Good info, Dee. The last half year, before I Treated, my fingers were contracting all the time, and I was no longer able to even sign my name, which I need to do all the time, when I am working.
Now that I have reached SVR, no more contracting fingers :) It was so painful when it was happening, and they would freeze into the strangest positions. I would be screaming while my Hubs tried to pull them back into place, by massaging them.
Hi Dee.. I too am 18 months SVR... We were treating at the same time if you recall.. I have been suffering from joint pain and have developed mild arthritis in my hip and toe of all things.. My doctor told me that hep c can cause arthritis.. I have started taking something that seems to be helping, but I don't know if they will let me post it here.. Last time I gave someone the name of something they deleted my post.. A month ago I could not sleep on my side, but now it doesn't bother me.. Is it what I'm taking? Don't know.. but, I seem to be feeling better overall.. John Stossel (spelling?) from ABC news did a story on the stuff.. perhaps you can google it..
I just remembered my first Hep doc freaked out when he saw my pinky was contracted, it happened when I cut a tendon many years ago.
I just remembered that and wondered why he panicked when he saw it.
It seems that there is a connection between fingers contracting and HCV so I am searching, I found this and wanted to come back to share this information
I am hoping it is ok to give this site, I thought it was informative as it shows a connection between joint problems etc and rheumatology.
http://www.rheumatology.org/Practice/Clinical/Patients/Diseases_And_Conditions/HCV_and_Rheumatic_Disease/
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I found a little info, it seems that it starts with pain, you don't move your arm then scar tissue builds up.. more pain, less movement, it is a vicious circle.
Here is something I found about this
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001490/#adam_000455.disease.causes
Again, thanks for all responses, Willy's references are very interesting I am looking into all that he posted. Dee
Thank you so very much for your reply. This pain is unbearable. I tried to treat it with heat ice, even a personal ultrasound, the pain just kept getting worse until I felt like a knife was stabbing me or my shoulder was ripping. It is confusing to me how it all happened since the doctor said it can just come on and as it does it creates scar tissue. He is giving me 8 weeks of PT, if it does not work, he will put me to sleep and manually break it up eek!
You can bet I am going to be working very hard on healing this myself :)
He also said the average person waits about 3 months before coming in so at 5 months I wasn't too bad as far as seeking help.
My best to you, Dee
Thank you so very much for your response. I appreciate you taking the time to help me find out more information. I have read many posts from the past so hoped it would be ok to ask here again.
Today I went to the orthopedic doctor he said I have adhesive capsulitis (frozen shoulder) he said the fall could have done it or it could have been coming on any way. Diabetics are 3 times as likely to get this and women are also more likely. I have never felt a pain like this, it feels as if my shoulder is ripping every time I move it. The doctor told me that more pain is in store for me. During physical therapy the objective is to get rid of the scar tissue which has some how formed. I know I did not start this way, it was a pain here and there which I tried to treat for close to 5 months until the pain was with me constantly and I put a sling on. That was the worst thing I could have done.
He actually gave me pain meds to take before and after each session of PT
Again Willy, I thank you so much.
Dee
I have long been a supporter of threads which deal with this topic.
I suggest you read those threads carefully within the medhelp HCV forums.
Your symptoms sound as though they share commonalities with other with post TX issues.
I know too many people....people whom I have personally met or people whom I have known on forums for years who have developed such symptoms. They are people who were more or less "well" before TX and who developed issues after treating.
I merely note..... that there have been many, many threads in every HCV forum I have been in. I've been online in HCV forums for more than 10 years.
There are at least 2 forums which also have Post TX Sides forums within the Hep C forum.
I think that speaks for itself.
I suggest you visit
HCV wanderers (post TX sides)
http://hcvsociety.org/forum/viewforum.php?f=6
(you'll note that they have a post TX side effects forum)
I also suggest you visit HCVsupport
They also have a post TX side effect forum
and I have also used their search engine and find that many of these uncommon side effects that doctors don't seem to be aware of are well known in the treatment experienced forums.
http://hcvsupport.org/forum/index.php/board,36.0.html
Post Treatment Syndrome - SUPPORT GROUP
"For those who are experiencing post treatment side effects beyond the normal potential of 6-12 months and/or have developed known complications related to treatment medications, HCV Support has created an area for support that is not in the public view.
Enter here to learn more about this area, its membership criteria, and how to request access should you meet these criteria."
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If these links do not appear anyone can write me, or I think with the key words provided you can find your way
I am sorry for your issues and hope that these may aid you or at least help establish/provide support for causation.
best,
Willy