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Just as I thought,relapse

It was too good to be true-finally after doing every study known to mankind since the 80s and I mean a shot of 3 million interferon everyday,and then on to the 5 million everyday and when that failed it was 10 million everyday.And everything else that came after with failure after failure.And finally sovaldi and olysio come along and I finally find a hero,finally negative and just in the nick of time.Geno 1a-stage 4 cirrhosis complete with every possible side effect that makes me want to say the hell with it sometimes.Today I go and get my 1 month after Tx bloodwork and the first thing I see is Hepatitis C quantitation 694,770.Ast and Alt ballooned from normal range to 200 and 159.I had to sit down on the bench outside the office,no way I could drive cause I had no legs.I had a feeling something was wrong because I was so itchy and still having leg cramps but I hoped it was the cirrhosis.Naturally my docs first available was in two months so once again its back to the drawing board.The lady who takes my blood told me she had two yesterday on the same treatment that also relapsed.I just cant believe or accept the amount of Hell you go through only to end up on a treadmill that takes you nowhere.
                                        Good luck to you all     Glen
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Avatar universal
P.S.  your husbands blessed to have you by his side.  Hoping for his SVR. He definitely deserves it considering the fight he's went through.  SVR TO ALL
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Avatar universal
Nan,  your words of wisdom brought many tears.  Just what I needed right now.  Tonight!! That simple word...HOPE.  it's been a quarter of a century since diagnosis , to me, the failure of the first try at SVR took that hope away.  My doctor back then pretty much said, " oh well , sorry ". I guess I'm just having such a difficult time actually believing there might be a light at the end of the tunnel, so to speak.  So,, I will continue to visit here an pull strength an wisdom from u fine people, i( if ya'll don't mind ).   Who knows, maybe I'll make it into the warrior class!!!!!!
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Avatar universal
There are  treatments now and in the near future that are interferon free. There is no reason why you need to go through that difficult treatment again.

"But am I the only one here that believes this is not in our hands no matter how hard we fight the battle??  Am I scared? Oh yea.  Do I believe eventually this virus will be conquered, absolutely.. "

Mary - my husband has been through hell for almost four years now. What I admire and respect most about him is how he has never given up no matter how hard it got and how many peaks and valleys there have been in the road we have traveled. I have often wondered - will we get there? Will the day come when he will be hep c free and his liver will stabilize to the point where we can have our life back to normal? You are right - it is not in our hands but I have to believe that the ONE who does have our lives in His hands has a plan for us all and that He will bring us through this one day soon.  Everything we go through has a reason and a purpose and it may take a while but we will know all in the end.  

I know there are those who may not think or believe  as I do but I do hope that you will  find the strength and hope hat you will help get you through this very difficult time.

Nan
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Avatar universal
Glen, well,  you said something I have been thinking about since on treatment. " how can these drugs be working ig the side effects are so minimal compared to previous treatments?"  That has been running through my mind almost from the start.  I know what I'm about to say is opposite of what most people feel on this site, but I need to throw it out  there an let the chips fall where they may.   When my Dr. Mentioned  starting treatment again, I told him straight up, I would rather go be with God than suffer anymore interferon treatment.  I have so much respect for just everyone here that has that " never give up spirit "..  But am I the only one here that believes this is not in our hands no matter how hard we fight the battle??  Am I scared? Oh yea.  Do I believe eventually this virus will be conquered, absolutely.. Hey, I'm hoping I come through this experience stronger an not so negative.  Guess only time will tell.  GO, ALL YOU WARRIORS !!!    Again, my heartfelt prayers are with you Glen. Take care.  Mary
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Avatar universal
Glen
In  case you missed it, I think my post on an article by Dr. Paul Kwo may provide some helpful info:

http://www.medhelp.org/posts/Hepatitis-C/Why-SovaldiOlysio-at-this-point/show/2240181

Nan
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Avatar universal
Hi Candyce
I do wish you all the luck in the world with your bloodwork staying negative.I did know that I relapsed because all the dam side effects were back in full force.The itching was worse than it ever was as well.I don't know if your geno 1a but that seems to be the breaking point for this treatment.You shouldn't have anything to worry about otherwise.
                      Feel good and good luck   Glen
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