anyone?

[lizzie738]

I just came out of a six month pegisis treatment, during which my other half walked out without a word or warning. My reaction was really scary, i ended up with some form of interferon psychosis/depression, blacking out and loseing minutes while i acted completely out of control, breaking stuff etc.....which is not at all normal for me. Its been eleven weeks and I am still in shock at how terrifying the side effects were on my brain, i was wondering, did anyone else end up in that black horrible place with depression so bad you didnt even imagine it could exsist? It was sheer hell :(

[lizzie738]

yeah my ex was a weak coward but what can you do. With your girlfriend umberdio is she scared? people act weird when fear hits, maybe send her to a psycho therapist, mine was awesome. I have been clean for 16 years, found out I had hep at 6 months pregnant and 7 months clean, so i lived with it for a very long time before treatment, so i had time to prepare, in fact i didnt even know there were effective treatments when i finally got to sick lol.
@ hippychick: The hardest thing was giving myself that damn injection every week, knowing it would send me mad. I will say, the Austin looked after me so well, phone calls from a nurse every day, appointments for clinic whenever i needed it. Once I went nuts they were so so so caring. They were anyway but there was no way they were letting me fall through cracks and every month they assesed how i was going before giving me a new script. They really were brilliant.
My doctor and therapist were also fantastic, i am sorry hippychick that you didnt have good care i could not have walked that mile without the brilliant care of the Austin hospital in heidleburg. My son was 14 while i was being treated and they looked after him as well, even though they did not have to. I can never thank them enough.
@ Interfurgen lol your poor church but it is so good you had them there, i bet it helped so much.
I wish i had found this site while on the pegisis After my partner bailed in such a horrible way (dont get me wrong i do not blame him for leaving, i know it must have been really really hard for him to deal with, i was not fun to be around, first with the hep making me sick bloated and as grumpy as hell and in no mood to do much other than sleep, then treatment, it would have been so hard for him i just think the way he did it was foul, it was such a shock an hour after my needle, i could not process it and thats when i had my first blackout. The worst thing was the night before, even though he knew he was going, he kissed me goodnight and told me to get rest so we could try for the markets the next afternoon........so yeah shock was not a good thing when combined with interferon/rv......and i felt so isolated for the last few months so sick and so crazy, falling asleep crying, waking up crying, salt stains on the pillow from crying in my sleep, etc. Oh well i am alive, I am clear and I am starting to feel good again. When my body first started coming back to sanity, i could actually feel waves of serotnin it was mad :)

[umberdoi]

Hi Liz. The tx is pretty hatd for us never mind partners. Yours sounds like a total **** and not very subtle. Sorry bout that. Im clear 4yrs now and just found out my partner has it. Not from me. Got with over a year after being neg. My partner is being very unacceptable as shes just found out shes got type 1. Bummer, but the way she has behaved since finding out, I think I could never put up with her moods and psycho nonsense when they finally stick her on the tx

I wasnt too bad physically on it. Lost a bit of hair which still hasnt come back aftet 5/6 yrs. But i only done 6mths. The last 3 killed me mentally. I was super depressed and 20mg cipralex and at the time 60mg methadone and dihydrocodiene 4x60mg was probably what made it not too bad. I think I will leave my partner when she goes thru it as I have been there already, done it and my partner is getting on like a spoilt child idiot before she has even been evaluated. And worst of all she keeps trying to blame me on giving her it even though I was clear and have evidence to show its all bull. Partner doest want to believe that could have had it 16 yrs ago when had child

[Interfurgen]

lucfer could not keep up with me even the people in my chuch told me I just walk out of the lake of hell just don't make a list of  who gets it frist!! tap your heels and say it's all in my head it's all for the good i will be better!! then i will get them, every last one hehehehehe!!!!!!! start with your docter

[lizzie738]

thanks guys, i have battled depression for years but nothing like the nightmare place i was in on treatment. Its been ten weeks since i came off it, and have been slowly weening down of all the meds they put me on (seroqueol valium zoloft ) I am now back on just my zoloft thank god. I lost two thirds of my hair most after treatment and only just getting energy back.
Oh and my other half did leave because he couldnt cope with it, but the way he left was evil, he waited an hour after my needle and sprung it on me as his dad walked in to get his stuff, he went to great lengths to make sure i had no idea it was coming and the shock nearly broke my mind, it was hell. We wer living together for three years before he walked.....

[hippiechick1961]

Hi Lizzie,(anyone?),
I too have just been forced actually, to HALT my HepC treatment. I was a canidate for a years worth of treatment.
To say the least honey it has benn PURE HELL on my "body, mind, and soul... I had nitemares that my ex-hubby attacked me and cut me up into little peices and buried me in a garden, That was CRAZY, other horrible side effects (and this is the main reason my Doc. just took me off), is that i was unhealthy because of just coming off a relapse binge of about a year, so i was skinny anyway and not healthy, but I just torchered the HELL outta myself and Could not eat while on treatment. At this point I am practically ANOREXIC and scared.
Your thoughts are so deluded while on that stuff man, its just NUTZ!!! And if you have a past history of some mental probs, such as addiction, man... your introuble!!! I truly feel like the doctor could have done more in helping me to maintain a balanced life and not just throw this script at ya and say I will see you once a month, Good-Luck!!! And thats really what happened
Its real important you are recieving counseling and or therapy while on the stuff, and try to remember that your THOUGHTS are just THOUGHTS and that you don't have to act on them k sweety, Good Luck to you always and be strong, it will get better!
Peace,

[James10500]

The important thing is how do you feel now ?  You probably were acting pretty strange the entire time, it seems pretty unlikely that you had one incident of Riba Rage during the 24 weeks (it's not 6 month ).  Most people attribute these mental sides to Ribavirin.  You may want to go on ADs to help you get through the recovery.  

Did this person leave because they couldn't handle supporting you during tx ?

Good luck with SVR !

[Diane12855]

Were you on antidepressants? My doctor put me on them 2 weeks before I started tx because we knew that depression is one of the worst sides of interferon. Even with taking the ADs, I got to a pretty dark place the last couple of months.... I did 48 weeks. Now I'm done and dealing with a slightly altered dark place, as well as a slightly altered personality. Mental alterations will probably take longer to get back to normal then physical ones. I finished 3/18/11 and this week my oil glands in my skin just started working again, and they are fairly simple organs. The brain is definitely not a simple organ and has to make all kinds of chemicals, and the interferon really messed up that balance. ADs can help with that... some. If you're not on them, talk to your doctor about it.

Good luck!
Diane