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Avatar universal

25,000 to 40,000 PVCs Daily

No question, just been reading posts and just wanted to let all here know what I've been experiencing in the PVC area for the past 6 months straight, pretty much non-stop. Was in ER July and all was supposedly fine, but you can't help but wonder if they know what they're talking about when your heartbeat all of a sudden goes haywire and just no peace in between. It is nerve wracking to say the least.

I joined the Yahoo PVC forum and we have a pretty knowlegeable group there which also supplies their email addresses to each who adds it when they join and they are always ready to jump in with anything they can offer when you post of your heartbeat irregularities. It helps to have someone to talk to on a regular basis when things get so bad you think you're going to lose your mind. I feel that way quite often after 30 years of these things that seem to get worse as I grow older. It is a living hell that's for sure but all you can do is try to endure it as nothing helps, absolutely nothing. Sometimes they will lighten up on me a bit but lots of the time they are up in the high 1000's of PVCs per day. Very hard to cope with.
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770474 tn?1256299995
I just had an ablation 2 weeks ago today and didn't have any antibiotics.  My Holter Monitor had showed thousands per day and my life was miserable.  The ablation worked wonderfully and I feel the best I have since February when this bout started.  I would do an ablation again in a minute.  It helps to find an EP with lots of ablations under his belt.  I had gone to many different kinds of doctors to see if it was related to something else (thyroid, menopause, gastro problems).  Four different medications were tried on me and some only made them worse.  Finally relief came through ablation.  Amazing procedure that can change your life without a stitch!  If you are suffering and it's possible, my recommendation is to get one.
Helpful - 0
967168 tn?1477584489
25,000 - 40,000 pvc's daily is ALOT, do you have your test results and documentation for this?  If you do, keep copies and if you don't get your test results. Was that just from the ER or do you go to a cardiologist & EP?  Please go see them if you haven't and take those test results to them if you haven't

It sounds like you need an EP Study or ablation to get rid of them. Have they cautioned you this may lead to cardiomyopathy?  My EP said anything above 20% of your total heartbeats per day can cause CM, not saying that it will, but it can.   It can, and did happen to me in a very short period of 6 weeks.

I think I'm still not over the shock of having over 54,000 pvc's [sometimes more] daily continually.  I'm a member of People with PVC's also, but their format hurts my eyes, so I don't go to it alot.  I have NCS and OI, autonomic nervous system problems so some things really bother me that shouldn't.

I have long runs of polymorphic sustained VT that make me faint.  They corrected 99.9% of my pvc's, which is a huge relief; but PAC's started the day of surgery and continue now.  I had to have a pacemaker/icd implanted and have been shocked from VFib once and converted twice from VT so far in 2 months and I'm being atrial paced 28% of the time but only Ventricle paced 1%.

I urge anyone who has pvc's continually to ask, beg, plead or just plain demand a 30 day montior just in case.  Be the best advocate for your health; instead of sticking your head in the sand and ignoring things like I was told to do.
Helpful - 0
1 Comments
Thank you for this info..just found out today my burden is 38,000 - 40,000 a day..I will be having the alcohol septal ablation Sept. 15,2022...I pray I get some relief andcI pray all you guys do too !!! I feel terrible 24/7.
Avatar universal
Oh...I belong to People with PVCs. Guess that's the one. Right...It's a great group.

My PVCs have been worse lately. I feel them more some days. Probably because I've been hurrying a lot and visiting with people more. That tends to stress me out some. Guess I get too excited and try to do too much in situations like that. I sell catnip filled mats and toys online, plus kid's hot/cold packs, dried florals and other crafts. I  get a lot of orders this time of year. Also have items selling in several local shops and galleries.  I'm trying hard to make more of everything to keep  enough in each place, and maybe that's why my PVCs are a little worse. I have that darn tickly cough more, and the cough always tells me that I'm going to have more PVCs. I'm getting tired more too. Must all be related. But I don't want to give in to the PVCs. Just want to live my life as best I can. Still don't need a beta blocker. Doctor says that a slower pulse wouldn't help anyway. My PVCs are always less when my pulse is over 85, so I move around a lot. Sitting more and being inactive always means I get more PVCs. This is so strange and unnerving.  Some people here are worried about a few hundred PVCs a day, but others have so many more, in the thousands. Yet many of those with more PVCs seem to be doing okay.  Thanks for letting me vent here, Lil.

Carol

I still can't figure out how I could have a perfect treadmill stress test in February and in July have 17,000 PVCs in two days on a holter monitor. I'm just hoping they don't get much worse. The thought of needing an ablation someday (because I get more PVCs) scares me because I can't have antibiotics. I doubt they'd do one without an antibiotic anyway. So there's that.  At least my echocardiogram was okay. But I do kind of wonder what will happen in the future if I could get PVCs so suddenly like I did.

Hope you're doing a little better, Lil.

Carol
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Avatar universal

Here's the address, but if you sent an  email it will come back to you unless you're a member.

***@****

You can research it by just typing in people with PVCs yahoo groups. I don't think you'll be disappointed as they're very personable there and are just a great bunch altogether. Though I'm sure the members here are just as great, you just seem to get to know these members on a little more personal level as we discuss our issues back and forth among each other.

Hope to see you there.

Warm Regards,
Lill
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Avatar universal
Lil, what's the address of the Yahoo PVC forum?  Or do I just look under "PVC" in Yahoo forums? I've never checked that out.

Carol
Helpful - 0
Avatar universal
Thanks so much Tracy, I happened upon this while surfing the net while I was having some of my worse PVCs, just never know what else to do except look for people with similar and it helps plus it will ease my mind off my bad bouts of them at times as well.

Hope you're doing well. I probably won't be in here as much as I am in Yahoo groups PVCs because I am just so familiar with everyone there, it's almost like knowing them personally and yes, they are all great and have helped me tremendously. Hope to see you back over there.

Warm Regards,
Lill
Helpful - 0
386141 tn?1291396896
Hi.

I'm too a member of the Yahoo group and I have read many of your posts. What you endure everyday with these blessed PVC's is truly awful. I have also suffered with them since I was 8. I'm now 37 and they come and go like the weather. My last bout lasted for 6 months after my ablation for SVT.

Many times your words of comfort to others in your responses have also brought me piece of mind during the bad bouts. I just hope yours will ease up soon.

I think you will find this site also helpful and informative as I have.

Kind regards

Tracey
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