Like Frank I am glad that studies are being done. I did not get sick when I was first exposed to HCV. Since I think I got it with a gama blobulin shot to increase my immune system that may have had something to do with it.
CoWriter, a member on here, has an article about the gama globulin shot hiding the initial illness of HCV.
I wonder if that is what happened to me. I had a doctor tell me that he felt that the sicker people got during initial infection, the greater the chance of their HCV being killed by the body.
I don't know if that is true since I know people who were initially sick, went on to think they were ok only to find out decades later that they were still infected. I have hope, that some day someone will figure out what the interferon did to us.
Except for fatigue and cyroglobulinemia I felt much better before I treated. It has taken me years to recover from the Incivek or maybe I have just gotten used to feeling bad.
I still have hope 3 years later that things will improve. Hope I'm not wrong :)
Thank you, Dee
Wow you pretty much hit everything on the nail to how I feel. I went out with hubby for him to do Karaoke all I did was sit there and it takes days for me to recoup from it. My house looks like a bomb went off cause I'm so far behind by time I do one part and then try to do another the part I did is dirty its like a no win situation for me. Unfortunatly hubby can't do much either he has stage 3 copd and emphesyma . I made an appointment with my Doctor goin to make sure everything is checked out. I personally think its my thyroid but I guess I will found out.. I was kinda disappointed thought after I went thru tx I would feel much better, but really haven't seen any improvement. Granted its only been 3 months since I took my last med April 20th. Sometimes I actually think I feel worse now. Sigh.
I was very sick for over a year with acute hcv,went yellow and down to 7stone-couldn' hold food down for months,lived on ice lollies.
I do very little every day now as I always suffer from post exertional malaise if I step outside my energy allowance so am very careful nowadays-I hate spending weeks asleep just to pay for doing some housework! I haven't been out socially for years,it wipes me out.I visit my family twice a year for an overnighter and then come home to recover for 3 or 4 days.This is one crazy illness! My glands are always swollen in my throat,I have a heat intolerance that makes me feel much worse if I get too warm or too cold (i.e. the outside temp is 23degrees Celsius or above I sleep),I hurt all over,my limbs feel as if I'm moving through treacle,never mind my mashed up brain! I feel as if there is a couple of tangled balls of wool in there that my thoughts are attached to and I can't find the end! I can't stay asleep or I sleep for days,
I have new allergies,IBS,fibromyalgia,perpheral neuropathies and sicca syndrome.And the fatigue is overwhelming.The worst jet lag and forever.
Very glad you managed the clean up ok though,well done! We just had a Raeburn fitted by a very competent plumber,good tradesmen are still out there but need hunting down!
I am glad that studies are being done.
In my case I was extremely healthy. When my HepC was discovered I was cycling the hills of San Francisco on a single geared bicycle at the age of 40 keeping up with 20somethings.
During the 72 weeks of INF/riba I was sick as a dog, got worse for many months after the "cure" but kept up my daily exercise routine.
I forget when the CFS really hit so bad that I couldn't continue and disabled me! causing me to give up my routine... I still get out or go around and do what I can daily but do not have a routine...
OT: Update on the home clean-up! I am doing great but I think the work one finds these days is scary. Many people take no responsibility for what they do! It seems that workers a while ago were considered craftsmen but today the are only in it for a paycheck.
... maybe not so OT...
you are 200 times more likely to develop post viral fatigue syndrome/cfs if you were very ill during the acute phase of the virus.
http://www.metrust.org.uk/2014/09/29/the-uk-cfsme-research-collaborative-cmrc-conference-reports-september-2014/