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747988 tn?1396536878

sickness in the acute stage+the relationship with post tx issues

I was reading an interesting article on an ME/CFS website saying that the sicker you are during acute stage of infection directly correlates to development of Post Viral Fatigue Syndrome.I was very sick during the acute stage of hcv and developed PVFS symptoms after successful treatment with interferon/riba. How sick were you in the acute stage and did you go on to suffer post treatment persistant fatigue or PVFS?
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317787 tn?1473358451
Like Frank I am glad that studies are being done.  I did not get sick when I was first exposed to HCV.  Since I think I got it with a gama blobulin shot to increase my immune system that may have had something to do with it.
CoWriter, a member on here, has an article about the gama globulin shot hiding the initial illness of HCV.
I wonder if that is what happened to me.  I had a doctor tell me that he felt that the sicker people got during initial infection, the greater the chance of their HCV being killed by the body.
I don't know if that is true since I know people who were initially sick, went on to think they were ok only to find out decades later that they were still infected. I have hope, that some day someone will figure out what the interferon did to us.
Except for fatigue and cyroglobulinemia I felt much better before I treated.  It has taken me years to recover from the Incivek or maybe I have just gotten used to feeling bad.
I still have hope 3 years later that things will improve.  Hope I'm not wrong :)
Thank you, Dee
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Avatar universal

Wow you pretty much hit everything on the nail to how I feel. I went out with hubby for him to do Karaoke all I did was sit there and it takes days for me to recoup from it. My house looks like a bomb went off cause I'm so far behind by time I do one part and then try to do another the part I did is dirty its like a no win situation for me. Unfortunatly hubby can't do much either he has stage 3 copd and emphesyma . I made an appointment with my Doctor goin to make sure everything is checked out. I personally think its my thyroid but I guess I will found out.. I was kinda disappointed thought after I went thru tx I would feel much better, but really haven't seen any improvement. Granted its only been 3 months since I took my last med April 20th. Sometimes I actually think I feel worse now. Sigh.
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747988 tn?1396536878
I was very sick for over a year with acute hcv,went yellow and down to 7stone-couldn' hold food down for months,lived on ice lollies.
I do very little every day now as I always suffer from post exertional malaise if I step outside my energy allowance so am very careful nowadays-I hate spending weeks asleep just to pay for doing some housework! I haven't been out socially for years,it wipes me out.I visit my family twice a year for an overnighter and then come home to recover for 3 or 4 days.This is one crazy illness! My glands are always swollen in my throat,I have a heat intolerance that makes me feel much worse if I get too warm or too cold (i.e. the outside temp is 23degrees Celsius or above I sleep),I hurt all over,my limbs feel as if I'm moving through treacle,never mind my mashed up brain! I feel as if there is a couple of tangled balls of wool in there that my thoughts are attached to and I can't find the end! I can't stay asleep or I sleep for days,
I have new allergies,IBS,fibromyalgia,perpheral neuropathies and sicca syndrome.And the fatigue is overwhelming.The worst jet lag and forever.

Very glad you managed the clean up ok though,well done! We just had a Raeburn fitted by a very competent plumber,good tradesmen are still out there but need hunting down!
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253566 tn?1219679699
I am glad that studies are being done.

In my case I was extremely healthy. When my HepC was discovered I was cycling the hills of San Francisco on a single geared bicycle at the age of 40 keeping up with 20somethings.

During the 72 weeks of INF/riba I was sick as a dog, got worse for many months after the "cure" but kept up my daily exercise routine.

I forget when the CFS really hit so bad that I couldn't continue and disabled me! causing me to give up my routine... I still get out or go around and do what I can daily but do not have a routine...

OT: Update on the home clean-up! I am doing great but I think the work one finds these days is scary. Many people take no responsibility for what they do! It seems that workers a while ago were considered craftsmen but today the are only in it for a paycheck.

... maybe not so OT...
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747988 tn?1396536878
you are 200 times more likely to develop post viral fatigue syndrome/cfs if you were very ill during the acute phase of the virus.
http://www.metrust.org.uk/2014/09/29/the-uk-cfsme-research-collaborative-cmrc-conference-reports-september-2014/
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