Just as I thought,relapse

[GP7852]

It was too good to be true-finally after doing every study known to mankind since the 80s and I mean a shot of 3 million interferon everyday,and then on to the 5 million everyday and when that failed it was 10 million everyday.And everything else that came after with failure after failure.And finally sovaldi and olysio come along and I finally find a hero,finally negative and just in the nick of time.Geno 1a-stage 4 cirrhosis complete with every possible side effect that makes me want to say the hell with it sometimes.Today I go and get my 1 month after Tx bloodwork and the first thing I see is Hepatitis C quantitation 694,770.Ast and Alt ballooned from normal range to 200 and 159.I had to sit down on the bench outside the office,no way I could drive cause I had no legs.I had a feeling something was wrong because I was so itchy and still having leg cramps but I hoped it was the cirrhosis.Naturally my docs first available was in two months so once again its back to the drawing board.The lady who takes my blood told me she had two yesterday on the same treatment that also relapsed.I just cant believe or accept the amount of Hell you go through only to end up on a treadmill that takes you nowhere.
                                        Good luck to you all     Glen

[lb141]

Wow...that was a big one for you...and for us all.We all want SVR,and I am sure everyone,including myself are on pins and needles about their own outcome of treatment.I was and still am very anxious about the results.However,at each visit to my doctor continues to insist and remind me that if I fail treatment "we can cure this virus'.I had results from my 8 week blood tests and I was still undected,but I still hear his words in my head...and you must do the same.I know that it is hard,but what other choice do we have but to stay positive.Stay positive,Glen...as hard as it may be...find something to positively distract you from your frustration.Please hang in there...we are all hanging with you...Linda

[eace829]

I'm new to this site.  I'm post transplant 4yrs and my Dr is proposing the S/O treatment.  Came to this site for more information and I want to thank you all for your honesty and time.  Most studies were done on pre-transplant patient's thus I'm doing alot of reading.  The studies on post-transplant were minimal, but appear positive. A little nervous.

[madelefant]

I know it is no consolation but I am on my 3rd treatment. First was 48 weeks. second was 72 weeks. It sure has been hard to carry on at times. Those two were with interferon and I felt half dead most the time. Skin rashes, gums hurting, super fatigued, hair thinning out.  I hope this one works myself but it scares me to think about it not working.

[heart_in_the_keyes]

computer crazy....but in closing we all react differently.

Hang in there....there are so many drugs coming down the road....FINALLY... it not the last 50 years....you don't want to know what interferon and peg did to me...my sister who didn't understand stayed with me one night and video taped me sound sleep screaming and unable to get up....freezing & hot at same time...had to have a retainer for me teeth so I wouldn't shatter them.....but none of the protocols worked.

So if sovaldi and riba don't work before I get a transplant, if I get a transplant...my MELD keeps dropping....down to 10 right now....the whole thing is crazy,

Drink water for the itch...use lotion...don't take hot showers...nosebleeds can occur if your blood pressure is too high....and hey...this is a funny for you ....don't get pregnant..(I know you can't) ....I've had death leg cramps ever since my early 20's worst when I was pregnant .... and my late teens...I was a dancer since I was 3 so cramps went along with the landscape....  

So I think the biggest problem is we just start saying "oh it's my liver" or HCV when it could be a lot of other things going on in your body....you have more than one organ.

Good luck...know there is a new treatment coming out this fall/winter,  

[heart_in_the_keyes]

Sorry to hear this Glenn.  As you know I've been a non-responder to 4 other trails since '96.  At least they are getting more drug fighting options then they had back in the 80's & 90's.  

I don't get excited when they tell me I am UND....two months I was UND...3rd month was DET...now I am UND again.  Asked ... was told by doc that I could get excited when he said I was SVR....and really happy when 6 months later he ran a 2nd series of tests and I hopefully will be holding on to my SVR status.  

If not...then I move on to the next option.  Don't have much to lose at this point since I am on pre-transplant list.  Read Hectors post...that's the worst...getting cleared ...then getting new liver and now it's back.  

This is a note to everyone.....whether you HCV status is active or not...this whole thing is an adjustment to your life, one way or other.  You'll see many posters who can give you websites to go to and then you will hear personal accounts from others.  Everything is to be taken with a grain of wisdom....each of us our individuals so we all react to the disease, drug pro

[GP7852]

Thank you Verdugo
That is exactly what my plan is,enjoy the rest of the summer.I see the doc August 27 and hopefully have a new plan of attack sometime in the Fall if all goes well.Always have to plan for the battle before the battle with the insurance company as well.Now I can see their side of it having shelled out a fortune for me for the s&o to see it all go down the drain.
                  Thanks again and good luck    Glen