Aa
Aa
A
A
A
Close
179856 tn?1333547362

Dont Ask a PCP a Question About HCV

As some of  you know I have been in the hospital since Monday. Long boring story. Anyways one of the problems was my system crashed my liver enzymes went up into the 100s, I was throwing up blood, my electolytes went nuts etc etc.


Anyhow this morning i asked again, the PCP on my case why did my LFTs go up so high I have been SVR for over 4 years and they have never been higher than 20/25.  She told me that my hepatitis came back and it was active. I said no I had my blood work last month and they were right in the 20s I have been cured over 4 years and UND for 6.  She had the nerve to tell me that our hep comes and goes that we are never cuired because it is always acrtive and so our enzymes will always go up and down.

Now, this was at 6am.  I haven't eaten in 5 days. They wake you up every two hours. I lost it I just said Doctor you obviously dont know what you are talking about so please leave my room because I'm not about to argue with you and your old out of date education.

She snarked at me in her Indian accent which I can't copy here and was like humph.................good this is why we have such bad reputations.  Why would we bother to treat if we had lfts in the 100s all the times out of the blue our hep would just come and go like she told me.

Oh I am MAD. I am outta here discharging now.  

Sorry I had to vent at the ignorance. I'm just so tired and so MAD.
66 Responses
Sort by: Helpful Oldest Newest
163305 tn?1333668571
Like everyone else, I want to say I'm sorry you're feeling ill.

Having had weird hospital experiences, especially while in Taiwan where they gave me meds which should never, ever, be given together, I empathize. My husband kept printing stuff out from the internet and they still ignored it.

We do have to remain vigilant with our health care. It's our bodies, not the doctor or nurses. And obviously, just because one has a degree doesn't mean they are intelligent.

An Indian man once told me, in response to my questions, that Asian people do not like to say, " I don't know." Add that to the ego of many doctors and you have a terrible combination.
Helpful - 0
80575 tn?1207132364
Hi Deb,

Just saw this and had to jump on the wagon wishing you the best.  

A couple of weeks ago I was flat on my back with fever, vomiting, diarrhea...either I caught a bad bug or my HepC came back after 3 years SVR (sarcasm).  I'm going with the flu.

Doctors can be some of the dumbest smart people.  From reading your post it's obvious that it pixxed you off.

Feeling better?  Say hi to Una.

Mike



Helpful - 0
1491755 tn?1333201362
Glad you're feeling better.  
Helpful - 0
317787 tn?1473358451
Dear Deb, so very sorry to hear you were so sick.  I am also sorry you had to deal with such an idiot for a doctor.  My husband was in the hospital at the same time as you with obstruction.  We were fortunate to get out when we did.  
My deepest sympathy, talk about adding insult to injury.
I hope you are feeling better.
D
Helpful - 0
979080 tn?1323433639
Thanks BRO , you just made my day :-)
Currenty waiting on new PCR....

b
wk59
Helpful - 0
901131 tn?1293744553
Your SVR Bro you just don't know it yet.
Helpful - 0
979080 tn?1323433639
Should I SVR I plan on waving a letter on Weil Cornell , Division of
of Gastroentereology and Hepatology  stationary signed by Dr. J
in front of anybody`s  face that might have a question......

b

Helpful - 0
179856 tn?1333547362
Hey that's a pretty good darn idea.  I do plan on using Dr. J in my letter - if these hick PCPs don't know that name then I give up.........although judging by all that went on I am not sure what they know any longer. I'm going next week and will find out.

It's just so stupid I mean if hepc comes and goes even after SVR what in the world would all be treating for? Duh.
Helpful - 0
979080 tn?1323433639
In the waiting area during one of my Dr. Jacobson appointments there was a big
sign stating that Hep C is curable.
I asked him about that and if in the event of SVR if I could get that in writing .
Now I am not SVR yet but you are and you were treated by Dr. J
Why don`t you get it in writing ?
Helpful - 0
Avatar universal
Sorry to hear about the trouble that you're having with that stupid doctor.  I once had a nurse tell me that there was no cure for hep c.  I hope you feel better soon.

Vik
Helpful - 0
1253246 tn?1332073310
Hope you get your ordeal straightened out and good luck with your letters.Gosh if hep c is that easy to treat-Im coming to see that doc  LOL !!!!!take care cindy
Helpful - 0
Avatar universal
World if full of ignorant people and we cannot avoid them and they do us harm.

The most important thing, Deb, is that you are SVR for many years!
Enjoy life of a hep free person who, yes, sometimes can get sick!

Take good care.
Helpful - 0
92903 tn?1309904711
"Deb, I'm wondering if there is something going on in another body area"

I've been wondering that for a while myself!

Get Well Soon!!
Helpful - 0
Avatar universal
glad you made it out alive.  hospitals can be verrrry dangerous places.  i wonder how the doc figured she treated you for hcv? there are some scary docs out there for sure.
love
eric
Helpful - 0
1658980 tn?1330711550
My doctor told me today that pcps are prescribing telepravir on it's ow without SOC because they are so ignorant of the disease and treatment.  Vertex is sending reps out to train them. It is so important that we take responsibility for our own health care. Hope that you are feeling better.
Helpful - 0
Avatar universal


   O O
\_____/

Griz,

ooops!
Helpful - 0
1669790 tn?1333662595
The most important thing is you're back and taking no prisoners.  lol.  Good to hear you are back with us.
Helpful - 0
Avatar universal
I have had the exact same thing happen including cr_p written on the release form. I hope everything works out for you, but I have never had a Dr. stick-up for me or even look into a situation, no matter how obviously wrong it was,( it seems to be a code of ethics.) which is why I always do it myself just to make me feel better, or try to get over it fast if I feel there is nothing I can do.
This is a classic example of a little knowledge being a dangerous thing.

I'm glad you're away from there, I'm sure things will look brighter soon, I,m sure you know what to do, wait a week to get over it then take off early one day, go buy a new outfit then go home and take a warm bubble-bath        O O       before going out.
                                                              \____/

Wellcome back,

Griz
Helpful - 0
Avatar universal
oh crap! that stinks that she wrote that on your discharge papers, thats really great!!!!
I would put that in my letter as well. Hope you see your real Doc soon and this gets fixed. Glad you are feeling better though and back at work.!
Helpful - 0
179856 tn?1333547362
I'm back at work today (in my new lesser capacity position but much much less stress) so I guess I will be OK.

I wanted to thank everybody for their thoughts I do believe they helped me get better.

Tomorrow when I am more organized I am starting my letter to the practice that that doctor is at and the state of CT. YOu know on my discharge papers she wrote in addition to the other stuff that she treated me for hepc.  Yup. Now that is on my medical records like I actually have it!  And in my insurance too.  Grreat what an igorant person can do to you.......my real doctor better take care of this!
Helpful - 0
Avatar universal
remember lab rat survival rule no. 3 : never  let the  health care system stop you from getting well. Hope the witch Dr. flew away on her broom and you're feeling better.
Helpful - 0
412873 tn?1329174455
I'm so sorry to read this post. I hope you are feeling better and have gotten to the bottom of whatever the heck is going on.  Good for you for giving that dumb@$$ doc the "whatfor"!!  There's only about a million other reasons our LFTs can be elevated.  Such ignorance!!!!  I say we flood her ofice with educational phone calls and letters regarding the facts of HCV =)

(((hugs)))
Isobella
Helpful - 0
Avatar universal
Hi ya sweetie, hope your doing better. Why you not call Dr. Bush??? You know he would order all the right tests. i'm sure he has just the right rx.

love ya,
Seymour
Helpful - 0
1710974 tn?1308253790
I hope you are feeling better.
Cheryl
Helpful - 0
Have an Answer?

You are reading content posted in the Hepatitis C Community

Top Hepatitis Answerers
317787 tn?1473358451
DC
683231 tn?1467323017
Auburn, WA
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Answer a few simple questions about your Hep C treatment journey.

Those who qualify may receive up to $100 for their time.
Explore More In Our Hep C Learning Center
image description
Learn about this treatable virus.
image description
Getting tested for this viral infection.
image description
3 key steps to getting on treatment.
image description
4 steps to getting on therapy.
image description
What you need to know about Hep C drugs.
image description
How the drugs might affect you.
image description
These tips may up your chances of a cure.
Popular Resources
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.