I hope this works. Beginning week 4 on S/O this Monday. Severe nose bleeds in both nostrils. Feeling pressure in the back of my head an sinuses. Makes me wonder if it is the tx or just the liver disease.
I still have elevated AMA and EOS
And can feel ill if over extended
But
My level of energy has dramatically improved now that I am cured of hep c
I had it 43 years
There is hope
They felt that treating the hepatitis c could improve the auto immune disease
And they do seem a bit better not gone completely since SVR
I also have just finished Sovaldi and Olysio treatment and also have auto immune hepatitis. Had some fairly serious pain from belly button to liver, but all testing came back normal. I look at it as my body detoxing for the drugs. Fatigue is present but as referenced occurs later in the day. I was undetected first month and remain so. My doctor was fairly honest when he told me I may not feel much different after treatment as I was born with the virus and am now in my 60s. I had presumed, as many of us do, we would be much changed. However, I do feel the some changes, the biggest one would be the knowing that, at this moment in time, I do not have HepC.
I have autoimmune issues too. What did your docs say about treating for C and autoimmune issues?
Awesome that you have finished treatment. Congrats and keep the faith. Like you, am very optimistic. I finished treatment April 7th, Solv and Rib. You wondered how the post friends were doing and I say 2 thumbs up. Still have mild cirrhosis so that's a drag (no symptoms) but this is life and nothing is ever perfect. It's kinda a shock when treatment ends, as you kinda feel like a sitting duck. Think it's human nature to feel that when the virus is gone life is now Rosey. ( Close but not quite ) So, take it easy, still drink those fluids, and enjoy your new life. ..Kim
Congratulations on completing treatment. Stay optimistic. These meds are incredible and there is no reason to think that you are not already cured.
I do want to remind you though that should you get news that the virus has returned, there are other treatments soon to be out that have a very close to a 100% cure rate in the trials. You will beat this monster one day very soon. I have no doubt.
Nan
...while trying my best to be optimistic
No...but my next appointment with my doctor is in June.Don't really want to ask before then.I know it sounds crazy...but I have been dealing with this monster for so long,I don't know if I will freak out and have to be committed if it comes back...so I prefer to wait.
So very glad to hear from you all with these great results. I just took my 4 week viral load yesterday. I do have some depression (but I had endogenous depression anyway, started taking some meds for that, anxiety, but not a lot) and I did have one stomach incident because I hadn't eaten enough food prior (I found if I do it's not a problem) So Happy For You All!
Great to hear Candyce! Glad to hear you have more energy, sounds like things are looking up. Congrats on finishing meds, and we'll see you on the on SVR side. :-) keeps us posted....
Best wishes to all!
xxxooo
Mag
Hi good for you and mag tx
I finished Sovaldi and olysio may 5( also UD thru out tx)
Now the 4/8/12 week and post labsthat count
I am almost back to my normal,energy, (which at 60 and have auto immune hepatitis ) is pretty good so I am happy, took two weeks
Fingers crossed for all of us
Love xoxo ch
Did someone tell you your results will be ready in June? If you had labs drawn on May 14, then you should be getting results sooner... Takes about a week to get VL results, and all other labs should be ready even a bit sooner.
I will.I am extremely optimistic...will let you all know of my results...soon...in June.
Hang in there, waiting for those results is a tough one. We finished tx about the same time, you should be getting yours very soon! I'm excited for you and if you're UND one month post then that's a real good sign that you're on your way to SVR :-))) I'll be looking for that great word of undetectable when you post!
Happy to hear you're feeling better :-)
Mag