would be understandable if you had some anxiety.  I just mention that because working through a health condition and sometimes having overlapping symptoms makes it hard to fully treat the whole issue. So, this may be something to also talk to your doctor about. What was the result from your appointment with the geneticist?  Please update us.