72 week club - Updated

[zazza]

Updated list of Extenders: Tx completion date: results
(please copy and repaste-add/update any added info on the list)

SVR:
Cuteus - 11/15/04 --- cleared --- svr
DoubleDose - 10/04/03----cleared--svr
Kalio1 - geno 3 - 08/24/07----cleared---svr
Lonestar823 - 8/8/06 --- did 73 weeks --- cleared ---svr
mikesimon - 15/06/04 ---cleared---svr
MustangShelly - 08/01/07 ---cleared -svr
nygirl7 - 2/08/07 --cleared---svr
sldb (98 weeks) ----cleared ---svr
Tallahassee (98+ weeks of daily high dose Infergen + riba) --- cleared --- svr

Relapse:
Bill1028 - 7/07/07 - Relapsed - did 72 weeks + 4 week dose reduction
bobk --------------relapsed
BThompson4 --- relapsed
Can-do-man - 07/20/07 --- relapsed - did 72+ weeks
Sincebirth - 6/09/07 --Relapsed
St. George - 9/07/07 --- relapsed

Result not known:
Jaroman  - 10/06/06
layla - 7/14/04 --- 71 weeks --- UND 3 months post
Randalee - 3/01/07
Valtod - 8/27/07

Still treating..........update when completed please:
Bill1954 - 51 of 72
cruelworld - 37 of 72
drofi - 34 of 72
FloridaMouse - 6 of 72
NYCMark - 66 of 72
Proactive - 45 of 72
Wyntre9  - 37 of 72
zazza - 63 of 72 - will be done 03/26/08

[wyntre9]

Thanks for this, zazza!

A couple of minor updates;  I'm at week 58.  So is Cruel World.

I believe NYCMark has finished TX but still hasn't done his 6 month PCR.

Proactive is at week 62 or so.

And I think Bill1954 is either finished or very close to the 72 week mark.

I haven't seen Drofi post in a while and I know Mouse is retreating and I assume she's further along than week 6.

Hugs,

Wyntre

[wyntre9]

just realized you wanted me to copy and repaste - will do so later.  Right now i'm thoroughly distracted by the American election process.  *LOL*

wyn

[zazza]

Updated list of Extenders: Tx completion date: results
(please copy and repaste-add/update any added info on the list)

SVR:
Cuteus - 11/15/04 --- cleared --- svr
DoubleDose - 10/04/03 --- cleared --- svr
Kalio1 - geno 3 - 08/24/07 --- cleared --- svr
Lonestar823 - 8/8/06 --- did 73 weeks --- cleared --- svr
mikesimon - 15/06/04 --- cleared --- svr
MustangShelly - 08/01/07 --- cleared --- svr
nygirl7 - 2/08/07 --- cleared --- svr
sldb (98 weeks) --- cleared --- svr
Tallahassee - 98+ weeks of daily high dose Infergen + riba --- cleared --- svr

Relapse:
Bill1028 - 7/07/07 --- relapsed --- did 72 weeks + 4 week dose reduction
BJ1fish - March 06 --- relapsed --- did 72 weeks of infergen and riba
bobk --- relapsed
BThompson4 --- relapsed
Can-do-man - 07/20/07 --- relapsed --- did 72+ weeks
Sincebirth - 6/09/07 --- relapsed
St. George - 9/07/07 --- relapsed


Result not known:
Jaroman  - 10/06/06
layla - 7/14/04 --- 71 weeks --- UND 3 months post
Randalee - 3/01/07
Valtod - 8/27/07

Still treating (as of Jan 08)..........update when completed please:
Bill1954 - 71 of 72
cruelworld - 57 of 72
drofi - 54 of 72
FloridaMouse - 6 of 72 (relapsed first 48 week tx)
NYCMark - finished, waiting for 3 months post PCR
Proactive - 65 of 72
Wyntre9  - 58 of 72
zazza - 63 of 72 - will be done 03/26/08

[NYCMark]

I finished after72 weeks, and am awaiting the results of 3 month post treatment blood tests.... will report back.

mark

[sfwandwow]

iam in tx now

[mom213]

24wk Prove 3 : did all three drugs still UND @ post 12wks. MOM213

[kcrandy]

finished tx 12-10-07, 56 weeks
und from 12th week to 56th week
march 10th will be 3 mth test will let all know results.

thx zazza.  : O )

[Bill1954]

Hi Zazza,

I’m currently in week 71 of a scheduled 72 week treatment with 204µg  PEG-Intron and 2000 mg riba.

I meet with my Hepatologist tomorrow to review treatment, and see if he wants to further extend/ modify current treatment.

Best of luck to you in your current efforts,

Take care,

Bill

[Kalio1]

Hi Valtod and congratulations! I saw your shout out over there somewhere and wanted to see if I could log into the site with my new computer and it let me in. For some reason it didn't work before, they made changes or my computer did, something went goofy and I couldn't login.
Thanks for asking after me. I am doing great. I tapered down at 72 weeks ( after my first 24 week attempt failed) and have felt better each day since I finished tx. Doc says I did 96 weeks because there was only a 2 week span between the two treatments so I don't know if I make the 72 weeker's list!
I go for my 6 month check in Feb. but my 3 month was UND so I am feeling confident about it. I am so incredibly grateful every day that I beat that @$%&$% virus!
I continue to take my ALIVE religiously each day with my berries and live culture yogurt and soy milk plus I take PPC, Curcumin and Heptapro. I keep to a diet of fish, grains and veggies and try to be good and drink water and not eat belgian chocolate, my vice of choice.

I do try to stop in and see how everyone is doing but with having my ENERGY back, I am back to my life and busy picking up with my business where I left off when I was diagnosed.
How are you? I am thrilled each time I see someone SVR, and wish courage on all that are still fighting.
My CT scan showed cirrhosis and I relapsed BUT I beat it in the end so all the people who are fighting out there, stay positive, it can be done! I strongly believe in the importance of eating well,especially for those of us with cirrhosis. I think that has helped me to have not gained any weight since I stopped tx. Even my red palms are now pink instead of bright red like they were when I was sick.

Take care everyone!

[Proactive]

Thanks za!!! In the back of my mind I had hoped you would go through and update all this info---you are much better at this stuff than I...(I think the "back of my mind" has moved to the front and the front has moved to the back (lol)...I added the fact that Lonestar also did infergen..

Updated list of Extenders: Tx completion date: results
(please copy and repaste-add/update any added info on the list)

SVR:
Cuteus - 11/15/04 --- cleared --- svr
DoubleDose - 10/04/03 --- cleared --- svr
Kalio1 - geno 3 - 08/24/07 --- cleared --- svr  
mikesimon - 15/06/04 --- cleared --- svr
MustangShelly - 08/01/07 --- cleared --- svr
nygirl7 - 2/08/07 --- cleared --- svr
sldb (98 weeks) --- cleared --- svr

Tallahassee - 98+ weeks of daily high dose Infergen + riba - cleared -svr
Lonestar823 - 8/8/06 - did 73 weeks - cleared - svr (Infergen + riba)

Relapse:
Bill1028 - 7/07/07 --- relapsed --- did 72 weeks + 4 week dose reduction
BJ1fish - March 06 --- relapsed --- did 72 weeks of infergen and riba
bobk --- relapsed
BThompson4 --- relapsed
Can-do-man - 07/20/07 --- relapsed --- did 72+ weeks
Sincebirth - 6/09/07 --- relapsed
St. George - 9/07/07 --- relapsed


Result not known:
Jaroman  - 10/06/06
layla - 7/14/04 --- 71 weeks --- UND 3 months post
Randalee - 3/01/07
Valtod - 8/27/07

Still treating (as of Jan 08)..........update when completed please:
Bill1954 - 71 of 72
cruelworld - 57 of 72
drofi - 54 of 72
FloridaMouse - 6 of 72 (relapsed first 48 week tx)
NYCMark - finished, waiting for 3 months post PCR
Proactive - 65 of 72
Wyntre9  - 58 of 72
zazza - 63 of 72 - will be done 03/26/08

[cruelworld]

good to see all the hard core warriors out showing their stripes, ribbons and
medals. yall may have to exclude me from the club as i am quitting full dose
at 60  (in just a few weeks) and tapering off to 72. i hope it still does the trick.
zazza and pro, yall were so far ahead of me and wyn, i got jealous and decided to catch
up by cheating!  glad to see you honorable record keepers of the fraternity
keeping us up to speed. great work!

[nygirl7]

You know what people need to fully realize is that our "chance" of getting to SVR was VERY LOW - that is what makes it a full on miracle that we did the 72 and are clear.

It's not just as if you do the 48 weeks, hitting UND on week 4 and are one of the 50%.

We were not supposed to really make it - but we did.  

THAT is the point of the 72 you know? And people need to remember that.

[mikesimon]

mikesimon - 06/27/04 --- cleared --- svr

[frijole]

Great thread.

Zazza - i have March 26 markded on my calendar!  You are sooooo very close -- finally.  It has sure been a long haul.

And Bill 1954 -- a week or so to go?  Wow.  What did the heppo say?  Extend or end?

just sign me a 72 wannabe
frijole

[Bill1954]

Kathy; just got back from the hepatologist's. In short, he agreed to extend treatment at my current dosage for a total of two years, unless I cry uncle first. This puts my current assigned treatment position at week 71/104, concluding 9/14/08. This was based on a number of factors; none of which are solidly supported by reasearch :o).

Lessons... be careful what we wish for, LOL!!

So....
~~~~~~~~~~~~~

Updated list of Extenders: Tx completion date: results
(please copy and repaste-add/update any added info on the list)

SVR:
Cuteus - 11/15/04 --- cleared --- svr
DoubleDose - 10/04/03 --- cleared --- svr
Kalio1 - geno 3 - 08/24/07 --- cleared --- svr  
mikesimon - 15/06/04 --- cleared --- svr
MustangShelly - 08/01/07 --- cleared --- svr
nygirl7 - 2/08/07 --- cleared --- svr
sldb (98 weeks) --- cleared --- svr

Tallahassee - 98+ weeks of daily high dose Infergen + riba - cleared -svr
Lonestar823 - 8/8/06 - did 73 weeks - cleared - svr (Infergen + riba)

Relapse:
Bill1028 - 7/07/07 --- relapsed --- did 72 weeks + 4 week dose reduction
BJ1fish - March 06 --- relapsed --- did 72 weeks of infergen and riba
bobk --- relapsed
BThompson4 --- relapsed
Can-do-man - 07/20/07 --- relapsed --- did 72+ weeks
Sincebirth - 6/09/07 --- relapsed
St. George - 9/07/07 --- relapsed


Result not known:
Jaroman  - 10/06/06
layla - 7/14/04 --- 71 weeks --- UND 3 months post
Randalee - 3/01/07
Valtod - 8/27/07

Still treating (as of Jan 08)..........update when completed please:
Bill1954 - 71 of 104
cruelworld - 57 of 72
drofi - 54 of 72
FloridaMouse - 6 of 72 (relapsed first 48 week tx)
NYCMark - finished, waiting for 3 months post PCR
Proactive - 65 of 72
Wyntre9  - 58 of 72
zazza - 63 of 72 - will be done 03/26/08

[anwaar]

Those in this persevering club are totally AMAZING...
Very sad reading 'relapsed'.  What happens?  Recuperate and do it again even longer?  I'm sorry, I don't know how to ask it in a more sensitive way.  I don't like these odds.  There are serious fighters here.  I'm in awe.  

[zazza]

Updated list of Extenders: Tx completion date: results
(please copy and repaste - add/update any added info on the list)

SVR:
Cuteus - 11/15/04 --- cleared --- svr
DoubleDose - 10/04/03 --- cleared --- svr
Kalio1 - geno 3 - 08/24/07 --- cleared --- svr  
mikesimon - 6/27/04 --- cleared --- svr
MustangShelly - 08/01/07 --- cleared --- svr
nygirl7 - 2/08/07 --- cleared --- svr
sldb - did 98 weeks --- cleared --- svr

Lonestar823 - 8/8/06 - did 73 weeks of Infergen + riba --- cleared --- svr
Tallahassee - 98+ weeks of daily high dose Infergen + riba --- cleared --- svr  


Relapse:
Bill1028 - 7/07/07 --- relapsed --- did 72 weeks + 4 week dose reduction
bobk --- relapsed
BThompson4 --- relapsed
Can-do-man - 07/20/07 --- relapsed --- did 72+ weeks
Sincebirth - 6/09/07 --- relapsed
St. George - 9/07/07 --- relapsed

BJ1fish - March 06 --- relapsed --- did 72 weeks of Infergen and riba


Result not known:
Jaroman  - 10/06/06
layla - 7/14/04 --- 71 weeks --- UND 3 months post
Randalee - 3/01/07
Valtod - 8/27/07

Still treating (as of Jan 08)..........update when completed please:
Bill1954 - 71 of 104
cruelworld - 57 of 72 (tapering of from week 61)
drofi - 54 of 72
FloridaMouse - 6 of 72 (relapsed first 48 week tx)
NYCMark - finished, waiting for 3 months post PCR
Proactive - 65 of 72
Wyntre9  - 57 of 72
zazza - 63 of 72 - will be done 03/26/08


Honor member:
frijole - Aug 2006 - did 56 weeks - relapsed --- 72 week wannabe and faithful supporter

[wyntre9]

OMG, Bill, I am so sorry you are going to have to treat for another 33 weeks!

I know i could not handle it.  All my best to you.  You have a fantastic attitude.

wyntre

[sldb]

i txd 96 wks. its tough but worth it . Let us know how you are doing and if i can offer any advice with prolonged tx just post.  godd luck and just remember ther is an end.

[IAmTheWalrus]

Updated list of Extenders: Tx completion date: results
(please copy and repaste - add/update any added info on the list)

SVR:
Cuteus - 11/15/04 --- cleared --- svr
DoubleDose - 10/04/03 --- cleared --- svr
Kalio1 - geno 3 - 08/24/07 --- cleared --- svr  
mikesimon - 6/27/04 --- cleared --- svr
MustangShelly - 08/01/07 --- cleared --- svr
nygirl7 - 2/08/07 --- cleared --- svr
sldb - did 98 weeks --- cleared --- svr

Lonestar823 - 8/8/06 - did 73 weeks of Infergen + riba --- cleared --- svr
Tallahassee - 98+ weeks of daily high dose Infergen + riba --- cleared --- svr  


Relapse:
Bill1028 - 7/07/07 --- relapsed --- did 72 weeks + 4 week dose reduction
bobk --- relapsed
BThompson4 --- relapsed
Can-do-man - 07/20/07 --- relapsed --- did 72+ weeks
Sincebirth - 6/09/07 --- relapsed
St. George - 9/07/07 --- relapsed

BJ1fish - March 06 --- relapsed --- did 72 weeks of Infergen and riba


Result not known:
Jaroman  - 10/06/06
layla - 7/14/04 --- 71 weeks --- UND 3 months post
Randalee - 3/01/07
Valtod - 8/27/07

Still treating (as of Jan 08)..........update when completed please:
Bill1954 - 71 of 104
cruelworld - 57 of 72 (tapering of from week 61)
drofi - 54 of 72
FloridaMouse - 6 of 72 (relapsed first 48 week tx)
NYCMark - finished, waiting for 3 months post PCR
Proactive - 65 of 72
Wyntre9  - 57 of 72
zazza - 63 of 72 - will be done 03/26/08
IAmTheWalrus - 28 of 72 - will be done Thanksgiving 2008


Honor member:
frijole - Aug 2006 - did 56 weeks - relapsed --- 72 week wannabe and faithful supporter

[zazza]

Updated list of Extenders: Tx completion date: results
(please copy and repaste - add/update any added info on the list)


SVR:
Cuteus - 11/15/04 --- cleared --- svr
doll face - Oct 04 --- cleared --- svr (1st tx 48 weeks - relapsed, 2nd tx 72 weeks - svr)
DoubleDose - 10/04/03 --- cleared --- svr
Kalio1 - geno 3 - 08/24/07 --- cleared --- svr
layla - 7/14/04 --- 71 weeks --- cleared --- svr
mikesimon - 6/27/04 --- cleared --- svr
MustangShelly - 08/01/07 --- cleared --- svr
nygirl7 - 2/08/07 --- cleared --- svr
sldb - Sep 06 --- did 96 weeks --- cleared --- svr     OBS!

Lonestar823 - 8/8/06 - did 73 weeks of Infergen + riba --- cleared --- svr
Tallahassee - 98+ weeks of daily high dose Infergen + riba --- cleared --- svr  


Relapse:
Bill1028 - 7/07/07 --- relapsed --- did 72 weeks + 4 week dose reduction
bobk --- relapsed
BThompson4 --- relapsed
Can-do-man - 07/20/07 --- relapsed --- did 72+ weeks
Jaroman  - 10/06/06 --- relapsed --- partial responder, not UND until after week 24
ral - Nov 04 --- relapsed
Sincebirth - 6/09/07 --- relapsed
St. George - 9/07/07 --- relapsed

BJ1fish - March 06 --- relapsed --- did 72 weeks of Infergen and riba


Result not known:

Randalee – Feb 07
Valtod - 8/27/07


Still treating (as of Feb 08)..........update when completed please:
Bill1954 - 75 of 104
cruelworld - 61 of 72 (tapering of from week 61)
drofi - 58 of 72
FloridaMouse - 10 of 72 (relapsed first 48 week tx)
IAmTheWalrus - 32 of 72 - will be done Thanksgiving 2008
NYCMark - finished, waiting for 3 months post PCR (detected with low viral load, will retest)  
Proactive - 69 of 72
spcecst2 – (doubledosed first 4 weeks, then did shot every five days thru week 12)
Wyntre9  - 61 of 72
zazza - 67 of 72 - will be done 3/26/08    OBS!!!


Honor member:
frijole - Aug 2006 - did 56 weeks - relapsed --- 72 week wannabe and faithful supporter

[frijole]

Hey, Zazza and all, thanks for the tagalong here.  72 weeks is the tested way.  56 is not tested just a number reaped from analyzed data.  For anyone considering extending don't bother with the 36 clear weeks theory!
frijole

[nygirl7]

As an Extender...I too consider Frijole an honor member!

:)

[zazza]

Updated list of Extenders: Tx completion date: results
(please copy and repaste - add/update any added info on the list)


SVR:
Cuteus - 11/15/04 --- cleared --- svr
doll face - Oct 04 --- cleared --- svr (1st tx 48 weeks - relapsed, 2nd tx 72 weeks - svr)
DoubleDose - 10/04/03 --- cleared --- svr
Kalio1 - geno 3 - 08/24/07 --- cleared --- svr
layla - 7/14/04 --- 71 weeks --- cleared --- svr
mikesimon - 6/27/04 --- cleared --- svr
MustangShelly - 08/01/07 --- cleared --- svr
nygirl7 - 2/08/07 --- cleared --- svr
sldb - Sep 06 --- did 96 weeks --- cleared --- svr

Lonestar823 - 8/8/06 - did 73 weeks of Infergen + riba --- cleared --- svr
Tallahassee - 98+ weeks of daily high dose Infergen + riba --- cleared --- svr  


Relapse:
Bill1028 - 7/07/07 --- relapsed --- did 72 weeks + 4 week dose reduction
bobk --- relapsed
BThompson4 --- relapsed
Can-do-man - 07/20/07 --- relapsed --- did 72+ weeks
Jaroman  - 10/06/06 --- relapsed --- partial responder, not UND until after week 24
ral - Nov 04 --- relapsed
Sincebirth - 6/09/07 --- relapsed
St. George - 9/07/07 --- relapsed

BJ1fish - March 06 --- relapsed --- did 72 weeks of Infergen and riba


Result not known:

Randalee – Feb 07
Valtod - 8/27/07


Still treating (as of Feb 08)..........update when completed please:
Bill1954 - 75 of 104
cruelworld - 61 of 72 (tapering of from week 61)
drofi - 58 of 72
FloridaMouse - 10 of 72 (relapsed first 48 week tx)
IAmTheWalrus - 32 of 72 - will be done Thanksgiving 2008
NYCMark - finished, waiting for 3 months post PCR (detected with low viral load, will retest)  
Proactive - 69 of 72 - will be done 3/12/08
spcecst2 - (doubledosed first 4 weeks, then did shot every five days thru week 12)
Wyntre9  - 61 of 72
zazza - 67 of 72 - will be done 3/26/08


Honor member:
frijole - Aug 2006 - did 56 weeks - relapsed --- 72 week wannabe and faithful supporter