691935 tn?1421027090

Restless Legs - driving me crazy!

Any suggestions.  Can't sleep.  Worse after the interferon.  
22 Responses
548668 tn?1394187222
Sorry you can't sleep;  Panadol may help with the legs (Panadol became my magic drug for aches during tx and, despite my liver condition, my specialist said to take up to 6 per day if I needed to for leg pain, which I did but only a couple of times).

I ended up with a script for sleeping pills, but not before trying a lot of other things.  Chamomile tea actually did help (thank you Medhelp), and so did night snacks.   I ate 2 bananas a day throughout tx (which may help in the longer term for restless legs), and panadol and a hot water bottle for leg pain.

Other than that, I just stayed on the net until the early hours, slept in spurts whenever I could manage and crawled around like a shadow of my former self until I started on quarter to half a sleeper to get more than the 90 minutes sleep I had been getting (I celebrated when I first did 3 hours straight!!)    Lack of sleep can be so mentally challenging and taxing so take it easy - if you have to watch TV all night, so be it, and get hold of your doc when you can.  Good luck...  
476246 tn?1418870914
I find that heat relaxes the muscles and helps tremendously with the leg and body aches. I sleep on a heating under blanket and it has saved me all through tx.
Avatar universal
RLS is different from leg pain.
Cold (air) on your legs can help a bit, but what really works is a small dose of a pain pill (narcotic)  The only non-narcotic pain med that I found to work is Ultram (Tramadol). It is by rx as well.  There are some meds that are made just  for  Restless Leg Syndrome that you may want to talk to your doc about.  It's horrible as I suffer from it as well.  
206807 tn?1331936184
Sleep Deprivation was the main culprit that almost caused me to throw the towel in on tx. Some nights, I would constantly go from one end of the bed to the other because of the nerves in my feet would drive me crazy. It was not painful but extremely annoying. This is not what kept me awake but added to my torment. You already know Interfer/Riba causes this. I was put on Ambian (to put me to sleep), Elavil (to keep me asleep), Hydrocodone (for the pain), and Xanax (for the Panic Attacks). Sure, it was a battle getting off of them after recovering from tx. I still occasionally have to take a Xanax and I still take Lortab (but I was on them before tx). Yoga, Candles, Tea, etc. may work for some people but I had to “fight fire with fire” and would not have made it if I didn’t. Good Luck and Best Wishes, R Glass.
559277 tn?1330618739
I can't live without Requip for RLS. It is way worse after treatment than it was before. I used to be able to get to 7 pm before the crawling and twitching began. Now it's hitting around 4:30 - 5 pm, just as I'm finishing work.

I found that making sure my feet are warm helps a lot until the Requip kicks in. Someone (an old nurse who favors homeopathics) also suggested unfiltered organic apple cider vinegar in water 2x a day for restless leg. I've shied away from that one because I already make enough acid in my stomach ...  
164592 tn?1222906774
I have RLS and it got really bad on treatment.  I did find something that helped though...
I got myself a full length body massager and would lay on it in bed on really bad nights. I also have a chair massager that sometimes I would just put under my legs in bed. It was almost as if as long as it moved, I didn't have to......  I know it sounds crazy, but, it was the answer for me :-)
Avatar universal
dmhrdh is right about the massage.  I use to be a massage therapist and had many customers with RLS and a massage would give them relief from the pain.  They would say it relieved the sx for a few days.  Some of them would come twice a week and swore it was the only thing that helped.  Maybe you could try getting a massage and see if it helps.  

I'm not sure if the massaging machine would help but that too is worth a try.  Sounds like it would, and definitely is cheaper.
648439 tn?1225058862
I get it when my stress levels increase and I cannot sleep.  What comes first?  Sleeping pills with muscle relaxant help me the most.  Just a half takes the edge off enough to get me to sleep.
691935 tn?1421027090
a lot of good suggestions.  It is extremely annoying.  I did have RLS b4 tx but geez I'm like totally insane with it now.  It is not consistant.  So, sometimes it is too late to take a sleeping pill - i'm a lightweight and I won't be able to get up in the AM.  I'll try the massage and look into the requip.  Thanks
Avatar universal
Try Vitamin D supliments and Calcium/Magnesium.

It doesn't cost much and it might help.
276730 tn?1327962946
I had the same thing during tx. Restless legs and NO sleep. Nothing helped me but time. Im post tx now and my legs still feel strange but not as restless.
Avatar universal
Requip is the answer for RLS.
Avatar universal
phentermine pharmacy
Avatar universal
My mum uses medical pressure stockings sometimes when it gets too bad.  Like flight socks, only tighter (and with a hole for your toes).   My RLS started a couple years back, and is slowly getting worse - until I experienced in I had no idea what my Mum was going through - horrible horrible thing.
1737254 tn?1310642052
you need to see a dr. i went and he said it has to do with sciatica its due to pain in hip and lower back
619345 tn?1310341421
I agree with the last statement regarding the sciatica issues  I have had restless leg syndrome for many years not as terrible as you but sometimes it is very annoying  I am alone so it only bothers me It has become part of my life somedays it is worse than others  but yes Stress and the actiing up of the lower back pain do make it worse  

I also grind my teeth not sure it this is off topic but it is like that the restless leg thing you do it and not even aware of it  but very annoying when you are  Hope it is just a issue with you of tx  best of luck    Sleeping helps sound sleep however you can get there  Massage is next best  and I was much better when I could see a chiro twice a week
Avatar universal
you dont need narcotics anti anxiety meds and especially not phentermine ( diet pill ) - wtf - these could keep you up all night - calcium and magnesium are good as is requip ------              

Primary restless leg syndrome probably has some genetic basis. Secondary causes include iron deficiency, neurologic lesions, pregnancy (folate deficiency or high level of estrogen?) diabetes, and uremia. Other possible causes include fibromyalgia, thyroid disease, B12 deficiency, and varicose veins. Symptoms may be induced or exacerbated by medications such as antidepressants, lithium, and dopamine antagonists (neuroliptics, metoclopramide), and H2 blockers. Caffeine also has been implicated in the worsening of symptoms.

read here


and here

Avatar universal
requip is putting me to sleep all day long tho. Any other suggestions? Jean
315996 tn?1429054229
I would and do stretch my leg muscles and back muscles before bed. Religiously. If I wake up in the middle of the night with twitchy legs, I recognize immediately that I didn't do my leg stretches. I usually put a chair in the middle of the living room and use it to hold for calves and quads and then turn it around for hamstrings. I watch TV at the same time.
I get twitchy legs at the movies sometimes. I've noticed especially at an artsy film or when I'm sitting next to whoever I go with. I can get around it by standing up over in the corner of the theatre. I also sometimes will do my leg streches on the back of a theatre chair. I am not going through treatment. I just get twitchy legs especially if I don't stretch them. Stretching major muscles before bed also releases seratonin. It's kinda Yoga like.
Avatar universal
Excuse me please...but what is Interfer/Riba?
Thank you.
Avatar universal
Interferon/Ribavirin is a combination treatment for Hepatitis C.  Interferon is a chemo therapy that is injected, usually into the thight, but can be in other locations.  Ribavirin is a pill form medication, usually used for hepc patients in conjunction with some other medication.  This combo is an old form of treatment now.  There are now several meds available that are all oral (pills) and have a higher success rate and lower and milder number and degree of side effects.

Linda, you have posted on an old thread.  If you post your question (copy and paste works in this kind of thing) to a new thread, you will get more  and more specivic answers.  Just go to the top of this thewas, push the green Ask a Question button, paste your question, or post a new one, and submit it.

Welcome to the Forum!  
6708370 tn?1471490210
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