Aa
Geno 1B. On Olysio & Sovaldi. Started 1/24
So far so good except really exhausted...
Anyone else just starting?
Anyone else just starting?
Best Answer
I will continue to pray for your healing. My husband will be taking the Sovaldi and Ribivarin, he also 1b with stage 4 cirrhosis. My concerns are that his platelets are in the 70's. and i work full time should i take some time off from work to be by his side? also is this the same treatment you are taking? I know that there is another drug called Olysio.
Great I am glad you are feeling stronger everyday
I am right behind you, 10 days to go :-))
I am right behind you, 10 days to go :-))
Hi hep c and me
I know what mean, everyone says they feel so good, well I don't, but I don't want to discourage any one from treatment
But I do feel sick, and very tired
I am 11 days away from finishing olysio and Sovaldi though and feel blessed to have taken it and am undetected
But you are not alone I feel same as you
Xo
I know what mean, everyone says they feel so good, well I don't, but I don't want to discourage any one from treatment
But I do feel sick, and very tired
I am 11 days away from finishing olysio and Sovaldi though and feel blessed to have taken it and am undetected
But you are not alone I feel same as you
Xo
I wish I could say that I felt as good today as the first week of treatment - I am on the 7th week of Sovaldi/Olysio regimen.
But I actually have felt pretty bad the last 2 weeks. Super fatigued, head aches, achy joints and muscles. It's like the flu without the fever and runny nose and coughing
Still, I'm more than 1/2 way through my treatment and I have heard some say that it gets better after the 7th week?
But I actually have felt pretty bad the last 2 weeks. Super fatigued, head aches, achy joints and muscles. It's like the flu without the fever and runny nose and coughing
Still, I'm more than 1/2 way through my treatment and I have heard some say that it gets better after the 7th week?
omg! i have such pain and fatigue..every muscle just hurts , every joint and fiber of my being.. glad you feel better yippeee!
i feel confident that if i get the dragon gone i will feel better! i read other posts that people had more energy and less pain after these new interferon treatments
hope to start sov/oly next week…
treatment naive
1a
TT
f 2 - 3
vl about 900,000 - 1,200,000
ast alt in the 40's
i am ok but have just diagnosed with ckd 3 ugh..waiting for biopsy report they say it may be the hcv causing the kidney problem,… ugh..glad that my new doctor found it…i want to know what happened to stage 1 and 2…the old docs dropped the ball on that and i am very mad.
onward to curing this and hope stopping any more kidney damage..
and i thought that i only had to worry about my liver..what the heck?
are the previous doc's quacks? like they never read any of my labs from 2008 till now.?
i feel confident that if i get the dragon gone i will feel better! i read other posts that people had more energy and less pain after these new interferon treatments
hope to start sov/oly next week…
treatment naive
1a
TT
f 2 - 3
vl about 900,000 - 1,200,000
ast alt in the 40's
i am ok but have just diagnosed with ckd 3 ugh..waiting for biopsy report they say it may be the hcv causing the kidney problem,… ugh..glad that my new doctor found it…i want to know what happened to stage 1 and 2…the old docs dropped the ball on that and i am very mad.
onward to curing this and hope stopping any more kidney damage..
and i thought that i only had to worry about my liver..what the heck?
are the previous doc's quacks? like they never read any of my labs from 2008 till now.?
Bloods are good, no Riba, just Sovaldi and olysio
But I have autoimmune disease, primary Bilary cirrhosis and hypothyroid , so I think it maybe that making it more pronounced, just saw at the top of the thread you first wrote you were tired as a side effect in the beginning so I wondered if that went away after you stopped treatment, I am hoping I will :-)
But I have autoimmune disease, primary Bilary cirrhosis and hypothyroid , so I think it maybe that making it more pronounced, just saw at the top of the thread you first wrote you were tired as a side effect in the beginning so I wondered if that went away after you stopped treatment, I am hoping I will :-)
I ended on Friday, so it is 4 days and I am feeling less tired. Maybe you need to have your blood cell count taken. Are you sure you are not anemic?
Hi Amye I will let you know bout the RA
Quick question
Are you still fatigues, and how long are you off treatment?
Cause I have 11 days left, and I am so so so tired in bed, hoping it goes away right after treatment over, but who knows, how about you?
Thanks :-))
Quick question
Are you still fatigues, and how long are you off treatment?
Cause I have 11 days left, and I am so so so tired in bed, hoping it goes away right after treatment over, but who knows, how about you?
Thanks :-))
Thank you Kim! So happy for you as well. I would love to know if your rheumatoid factor is now normal. Thank you. I hope it is normal for you!
I was told after I forget, 3 or 4 months after treatment ends and your virus is still undetected, you are cured!! I am having my 12 week bloods on May 1st. Amye
I was told after I forget, 3 or 4 months after treatment ends and your virus is still undetected, you are cured!! I am having my 12 week bloods on May 1st. Amye
OMG. That's great news. I also feel as tho I may have RA, but never been tested. Thought it was in my head that the RA felt better. Had no idea that treatment could affect that. Ayme many congrats with finishing treatment. It's been 2 weeks med free and feel better everyday. Amazing.....My hmg is slowly returning to normal. Keep us posted on your follow up care. I get blood draw May 5th, 4 weeks post treatment. Will let you know the outcome. Again, so very happy for you. Kim
Total misspelling spell check
I said I have RA too
And hopefully it will go away for me too!!!
I said I have RA too
And hopefully it will go away for me too!!!
Wow congratulations to you Amye !
I am 10 weeks Sovaldi olysio, also undetected, I am curious to see about the RA I also have it goes, that would be a great accede benignity!
I am 10 weeks Sovaldi olysio, also undetected, I am curious to see about the RA I also have it goes, that would be a great accede benignity!
I just finished 12 week treatment and not only is my Hep C undetectable, my Rheumatoid factor went from high to normal after 30 years! Also I don't feel fibromyalgia pain anymore. Amazing treatment! I am so grateful. Good luck to you all! Amye
I looked at your prior posts here
Jan 28, 2014 My husband will be taking the Sovaldi and Ribavirin, he also 1b with stage 4 cirrhosis.
Feb 23, 2014 My concerns are MELD score went from 11 to 14. He's on Sofosbuvir and ribavirin 600 mg. Dr. said his viral load went down to 271 to 150. but his bilirubin increased to 3.8.
How are those numbers doing now? "the virus was undetected after the 2nd week" so it went up after that? Usually it's less than 25 but could be different depending on the test used. My GT2 12wk same meds are considered undetected under 25 during tx.
What is his latest MELD score and is he on a transplant list?
Has your husband been diagnosed with cirrhosis compensated or decompensated? Is he being treated at a liver transplant center? Other serious problems like HCC or other? How long is treatment projected to last if no counter indications to stop?
My knowledge is very limited and non professional about this type of situation but with more info members may better be able to help. HectorSF is one of the best and with personal experience.
Just a suggestion it might be better to start a new question and list some your husbands specific conditions and ask the question. Since this thread is over 2 months old and about Olysio & Sovaldi.
Use what every you think is best for a title. I made this rough example up in a minute.
What's next, Husband wk 12 of x, Sovaldi Ribavirin, transplant? GT1b
I really hope and pray that your husband gets the best treatment, care and lives for many years.
Jan 28, 2014 My husband will be taking the Sovaldi and Ribavirin, he also 1b with stage 4 cirrhosis.
Feb 23, 2014 My concerns are MELD score went from 11 to 14. He's on Sofosbuvir and ribavirin 600 mg. Dr. said his viral load went down to 271 to 150. but his bilirubin increased to 3.8.
How are those numbers doing now? "the virus was undetected after the 2nd week" so it went up after that? Usually it's less than 25 but could be different depending on the test used. My GT2 12wk same meds are considered undetected under 25 during tx.
What is his latest MELD score and is he on a transplant list?
Has your husband been diagnosed with cirrhosis compensated or decompensated? Is he being treated at a liver transplant center? Other serious problems like HCC or other? How long is treatment projected to last if no counter indications to stop?
My knowledge is very limited and non professional about this type of situation but with more info members may better be able to help. HectorSF is one of the best and with personal experience.
Just a suggestion it might be better to start a new question and list some your husbands specific conditions and ask the question. Since this thread is over 2 months old and about Olysio & Sovaldi.
Use what every you think is best for a title. I made this rough example up in a minute.
What's next, Husband wk 12 of x, Sovaldi Ribavirin, transplant? GT1b
I really hope and pray that your husband gets the best treatment, care and lives for many years.
Happy to hear your husband is undetected as of week 2. That's a wonderful result. Does your husband have compensated or decompensated cirrhosis?
This link posted by another member (thanks, Jimmy!)
will provide you with good information about the difference between the two and other important information about how advanced his liver disease may be.
http://hepatitisc.uw.edu/pdf/evaluation-staging-monitoring/evaluation-prognosis-cirrhosis/core-concept/all
Anyone who has (ESLD) end stage liver disease with decompensated cirrhosis should be evaluated for transplant by a hepatologist at a transplant center. HCV treatment should also be carefully monitored.
Nan
This link posted by another member (thanks, Jimmy!)
will provide you with good information about the difference between the two and other important information about how advanced his liver disease may be.
http://hepatitisc.uw.edu/pdf/evaluation-staging-monitoring/evaluation-prognosis-cirrhosis/core-concept/all
Anyone who has (ESLD) end stage liver disease with decompensated cirrhosis should be evaluated for transplant by a hepatologist at a transplant center. HCV treatment should also be carefully monitored.
Nan
Thats great, my husband is on his entering his 12 weeks, the virus was undetected after the 2nd week. He still has the issue of Cirrhosis of the liver. I'm just wondering what happens next. Has anyone been at that stage, how long it will help before a transplant? Praying for healing for all.
Been on treatment Solv/Ribv and starting my 7th week of 12. Geno 2, cirrhosis, never treated. Cleared the virus at 2 weeks. Watching hmg as started 14 and blood work at week 6 was 11. Told after week 4 it usually levels out. Was 11.2 at week 4. This med has been so easy with few side effects. 1st couple of weeks was semi emotional, week 4 was a little nausea, and now can't really tell I'm on a drug. Like taking a vitamin. Have continued to be virus free. Insomnia can be an issue but if you take the med right before bed not a problem. Can't say enough about how doable this drug is and how grateful to be on it. Hope soon everyone will be able to have access to these drugs since they are very life changing. For anyone starting treatment with this regimen or similar want you to know that side effects are so minimal and the outcome makes it incredibly worth it. Hope in the near future hep c will become a distant memory for all. Kim
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