Hi Otterwatcher... Have not been officially diagnosed with CFS but post interferon I have all the symptoms. In particular crashing after any exertion.
On some days the simplest tasks seem impossible. Am 2 years out from treatment next month and beginning to realise that am not going to spring back to life like it was. It is a matter of adjustment and leading as healthy a life as possible. Would love to hear how everyone is doing as the boards seem a bit quiet. Best wishes to all.
The system here in the USA, when on medicaid - which I was on for treatment, is that you are automatically put into the system for Social Security Disability. This involves a very long process of Social Security automatically denying you then you getting a type of lawyer (no fee) then a long wait until you eventually see a Federal Judge.
After a two year wait I got full disability 100% based on the inability to stay awake long enough to work a full work week - basically the same diagnosis as CFS which my MD and Psychiatrist also diagnose me with.
At one point I had to fight for Vyvanse which was prescribed for me for CFS and won so the insurance company also agrees that I have CFS - all from HepC treatment.
Good to hear from you Frank.....look forward the new post ! Best wishes to all.