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Avatar universal

Victrelis & Telaprevir, keep cool 6am in the morning

Just like to post this tip out to all those who have started or about to start treatment on Victrelis or Telaprevir,
As the drug has to be kept refridgerated and taken every 8 hours you are likely to have to get up approx 6am in the morning to take a dose of your treatment and can be a NUISANCE getting up turning on the lights to get to the main fridge.

Last week i purchased a "Portable Fridge & Warmer" $35.00 on ebay just to fit on the bedside cabinet, it will hold several small bottles of water along with your dose of medication.
This is a Big Relief just turn around open the door and get your drink and medication turn out the light and back to sleep.

I enclose a link of what is available on ebay at present copy and paste into the very top browser:

http://www.ebay.com/sch/Inside-the-Home-/159888/i.html?_nkw=mini+fridge+%26+warmer&_catref=1&_trksid=p3286.c0.m1538

I am sure if you look around you may find one more local but would like to share the tip for all those on or due to start treatment.

Good Luck to all on Treatment


Cliff
Best Answer
1711722 tn?1356487554
Oops!  Just read your profile.  My training nurse told us to have a 'robust' breakfast, since we are fasting all night while sleeping.  Having a bigger breakfast helps minimize some of the morning G.I. sides.  Plus, taking different meds (so, the RIBA and VIC) at least 30 minutes apart, gives your system time to process things separately.  As for the metallic taste....she recommended Big Red gum.  They say the cinnamon helps.  Others here have suggested sour hard candy.  Ginger candy is for the nausea (and AJ says Coca Cola does the trick) but may also help with bad taste (not sure).  Best to you and your fiancee'!  That is so sweet you are there/here for her.  Thanks for your post.
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476246 tn?1418870914
When I was on treatment, I was practically in bed for the whole 8 months. I often had to crawl to the bathroom and I would sit on the floor in the shower. I couldn't stand up for very long and was afraid to fall in the bathroom, or anywhere else for a matter of fact. At times I wasn't even able to turn in bed, for hours. It had both to do with being extremely weak and the brain sometimes not being able to command the limbs to move. Trying to work through the brain fog was very hard at times.

I don't fondly look back to those months. I suffered incredibly much from the meds, sometimes I can't believe how I even made it through tx.

I hope your fiancée is not going to feel that bad, but in any case, be prepared. You are a good man going all the way over there to take care of her. She might get cranky and irritated, please don't hold that against her. The meds can make you become a pain in the neck, really.

All the best to you both! And here's to a big fat SVR at the end!!!

Helpful - 0
Avatar universal
Cost of $30 - $40 is nothing regards to expense of the medication.
Symptoms of being shaky walking to the bathroom and back feeling as if your legs do not have the strength to hold your body you will not consider twice about the cost of $30 - $40

Just like "alagirl" above stated look how she suffered shaking dropping dishes with her hands, the same applies to your legs too and you do not want to get up and walk to the fridge.
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1794638 tn?1345155061
wow I was about ready to flip out on the INC thing !
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Avatar universal
Yes dave and what a pain that was, plus we had to enter everything on their palm.......... These people have it made...:)
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Avatar universal
during the trials for victrelis we had to keep it refrigerated all the time. After it was approved the information was changed to what his3707 provided above.
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Avatar universal
ust reading the patient info that came in the incivek "Welcome" packet and it says. Keep your incivek pills on the kitchen table or counter so you can remember to take them when you eat. Got a little nervious about having to get a fridge for the bedroom. Wow, I dont even have a tv in there. For sleeping only. And listening to some of the side effects probably nothing else for a while. LOL!! I just got the visual of alagirls son drinking his milk in the morning from a champagne glass. :)  
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