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I am new to this forum,got diagnosed with HCV in '04,had my first son in'05 and started the treatment,3 weeks later I had knots pop up on my face,head and neck.With the advice from a Dermotologist and a Internist,i stopped treatment and had no side effects from the disease until '07 after the birth of my second son.I had gallstones and surgery,had ovarian cysts and a hysterectomy but none of this helped with the complete exhaustion and nausea and abdominal pain and worsening depression and so on.Recently I had 2 episodes of vomiting that lasted 5 days each through I.V.drugs and prescriptions,lost 15lbs.and counting(my weight is 102lbs)and I too have had too many tests all negative for this and that and got an I.B.S. diagnoses.Now my new Hepatologist wants to start the treatment again even though I was told if I continued in '05 I had more that 50% of death from the allergic reaction.I cannot cope like this,my babies deserve a better Mother(one who can at least financially support them),are there any suggestions to help me?Thank you all for all you do,I wish I knew about this forum earlier.Peace.
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Avatar universal
They have made advancements with HCV since you treated in 04. If you can until next year when new drugs will be out. even though these new drugs will be taken with the current drugs one of them offer a shorter course of treatment. Hopefully you will be able to treat under close supervision from a Hepatologist. Best of luck
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Avatar universal
my previous post should have said, if you can "wait" until next year.........
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Avatar universal
Welcome to the forum, Aquarius. I hope you get back with more details.

You said,  "Now my new Hepatologist wants to start the treatment again even though I was told if I continued in '05 I had more that 50% of death from the allergic reaction..."

If that's the case, then what has your new hepatologist said about the other doc thinking you could have an allergic reaction leading to death?

And even setting aside this serious stuff, what did your new hepa say about why he wants to start treatment right now, rather than wait, given you have other health issues and two young children?

You know, I'd raise h-ell if a doc tried to put my kids on treatment three weeks after having a baby, unless there was a REALLY good reason.

Why did your former doc put you on treatment in 2005, three weeks after having a first baby? (My own hepa spent almost fifteen years advising me against treating, based on my profile and the poor efficacity of the meds at the time.)

My jaw is dropping, wondering how with all these issues you had and have, your new doc wants you to treat again right now.

What are your liver biopsy results and what genotype do you have?

Hope to hear from you again.

Regards,
Susan

P.S. Have you figured out how to manage your IBS?



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Avatar universal
Hi again, Aquarius,

Wondering about your situation and when you're going to talk to the doc again about why he wants you to treat again right away.

Regards,

Susan
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Avatar universal
hi ...what is the new drug that is coming out and when you say next year,do you mean 2011,,possibly only months away??? I have posted on this forum recently diagnosed 6mt ago almost 7 now....I will be seeing the doctor next week...I do not know anything about my condition and have not had a biopsy..only know I have low red blood platelets and an enlarged spleen..which scares me bc I am worried I will not be able to do treatment...if I can I am really hoping for a shorter time...have 2 young boys one is mentally challenged..I am single and this I am afraid is going to be very hard...although if I am able to do it I certainly will..I am excited at the possibility of a cure...but afraid I won't be a good candidate or it won't work...answer from anyone is helpful...thanks kat from canada
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