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923105 tn?1341827649

Fed Up!!!

Sorry in advance for this posting it's just I am so fed up.  Especially fed up today as my dog died this morning so hey wacky beats off we go :(
Fed up with being told I am paranoid - I wasn't until these pvc's started out of the blue 3 years ago.
Fed up with seeing so many cardio's with no answers.
Fed up with not being able to play with my 6 years old Son without PVC's playing up.
Fed up with not being able to eat - that starts them off too
Fed up with not being able to bend over.
Fed up with them starting off when brushing my teeth - oh yeah I get it, it's the vibration of the tooth brush
Fed up with writing this post and wacky beats are banging away.
Fed up with not being able to sit quiet and watch the TV with out wacky beats.
Fed up with not being able to exercise without - yep you got it.
Fed up not being able to withstand the heat any more.
Fed up because I cant get out into the garden and bend and stretch anymore.
So now that I have ranted and raved - I am so sorry.  It just really gets to me sometimes.  Normally I can handle these things really well, they normally come with a barage just b4 my monthly - but now I have them all the time.  If I got on my bike and went for a good honk they used to go away, but now they don't.  Yep been checked out.  I AM NOT PARANOID JUST REALLY REALLY ANGRY now that my "quality of life" is being really affected by these pvc's and I really don't know what to do.  Meds is not an option for me - I sleep enough as it is.  I have belonged to this forum now for over 3 years and I used to post a lot, with advice and support etc., but like I said they have now come back to haunt me once again and yes I am scared all over.  OK typing this I must of had 7 wacks.  

Sorry sorry for ranting.  Burying my beloved pet this morning has not helped and oh right there goes another 2.  FED UP!!!!
7 Responses
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Avatar universal
I'm right there with you, my friend.  I've had them for 20+ years.  I started Acebutolol a few months ago, after doing a lot of research, and begging my doctor for it.  Started at 200 mg raised that to 400, and I almost felt like I had my life back.  Sure - I would maybe get a thump or two a day - but nothing like I was getting.  I could go for a couple of weeks without feeling anything.  I felt NORMAL.  Well, now for the last two weeks they have been back - all day long.  I don't know if I need to increase the Acebutolol, go off of it, or what.  I do know that it is one beta blocker that really doesn't make you tired - and least it didn't make ME tired.  I was on Toprol XL for 3 years, and when I finally went off of it, and on Acebutolol, I realized how depressed and tired the Toprol was making me.  I also take 50mg of Klonopin (a benzo) when they get really bad - but that doesn't seem to be helping much anymore, either.  You might want to ask your doctor for a benzo (xanas, ativan, klonopin) for when things are horrible.  I'm sorry you are miserable.  I think all of us with this are miserable and anxious and fed up and are not living our lives the way we want to.
Helpful - 0
221122 tn?1323011265
May I add?

I'm FED UP with being afraid to drive on the highway by myself!
FED UP with being afraid to change jobs.
FED UP with being afraid to go to job interviews cuz they will start and I will be distracted.
FED UP with having no stamina to walk with my husband at times
FED UP with being told I'm a hypochondriac
FED UP with my husband for not understanding.

Does that make you feel any better?  I also get them at the same times as you mentioned, too!
Helpful - 0
924240 tn?1300052827
So sorry to hear about your dog passing away.  I know how difficult this is.  I hope your puppy is at peace.  
I also suffer from PVCs and they are driving me batty this last week.  I've had them for 7 years.  You are not alone and I hope that helps a little bit.
Helpful - 0
876405 tn?1243508286
I know exactly how you feel.. I have had these PVC's and PAC's for about 3 months now and I am going absolutely crazy. I am thinking about them all of the time and scared that I could drop dead at any moment. I am an anxious person normally, but this has made me 10 times worse. I am now depressed also. This forum is the only thing that really keeps me sane at the time. No one I know has ever had PVC's and I feel so alone. I guess my word to you is to just hang in there, get them checked out by the cardiologist and live every day to the fullest..And keep coming back here, we are all in the same boat, and everyone can relate. Good luck to you.
Helpful - 0
Avatar universal
You have more patience than I do!  I only had the tachycardias about 1-1/2 years before I started fussing at my cardiologist.  BTW, I let the cardiologist know up front that medication for the rest of my life was out of the question and I was scheduled within 2 weeks for ablation.

At first, I thought the ablation was the worst mistake of my life for about 4 months afterwards with skipped beats, rapid bpm, blood pressure through the roof.  I got, depressed, I was lethargic and extremely annoyed because all the cardiologist and doctor would tell me is get out and exercise but I couldn't keep my eyes open much less energy to walk to the mail box.  Jerks!!

I started googling the following: CoQ10, Ubiquinone, Ubiguinol, ATP Adenisone, HTP-5 (for depression), Lovaza or Omega 3 and flax seed oil.  There are others but this particular combination is helping ME.  Each person is different.

I will only say that I have probably read a 2000 websites finding information and storing the links and info in a folder for favorites and also forwarding that information to friends.  I doubt my doctors has read 2 pages of 5 websites on similar information.

I have the additional problem of high blood pressure and type 2 diabetes which can complicate things when it comes to supplements and/or prescriptions interacting.

So, get ANGRY but GET TO READING also.  It will focus your anger into possibly finding the latest articles on heart issues and possibly more "natural" solutions.
Helpful - 0
Avatar universal
I have the same problem.  I did finaly get diagnosed with wolff-parkinson-white syndorm after about 8 years of going back with complants.  Now I have had an ablation that failed due to the bad signal being to close to the main artery of the heart.  They don't feel there sould be a problem because the bad signal is "lazy" and the chance of it going into a fast rythm is slim.  Now I have pvc's and pac's all the time.  It increases at the time of month also.  I have found the only thing that works for me is the beta blocker.  I know you really don't want to go the medicine and I didn't either that is why I did the ablation.  I really had no choice.  I could not stand it any longer.  I really don't have a problem with it making me tired.  Maybe you could give it a try.  It might take you a month or two before you feel normal.  I noticed a little change now I just feel normal on it.   Good luck.  
Helpful - 0
520292 tn?1232035850
Your not paranoid at all, you have a diagnosed heart arrhythmia that ruins your life.  It is not a normal occurrence like the doctors always say they are.  Nobody I know has the PvC's, so how can that be normal.  Anyways the arrhythmia we deal with everyday does put us at an increased risk of your heart developing into a more serious arrhythmia.  Not saying it will but just puts you at a slightly increased risk.  In fact an article out of a cardiology journal written by doctors explains how this is possible.  The link is right here:

http://download.journals.elsevierhealth.com/pdfs/journals/0735-1097/PIIS0735109705015780.pdf

I would not go on getting worried about it, but understand that you are not paranoid and do have a problem like the rest of us.  The doctors can not do anything for us, and do not know how to cure them.  In fact the most common cardiologist office visit, is for people like us with palps and PAC's\PVC's.  They see them all the time, but have no way of curing them.  So all you can do is go on with your life and just try to enjoy the best like you can live.  Do let it ruin your life, just say hey I guess that's how my body works now and I'm going deal with it.  Good luck to you and have a blessed day!
Helpful - 0
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