MerryBe, i'm so sad to read this. you have been amazingly courageous in every way. and for all that you've been through, you didn't deserve this kind of krap. i am so sorry. my heart is crying.
please take care and try to stay merry. enjoy life, you will succeed,
After 88 weeks I am so sorry. Take a break and maybe the damage has reversed somewhat so you can wait for the PI's.
Bobby
I missed this post the other day. I am so sorry to hear those awful words. I know you'll keep up the spirit. Please know that I'll keep you in my thoughts and prayers. We'll both get the chance to fight again. I'll be waiting with you. Keep in touch.
Meantime I hope you are feeling better.
Brent
I'm just speechless, merryBe. So sorry to hear this. Take the time to enjoy more of those beach moments for awhile. Even a fighter needs to take enough of a rest break to be able to get back in the fight again. Good news is that the Phase III trials look very promising towards new and effective drugs on the market very soon and I'm hoping they're the charm for you.
Thanks so much for your concern. I spent lots of time checking it out and feel confident it will be ok. Joe's prescription is only 3 mg. This is a teeny-tiny dose. 50 mg.'s have been given to many , many people with no ill effect to the liver. It was an huge dose given to obese people that showed some negative impact on the liver. ( I don't remember the dosage but it was enormously beyond the norm . Our family Dr. could see no harm in that small of a dose. He gave us a prescription with his blessing. He didn't know if it would help but agreed that it was safe and worth a try in a case like Joe's.
I read about Clemizole but I couldn't find that it was still being manufactured anywhere at this time so I stopped pursuing it.
Take care for now,
Ev
As HCA has noted; you are a responder. That bodes well for you if and when you treat with a PI.
I think you've learned quite a bit that will help you when you next re-treat.
It will happen!!!
I'm sorry to hear that you relapsed but I feel that you are at the tipping point. A few more things done well, a better TX and you will make it.
best wishes....
Willy