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post treatment side effects

What longterm side effects after treatment is anyone experiencing?
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Avatar universal
I was never the same again, so says the missus...
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253566 tn?1219679699
72 weeks of (old school) treatment got me SVR* and 100% SSI disability for life!

At least the nurse for the University of Pittsburgh Liver Center Guru, again, the nurse apologized by saying "Sorry. We destroyed your life" over and over again... "Sorry. We destroyed your life"!... "Sorry. We destroyed your life"! One of the more honest humans in that cattle call.

*I hate using *cure since we all know there is no cure for a virus!
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Avatar universal
But it is a cure if it stops virus replication isn't it?
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Avatar universal
7 mos post tx and im still not the same...doubt i ever will be, and i have to treat again at some point.  
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Avatar universal
brain fog
insomnia
itching
depression
rash pops back up when it wants
short term memory gone
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2029713 tn?1373041104
I'm about 9 weeks post treatment(48 weeks/triple therapy Incivek/riba/interferon) and haven't noticed any lingering side effects. I also treated unsuccessfully with Interferon/riba in 2000, but didn't notice any lingering effects then, either.

Hopefully, when these newer direct acting antiviral, interferon-free, treatments come out in the next year or two, this issue about long term Interferon side effects will disappear completely. The antiviral drug Sofosbuvir looks very promising from what I've seen on postings here at Medhelp.
Helpful - 0
2073790 tn?1335305414
For me the long term effects are a life free of HCV. I am geno type 2b and did 6 moths of interferon/Riba. I am now 6 months post treatment and feel great, better than I have in years.
During treatment I had vision problems mostly blurry vision and was not able to read without reading glasses, my eyesight was fine before. It seems I developed a mild astigmatism so now I have my first pair of prescription glasses (bifocals) and with those I can see fine. I still sometimes have some joint pain in my hands but that has been diminishing. My skin, nails and a hair are all healthier post treatment, I had major insomnia before treating and now I sleep great. My metabolism has changed, before treatment I was real skinny no matter how much I ate and now I seem to be gaining weight which for me is a good thing.
I am glad I did the treatment and it was successful and now I am glad to have my life back. I  just wish I would have been diagnosed sooner.  
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Avatar universal
I am with rainpath, I have done a total of 4 years and 4 months of interferon based treatment. It was 11 years in between the last time and the recently finished 48 weeks of Incivek triple treatment. In those 11 years and the month since EOT this time, I do now and always felt completely healthy and energetic, normal, after treatment. I am sorry for those not so lucky, but I want people considering treatment to know that there are those that do not have lingering effects...
Mark
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Avatar universal
Sorry, rainypass, maybe there are a few effects...
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253566 tn?1219679699
I dont think that is accurate since doing a google of Hep C & cure will bring about all sorts of Big Pharma searching for the NEXT big treatment with 100% success rate... so if we were all "cured" and not just SVR then why more mega bucks being put into for a search for a "cure"???
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253566 tn?1219679699
btw, whatever it is that I am, always felt 100% worse than before treatment and I was feeling amazing before treatment. Cycling the hills of San Francisco on a fixed gear bicycle, running the hills on a course of a world class marathon weekly, etc. Now I am happy if I can get out of bed for 5 hours at a time.

Glad for the "cure"!
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1798872 tn?1346164585
I had tx in 2001 with alpha 2a interferon and in 2010 with peg. both with riba.. I am now living with lupus sle and other autoimnune disorders.I feel like interferon i took in 2001 ia a death sentence .Make sure you keep a eye on your own bloodwork... Danny  good luck
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Avatar universal
Hallo,
I am nearly 1 year post and I have problems with my Thyroid. I take medications for it. I feel good and have no psychical problems. I have only  some days that I am wery tierd . And I have pain in the morning and difficulties with coming out the bed. The pain goes away in abouth an hour. I walk for kilometers and do sport such as swimming. After I am realy tierd and have to rest for hours.
I am not working any more. My concentration is bad and my short time memory too. I can stand any stress.
I feel so much beter in my head than in my body but I have hope that it wil get beter if I keep on training.
The relation with my husband is different than before the cure.
And...I can't stand people to long around me.
I changed.
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Avatar universal
post treatment 3 weeks, joint pain, chest pain (no heart problems), tired, cannot sleep at night, feet hurt real bad, dizziness, basiclly feel bad every day. Food taste good agian.
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Avatar universal
I treated in 2010, only lasted 16 weeks out of 24 due to tx being stopped. Still suffer depression, anxiety, joint and muscle pain, nerve problems yet to be diagnosed, memory problems, sleep problems, doubt il'l ever feel the same as before tx
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Avatar universal
       hey sober31,  wow!!!!!!  i have been on interferon for 7 of the last 12 years.  in the 90s it was the magic bullet for ms, liver disease, cancer in the blood(lymphoma, leukemia) and early stage tumors. i have ms and hep c. i have been bombarded with the stuff.  i haveshort term memory loss and mental issues that are embarrasing.      barry
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Avatar universal
Forgot to add tooth loss, osteopenia and fatigue   Deb
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3230925 tn?1397615965
7 months post treatment here and SVR,did 24 weeks on SOC.No more post tx sides so far,quality of life greatly improved.
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253566 tn?1219679699
Forgot the tooth loss also.

Felt horrible going to the dentist all the time. He did great work all the time then a tooth would suddenly fall out! I would feel miserable and it comes in waves... a new wave just started last year after about 3 years of nothing!
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Avatar universal
I hate going to the dentist now, I think my teeth are that brittle any work on them would result in the tooth needing to be removed !
Helpful - 0
2004810 tn?1365153611
I'm 7 months post tx and treated for 28 week with Victrelis (triple tx). It was my first tx and I'm now SVR. I'm first of all relieved that I'm finally cured from the virus and all the anxiety that comes with it. Having two small children and a family to take care of, this was a burden for me, to have the virus. I didn't notice any sides having the virus, but still I feel better post tx. Mostly because I feel I no longer have to be afraid of the consequences of having hcv.

I can still feel tired some days. Less energetic. But coffee keeps me going and I make sure to not put myself into too much stress. Having my children makes me forget about energy loss. I just have to go on. I think that helps me. I can't dwell on it, if you see what I mean.

I'm actually concidering to start studies from automn again. I am a bit afraid that maybe I will have problems with my memory. But I want to try. Keep my mind healthy. Learn new things. I'm getting 40 next month..and both treatment and now deciding to study feels great. Life has changed. I appreciate things more. I want to make more out of life than just do what I've allways done. Change my career. Work with people, social work (don't know the word in English).

So, all in all, I feel better than before treatment. I sleep like a baby, and allways has, except when I treated, I didn't sleep well. My hgb was low through tx and I had several blood transfusions (more than I can count..). It went up to normal level quickly. I'm not as energetic as before, I got older in many ways. But it's ok concidering that the alternative for me, not to treat, would have been worse.

Good luck everybody! Keep your minds busy, be positive. Life is short. Make the best out of it.
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Avatar universal
LOL - First I would like to say, Does anyone actually believe a drug manufacturer is going to admit to long term damage? $$$ NOT $$$
I was a guinea pig from 1996 to 2000 (4 years on Interferon with Ribavirin added to the final year)  First of all I was never given psychiatric care during treatment and NEVER responded to the treatment. Today, if you are not responding within a short period you are taken off it. You are also required to see a psychiatrist for the side effects of the depression Interferon creates.The first year was gruesome which ended up with needing to only work part time. The 2nd year I was totally disabled. Toward the end of the 4th year - I ended up in total psychosis from being depressed for so long. Got arrested for sending psychotic faxes to a news station. (long story after that day) it's 2013 and I am still totally disabled) I still have the active virus but I now have schizophrenia and severe clinical depression. The entire country of workers who pay into Social Security is paying for the ignorant Doctors and the -- look the other way drug companies for me being disabled. I will never recover. Today , I don't go to the Doctor unless I actually feel I might be dying. STAY AWAY !!!

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Avatar universal
   Hmmm, I had joint pain for a few months post Tx, and my hips would pop out of joint, when I stood from sitting in a low position, but at 7 months post Tx, and I have achieved SVR, I am feeling fine again, no more joint pain.
   I began doing stenghtening exercises, for my body...a Fitness Ball, and a new bike, and my usual ton of house-work, for family of four.
  My depression is worse though, and my temper is explosive again. I had managed to tone that part of mypersonality down, after years of suppport groups, and self help books, but now I have regressed a bit, mentally
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Avatar universal
WITH PRETTY GOOD HEALTH EXCEPT FOR ARTHRITIC ANKLES, A ****** JOB WAITING TABLES,****** MARRIAGE AND ****** KIDS-SHOULD I EVEN DO TREATMENT?1st GI said not to do treatment IF you have depression issues.the more and more i read i am coming to the conclusion i need to wait til better treatment is available-i dont have an appt. with the next idiot doctor til 22nd of this month but i dont want more problems than i have.i am 1a for 20 years any thoughts?
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