Aa
Aa
A
A
A
Close
Avatar universal

Just as I thought,relapse

It was too good to be true-finally after doing every study known to mankind since the 80s and I mean a shot of 3 million interferon everyday,and then on to the 5 million everyday and when that failed it was 10 million everyday.And everything else that came after with failure after failure.And finally sovaldi and olysio come along and I finally find a hero,finally negative and just in the nick of time.Geno 1a-stage 4 cirrhosis complete with every possible side effect that makes me want to say the hell with it sometimes.Today I go and get my 1 month after Tx bloodwork and the first thing I see is Hepatitis C quantitation 694,770.Ast and Alt ballooned from normal range to 200 and 159.I had to sit down on the bench outside the office,no way I could drive cause I had no legs.I had a feeling something was wrong because I was so itchy and still having leg cramps but I hoped it was the cirrhosis.Naturally my docs first available was in two months so once again its back to the drawing board.The lady who takes my blood told me she had two yesterday on the same treatment that also relapsed.I just cant believe or accept the amount of Hell you go through only to end up on a treadmill that takes you nowhere.
                                        Good luck to you all     Glen
60 Responses
Sort by: Helpful Oldest Newest
Avatar universal
First time I am having big discomfort from my abdomen-my numbers ballooned to more than double after my relapse.I know people said at least my liver had a 3 month vacation but I am hoping the s&o didn't do more harm than good.
Helpful - 0
Avatar universal
Yep, that's what I figure is happening to me.  Felt pretty good while taking the O&S combo, but crashed as soon as it was completed.  Still showed UND at the 12th week of therapy, and next quant not due until 3 months away.  No surprises.  I'm prepared this time.  Been on this treadmill way too long too!
All the feelings you described I know intimately.  
Hang Tough
What else can we do?
Helpful - 0
Avatar universal
Interesting.   My doc is not recommending q80k polymorphism screening prior to S/O tx.  Has your doc quantified S/O relapse for 1a gtypes?  The quickie COSMOS study has me a bit sceptical given the race to the profit  wire pharma mentality.  Thanks for sharing.
Helpful - 0
6708370 tn?1471490210
you can only see photos of those who shared a photo on their page
Helpful - 0
Avatar universal
Thanks for the link Nan.  I'm clueless as to how to work this I pad to find the link but I have a friend to help me out.  Will definitely watch it.  I really need all the positive reinforcement I can get.  Oh. By the way, everyone,,, when I try to look up people's pages to try an put a face to a name so to speak, when I click on, a red sign comes up saying report!!  I'm sorry if I'm causing something I don't understand.  Sometimes, have to walk away from this screen, get so irritated..  Mary
Helpful - 0
Avatar universal
Thank you, Mary.

Here is a video that should give you renewed hope that all will be free of Hep C in the near future.

http://video.healio.com/video/Paul-Y.-Kwo-MD-on-the-current-an;Hepatology

As I posted on another thread, what came to my mind after watching it was:
"Don't worry, be happy".   :-)

Nan
Helpful - 0
Have an Answer?

You are reading content posted in the Hepatitis C Community

Top Hepatitis Answerers
317787 tn?1473358451
DC
683231 tn?1467323017
Auburn, WA
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Answer a few simple questions about your Hep C treatment journey.

Those who qualify may receive up to $100 for their time.
Explore More In Our Hep C Learning Center
image description
Learn about this treatable virus.
image description
Getting tested for this viral infection.
image description
3 key steps to getting on treatment.
image description
4 steps to getting on therapy.
image description
What you need to know about Hep C drugs.
image description
How the drugs might affect you.
image description
These tips may up your chances of a cure.
Popular Resources
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.
Can I get HIV from surfaces, like toilet seats?