I think I’m one of the few still hanging around and I don’t really have any insight for you on this. All I can do is send you my best wishes and for you to know you're in my thoughts
I actually don't know as my hepatologist sort of fared good bye after my last undetectable PCR. My PCP had me do one more PCR about 2 years after Tx and was still good. My biopsy had shown level 1-2 fibrosis and my enzymes have always been normal, even while HCV positive. A couple of times recently I had an acute pain in the liver area and have wondered. So sorry to hear about your news, you went undetectable?
I was also recently diagnosed with HCC, 8+years after clearing HCV. The tumor is 2cm, and I’ll be undergoing an ablation procedure this Wednesday. It’s done by an interventional radiologist, and he is optimistic that he can destroy it completely. Unfortunately, I’ve heard that once your liver has a tumor, it’s likely to create new ones.
I really thought that this was in the rear view mirror, and that I’ll live with this damaged liver for a long time, but I am grateful that my hepatologist insisted on regular MRIs to monitor things.
My hepatologist thinks that the ablation will work, and if another one pops up, we’ll treat it the same way. This diagnosis will also give me extra MELD points, so I’ll move up on the transplant list.
Hang in there. As awful as this new battle is, there are tre
atment options that have been successful. I’ll share my experiences on this road that we’re on, and hope that you’ll do the same.
I check in and scroll through every now and then but not many famililiar names left. I haven't had Liver Cancer but 6 Bi-Passes and 2 Strokes. I have no way of knowing if it was related to the tx. but, I can say life never returned to normal .
I haven't been on here for ages. Not sure if having a liver transplant changes things but my liver and I are quite well..
Just returned from 1 month post procedure meeting with the interventional radiologist... Seems as if the ablation worked, but they are concerned about another lesion that now shows signs of being HCC. They are recommending Y90 treatment for this tumor because it is close to the lung and they are concerned that the ablation will damage lung tissue. Looks like I’m in for an adventure.
Have you and your docs decided on a path? For what it’s worth, I think that being proactive and dealing with the tumors is better than letting them grow. I’m 66, so we are in the same boat transplant wise. I’m currently listed at a New York hospital, but am considering trying to also get listed in a different state.
Sorry that we are in the same boat, but I appreciate the company.