Pruritus at its max

[GP7852]

How do you deal with pruritus.Mine has reached the pinnacle where I can't sleep anymore,my skin is so sore,black and blue and torn up from the rubbing and scratching.I am going through a container of Sarna a day.I am so bitter at my insurance company (Cigna) as they continue to deny me funding for Harvoni yet they are happy to continue to dock my paycheck for their payments.I feel like such a fool.Meanwhile it is like I have a million bugs living right under the surface of my skin trying to eat their way out,the worst nightmare of my life.I am a lifetime non responder who finally got negative on sovaldi-olysio only to relapse immediately.At this point I don't even care about my liver anymore,my #1 priority is to just stop the itching and get the soreness to heal.I am trying the Gilead assistance program since I meet all their criteria but it is slow and the torture is getting to my nervous system.Do any of you stage 4 cirhotics have any helpful info,even the cholestyramine isn't helping anymore.
                                                          Glen

[GP7852]

Thanks His way
I am trying anything and everything-things have gotten desperate.It is so painful.         Glen

[His way]

My whole body was a mess with horrible rash during triple treatment. The only thing that worked for me was Clobetasol cream and ointment (You can google but I think Clobetsol is a steroid.) I also took a round of oral prednisone which was contrary to Incivek. It only worked if I kept myself covered in it and it made my hair fall out. Nothing over the counter worked at all and in fact some o/c lotions made it worse.
I empathize with your suffering, skin is your largest organ and when it gets sick it is hell! Hope you find some relief.

[GP7852]

Mary
It is important to me to understand what you stated.In laymans terms,is this something I can purchase and what is the exact names of these.I can only get some relief from the cholestyramine but the stuff is literally destroying my bowel system.I can not lead a normal life anymore because of this and it can eventually cost me my job which would include my medical benefits.
                                   Thank you     Glen

[Mmorgan856]

hi Glen, I'm not sure this experience with a friend recently would help you, but hoping.  Like you, she broke out out with horrible rash, intense itching from neck to toes. She's untreated so far.  I took her to E.R. they gave her EPI. IV an steroids.  Then cream.  Slowly, she got relief.  I'm not sure sharing this would help.. I'm hoping an certainly praying for you to have strength to get through this, get some relief, an start your treatment soon.  Take care. Mary

[GP7852]

My doc has ordered the ribavirin to go with the Harvoni if I ever get the harvoni.I am working both sides of the fence between Gilead and my insurance company.Gilead has me jumping through hoops like a circus dog.After finally getting them everything they wanted including the 2 letters of denial from my insurance company they are now telling me they need a 3rd letterof denial to an appeal prior authorization.The days are so long with this disease and these companies just make them even longer with all the frustration they put you through.Meanwhile my insurance company does remember to take their hefty payments out of my paycheck every 2 weeks.                            Glen

[hrsepwrguy]

"I have experienced that - went from 14.0 down to 8.8, then up to 9.0 then to 9.7 and last 2 Labs , 9.5."


I would like to point out that patra's case is not typical as I posted above the average HGB loss during sovaldi trials without inf was only ~2 g/dL the same as riba monotherapy I don't think the ledisprevir has any effect on anemia, I would take the riba

Have a great day