Aa
Aa
A
A
A
Close
Avatar universal

Interferon Syndrome

I want to know if there is now a Diagnoses of Interferon Syndrome
I not only went through 3 rounds of treatment for Hep C I had every possible side effect there is and wrote a few chapters of more sides, my Dr was a great man and did everything to help me but now almost 20 years later I am still suffering from almost everything I was during treatment and then some
I have more  diagnoses since treatment but is there a sound diagnoses of "Interferon Syndrome"
29 Responses
Sort by: Helpful Oldest Newest
1798872 tn?1346164585
TO ALL; The Mayo Clinic as of this year has a DX;Post Interferon Syndrome yes they do ,you have to be smart and do your own research and not depend on someone else to answer.....Yes,Yes there is a DX for all of us..:)
Helpful - 0
Avatar universal
http://www.webmd.com/drugs/2/drug-37/interferon+alfa-2b+injection/details/list-sideeffects


http://www.currentpsychiatry.com/the-publication/past-issue-single-view/hepatitis-c-and-interferon-watch-for-hostility-impulsivity/9f82eececd494822b1bc89be4295fb70.html
Helpful - 0
Avatar universal
"There is a diagnosis of "substance/medication-depressive disorder". It does seem to be exactly what everyone is calling "Post Interferon Syndrome"."


Not even close.  I don't htink you understand or "get" the extent and scope of the side effects.  To the extent that depression occurs, it is simply one small piece of a much bigger thing.

I have received a diagnosis of Post-Interferon Syndrome from the hepatologist that treated me.  He acknoweldged that it was not a recognized diagnosis, but he had apparently taken the time to read forums such as this one and recognized that such a thing existed.
Helpful - 0
Avatar universal
Thanks Otterwatcher...It is all very frustrating but have to believe there is something that can be done. Will let you know if the Herbs work. All the best.
Helpful - 0
747988 tn?1396536878
I haven't been back to London since I left 10 years ago,can't stand cities either,am lucky to be in rural mid Wales now.
Pacing is the thing-it's so hard to get the hang of,it took me 3 or 4 years to actually relinquish all household duties in favour of feeling better.I'm sure the healthy diet also helps to a degree,food is the best medicine or the worst poison depending on your choices.Sorry I don't have anything more positive to offer! Let me know how you get on with John's herbs...
Helpful - 0
Avatar universal
I did not mean to sound so sniffy about south london...just that since interferon
I have become  allergic to cities and the only good thing about them is to see something beautiful and then leave......Have to say am feeling a bit desperate regarding recovering from treatment....it is so very helpful to have this medium
and very much appreciate you posting....I guess I will have to learn pacing ...not a skill I am good at....Very best to you and all on the road.
Helpful - 0
Have an Answer?

You are reading content posted in the Hepatitis C: Post Treatment Issues Community

Top Hepatitis Answerers
317787 tn?1473358451
DC
683231 tn?1467323017
Auburn, WA
7469840 tn?1409845836
San Diego, CA
475555 tn?1469304339
Woodhaven, NY
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.