Aa
Non Responder Poll
Just out of curiosity I would be very interested in finding out how many of the users of medhelp fall into this category?
What is your current situation in terms of disease progression,if any?
What are your proposed treatment options for the future ?
I'm 52 yrs old, male,gen 1a twice non responder,have early cirrhosis and some steatosis.........Watching and waiting for round three but unsure whether it will be a trial or licenced drug ?
Anyone else out there in a similar position would be interested to hear your situation.
Lets all move forward with faith.........
What is your current situation in terms of disease progression,if any?
What are your proposed treatment options for the future ?
I'm 52 yrs old, male,gen 1a twice non responder,have early cirrhosis and some steatosis.........Watching and waiting for round three but unsure whether it will be a trial or licenced drug ?
Anyone else out there in a similar position would be interested to hear your situation.
Lets all move forward with faith.........
I really do hope telaprevir does rock, so many people are counting on it. Goodluck with your SVR !
Age: 53
Type 1a
HCV/RNA Quantitative measure 12,000,000 + parts per liter tested.
Positive for at least 25-years since last high risk behaviors.
2-prior treatments. 1) Taken off first time early by doctor as a non-responder and too
sick from treatment to continue.
2) Voluntarily quit treatment the second time too sick to continue.
3rd treatment was Telepravir study:
1) Began treatment 1-9-2009, ended early 8-16-2009 after 8-months
due to hospitalization for Pancreatitis caused by the Interferon.
2) SVR at 6-months post treatment
3) Will test again in August at 6-months post treatment to see
results. Hope I'm still SVR!
Telepravir ROCKS!
Joey
Type 1a
HCV/RNA Quantitative measure 12,000,000 + parts per liter tested.
Positive for at least 25-years since last high risk behaviors.
2-prior treatments. 1) Taken off first time early by doctor as a non-responder and too
sick from treatment to continue.
2) Voluntarily quit treatment the second time too sick to continue.
3rd treatment was Telepravir study:
1) Began treatment 1-9-2009, ended early 8-16-2009 after 8-months
due to hospitalization for Pancreatitis caused by the Interferon.
2) SVR at 6-months post treatment
3) Will test again in August at 6-months post treatment to see
results. Hope I'm still SVR!
Telepravir ROCKS!
Joey
Female
48 yrs old
i treated once on a trial for viraminadine back in 2004- non-responder or partial responder they would not tell me anything
Stage 2 Grade 2
Genotype - undetermined, i have been tested over 20 times
infected between 26 - 30 years ago, iv drug user
I am wating for the new PI treatments
48 yrs old
i treated once on a trial for viraminadine back in 2004- non-responder or partial responder they would not tell me anything
Stage 2 Grade 2
Genotype - undetermined, i have been tested over 20 times
infected between 26 - 30 years ago, iv drug user
I am wating for the new PI treatments
Thnks Dennis you are also dealing with plenty there, am sure there will be a way through for us.
Keep the faith
Keep the faith
1A. Failed Mono tx nealy 20 years ago, and dual tx about 8 years ago Contracted approximately 36 years ago, 55 y.o. Cirrhotic with: Grade 2 esophageal varices and ambiguous encepholopathy, chronic mild anemia, thrombocytopenia, enlarged spleen, 1 1/2 year old twins, a teen age daughter, and unemployment. What a list! My best to us all. d
51 tried TX once 4 years ago, had breakthrough during TX and pulled after 10 months. Pre-TX VL 92 million, end TX 4 million, TX low 1.3 million. Severe Anemia during TX.
Type II DIabetes only known Post TX effect.
Geno 1A
Early Cirrhosis
Stage 1 varices
6 month vists for LFT, AFP, and Meld calculation.
Annual CTScan, Endoscopy, bi-annual bone density scan
So far all indicators are showing compensated with no further advancement.
Standing on faith
Type II DIabetes only known Post TX effect.
Geno 1A
Early Cirrhosis
Stage 1 varices
6 month vists for LFT, AFP, and Meld calculation.
Annual CTScan, Endoscopy, bi-annual bone density scan
So far all indicators are showing compensated with no further advancement.
Standing on faith
You courageous people are in my heart. Sending out a lot of positive vibes, warm wishes and prayers. May you all get rid of this monster really soon!
Hugs, Marcia
Hugs, Marcia
Me:
Geno 1b
Treated with:
Intron A
Intron A + Riba
Infergen high dose + Riba
Pegasys + Riba
Pegasys + Riba + Zadaxin
Many years of half dose maintenance until it wiped out my bone marrow and can never use inf again.
Infected for 44 first biopsy 1992 - still well-compensated
Geno 1b
Treated with:
Intron A
Intron A + Riba
Infergen high dose + Riba
Pegasys + Riba
Pegasys + Riba + Zadaxin
Many years of half dose maintenance until it wiped out my bone marrow and can never use inf again.
Infected for 44 first biopsy 1992 - still well-compensated
I forgot to add, I was previously a genotype 1A/1B dual genotype and somewhere along the way with the 10 TX's, I lost the 1B and now only have the 1A.
Most definitely infected in 1982-1983 time frame and diagnosed with non-A/non-B hepatitis in 1985. Formally diagnosed w/Hep C in 1994. 1st TX was in 1997.
Susan400
Most definitely infected in 1982-1983 time frame and diagnosed with non-A/non-B hepatitis in 1985. Formally diagnosed w/Hep C in 1994. 1st TX was in 1997.
Susan400
I am:
Female
48 yrs old
10 x of TX, non-responder or partial responder w/o viral clearance ever...
Stage 2 Grade 3 bridging fibrosis x 7 yrs.
Proposed treatment options for the future? Don't know what will do the trick at this point.., probably a miracle from the most high! I am hoping for a polymerase clinical trial that will accept a Telaprevir failure patient into their protocol. Or, if I have a way to pay for Boceprevir when it becomes available, I'd be wanting to try that. And there's also the possibility that a HCV vaccine will be developed that would be able to help to clear alot of us. I'm definitely not giving up hope.
Susan400
Female
48 yrs old
10 x of TX, non-responder or partial responder w/o viral clearance ever...
Stage 2 Grade 3 bridging fibrosis x 7 yrs.
Proposed treatment options for the future? Don't know what will do the trick at this point.., probably a miracle from the most high! I am hoping for a polymerase clinical trial that will accept a Telaprevir failure patient into their protocol. Or, if I have a way to pay for Boceprevir when it becomes available, I'd be wanting to try that. And there's also the possibility that a HCV vaccine will be developed that would be able to help to clear alot of us. I'm definitely not giving up hope.
Susan400
57 years old
Genotype - 1a
Treated in 2008 - null responder
Biopsy - Stage 4 (compensated until operation summer of 2009. Now have edema, mHE and ascites which I try to manage with my meds).
40 years infected
I am waiting for Telaprevir to come to market. Since I am starting to decompensate I hope I will be able to treat once more. (fingers and toes crossed!) If not, then I will need a transplant to live. I am currently in the process of getting list on a transplant list.
Cheers!
HectorSF
Genotype - 1a
Treated in 2008 - null responder
Biopsy - Stage 4 (compensated until operation summer of 2009. Now have edema, mHE and ascites which I try to manage with my meds).
40 years infected
I am waiting for Telaprevir to come to market. Since I am starting to decompensate I hope I will be able to treat once more. (fingers and toes crossed!) If not, then I will need a transplant to live. I am currently in the process of getting list on a transplant list.
Cheers!
HectorSF
Infected at least 16 years, 4 failed treatments, 1a, early Cirrhosis. Waiting, waiting, waiting, waiting, waiting for PI's...
Magnum
Magnum
Cheers Trinity, similar situation to me. Fingers crossed eh.
Anyone else out there ?
Anyone else out there ?
57 years old
1a Stage 3/4 around 39 years infected
Treatment March 08 to August 09 72 wks tx w/Pegasys 180mcg & Copegus1000mg
3 mo post tx PCR - relapse vl 137,000 AST and ALT normal
6 mo post tx AST 21, ALT 25
No post tx side effects
Waiting for the PI's and if it looks like they will not be released next year I will look into a trial. The combination of Protease and Polymerase looks very promising.
Trinity
1a Stage 3/4 around 39 years infected
Treatment March 08 to August 09 72 wks tx w/Pegasys 180mcg & Copegus1000mg
3 mo post tx PCR - relapse vl 137,000 AST and ALT normal
6 mo post tx AST 21, ALT 25
No post tx side effects
Waiting for the PI's and if it looks like they will not be released next year I will look into a trial. The combination of Protease and Polymerase looks very promising.
Trinity
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