Just as I thought,relapse

[GP7852]

It was too good to be true-finally after doing every study known to mankind since the 80s and I mean a shot of 3 million interferon everyday,and then on to the 5 million everyday and when that failed it was 10 million everyday.And everything else that came after with failure after failure.And finally sovaldi and olysio come along and I finally find a hero,finally negative and just in the nick of time.Geno 1a-stage 4 cirrhosis complete with every possible side effect that makes me want to say the hell with it sometimes.Today I go and get my 1 month after Tx bloodwork and the first thing I see is Hepatitis C quantitation 694,770.Ast and Alt ballooned from normal range to 200 and 159.I had to sit down on the bench outside the office,no way I could drive cause I had no legs.I had a feeling something was wrong because I was so itchy and still having leg cramps but I hoped it was the cirrhosis.Naturally my docs first available was in two months so once again its back to the drawing board.The lady who takes my blood told me she had two yesterday on the same treatment that also relapsed.I just cant believe or accept the amount of Hell you go through only to end up on a treadmill that takes you nowhere.
                                        Good luck to you all     Glen

[candyce1953]

I am so very sorry treatment failed you. Not your fault

I am right behind you and scared, I am two weeks away from EOT SVR labs
Time will tell

I keep telling myself what everyone has said to you:
That the other meds are due out in late fall, and that they are options to treat with if failed S/O
And there is no viral resistance to Sovaldi

So hopefully the cures for you and ( possibly me ) and everyone will be here
in November
Stay strong !
Xox CH

[GP7852]

Just so you know I am geno 1 and stage 4 cirrhosis.It seems that it is just the geno 1s that are relapsing on s&o.So if you are not geno 1 you should stay undetected on s&o.I am going to keep a positive outlook and try and be excited about the new drugs coming at the end of the year.I wish you good luck and more important good health.
                                        Glen

[hepcandme]

Hi Glen

I know what you mean. Although this was my first try, it was just awful to learn that I had relapsed

I am anxiously awaiting the next Miracle Drug but have been feeling pretty down too for the last week

I don't think the word "fatigue" is adequate to describe the achey joints and muscles caused by Hep C and cirrhosis. So, people say things like, if you just begin your 5 K run or 6AM hike, then you'll get more energy

I wish. I was so looking forward to a reprieve from that Uber fatigue

Looking forward to sharing notes on our next run

Be well

~Linda

[GP7852]

Holy cow Mad-72 weeks! You are one tough cookie! For what you have been through I hope you get rid of this crap and live a very long,happy and healthy life cause you deserve it.
                  Good luck    Glen

[GP7852]

Thank you for your kind words and your wisdom.I know what you went through.I had the fever effects all the time with the peg and ribo and it was worse with the peg ribo and incivek.I cant even remember the names of the treatments before them but the lovely anemia was there every time.I'm weary from it all.There are times where I want to throw in the towel but I know my kids would be crushed and I don't want that.I am just so frustrated because after all these years I finally cleared and I didn't even have time to celebrate what I thought I would never see when they pull the rug out from under me.It just sux and I'm having a hard time accepting it.
          Good luck to you and good health    Glen

[GP7852]

That was a very important piece of information Pooh.I have written down your whole reply and will take it with me to my doc on Aug 26.
                 Thanks very much    Glen