I always ate extremely healthily and walked miles every day even most of the way through treatment.3months post treatment I started to deteriorate into post viral fatigue syndrome (which turned out to be eventually diagnosed as Post Interferon Syndrome.I cut gluten and dairy from my diet in the hope it would relieve some symptoms but I have only seen mild improvements..I became alcohol intolerant so you can't blame that either and I'm not overweight and I don't have high blood pressure,diabetes or thyroid problems and by the way am well past menopause. Medications affect people in different ways,my consultant said 4% of his patients were left in a similar state.
I totally understand what Frank is going through,some of our lives have been badly affected.
the treatment ruined his life and not just hep c. and that is really rude of you to say. and if I could get up and exercise ( still hurting all over and nauseated) I have changed my diet but not really much response yet as I throw up almost everything.
nope since they have come out you still have to have a different genotype than mine 1a. nothing is better. same **** different day. and I am still just as sick as I was before treatment other than some of the liver spots have faded. I am so tired all the time,.
I am newly off the new treatment with interferon, ribavirin, and Sovaldi. no I never ever required to see a psychiatrist. In fact, they sent me to a nurse practitioner that treated me like the junkie they seem to all think we are. I also had a blood transfusion. I will now not be so honest. I saw her 4 times. 2 times before tx and 2 times after. I actually had to look up on the internet to find out that I still had the virus. I went from week 3 to week 8 with no calls, no help and if I tried explain the rage, noone cared. they did let me continue at that clinic but the doctor (although competent) did not get involved until the last month. they fired the lady but the damage is done. I am still sick and I still have cirrhosis. I am still dying. my kids tell me i am just being dramatic, I want to run them off when they act like they know something about being sick. and I am sick of being treated like a leper from most all healthcare professionals. I lost my job because I missed too many days, even though I got my diagnosis while working there. I did not want it anyway because they do not have disability coverage, I needed to work from home (others do) and I would have been perfectly fine working during treatment. but what it really comes down to it, they were trying to not insure me so they would not have to pay. so no it is not better. people still think we are horrible people and we are still getting sick and dying.
6 years post tx and achieved svr but now have P.I.S. pain all over,fibromyalgia,chronic fatigue,depression,insomnia,neuropathic pain,reynaud's,sicca syndrome,tinnitus,blurred vision,no short term memory or concentration.live on sofa,don't do people and can't cope with any stress even tiny stuff,not safe at times.I am not the same person.
Hi I was treated in Jan 2012 did 24 weeks finished last June 2012 UND. I was UND at week 4 . Thank God. I went back end July 2012 and UND then had a 6 mo. check up in Dec. 2012. EOT annd was still UND so I go back in June 2013 . This will be end of 1 year after I finished treatment. Praying that am still UND.
So far no lasting side that I have noticed. I had arthritus before treatment and still have that, I was on Peg and Rib. . The treatment was very hard but most have had it harder than I have. I am so thankfulfor a good Dr and medicine that worked . Hoping you feel better and things improve. Lot of people here are so nice to help and very educated about this desease. God bless you and keep the faith .
bbj