you can do it al.........you will do it
You have a lovely angel depending on you so therefore you do what you must :)
It's not easy - my family understood that in addition to being a kind of moody person to begin with these meds were totally whacking me out. Thank God I had such a long talk with them beforehand so they got it.
I would come home and head straight for my bedroom where I would spend the next 12 hours until I had to get up for work. All I wanted was my bed, the remote control and a bowl of ice cream. Every night.
Treatment is hard but the ADs helped me I think. I was just so tired and so confused in my own mind wondering if it was working, would I even get to UND (I didn't get there until somewhere between 12 - 24) let alone would I SVR! It is a lot for any person to go through because for some reason it really makes you face your own mortality. Now mind you, I did drugs for many many years and never worried about that before - but knowing that something was going on in my body that I might not be able to beat really had me feeling very defeated.
Thank God it worked and life went on.
You will do it. You just have to do what is right and continue onwards no matter how hard it gets.
You know I am here for both you and your angel if you should need me.
Debby
I reported SHABBY NO CHIC to MH yesterday. They pulled the posts right away. The post were obscene. Anyway, hope he doesn't come back. This jerk has some vendetta for CoWriter. I say get a life.
Trin
Wow, way to go, you're coming down nicely! Keep your chin up, you've made it through a rough spell. My thoughts are with you.
S
my wife is dublin angel, im only on xanax till my antids kick in, i can undr stand my wifes and you my friends concern being in recovery, but i just could not live with the anxiaty or depression, im feeling fine now, roll on week 9 wed, from 5.000.0000 to 700 odd v/l i feel as postive as ive ever been. god bless your all in my prayers
I agree with you. There is NO way those other drugs are not effecting her husband. Ad's are one thing, benzo and opiates are another. He is or was taking way too much medication to be able to think clearly. Tx meds are can cause personality changes, but if you add all those other medications to the mix you've got a problem. It's just that simple. Especially, when you have have an addicitve personality. Now let's all hold hands and sing Cumbia.
Trin
Not being judgemental. I spent the first three months of tx on vicoprofen, then had to kick in the middle of tx and start going to 12 step meetings again.
If 14 solpadol contain 7 grams of paracetmol, why bother to tx? You're probably doing more damage to your liver with the pills than the HCV. If you gotta do tx loaded, at least switch to somethig without all the tylenol.
I will definitely keep in touch. I will do whatever I can to be there for you. You have already had a space in my heart for a while and also your lovely boys. I've been looking at all the family pictures and you are a beautiful family. Hugs, Marcia
"I almust sure hes on hes 8 week of treatment so i think the almost 4 log drop is hes 4 week result, that will give him a good chanse of clearing at w12 dont you think Co."
Most definitely. 731 turned out to be his 4 week viral load so those are very good results.
"All three in my prayers Dublinange1 almag and CoWriter"
What a sweet thing to say. Thank you so much. It is deeply appreciated.
thank you for your kind thoughts my husband speaks so highly of all the time you really seem to make a big impact on his life at the moment and im so grateful for that im glad he has someone to talk to who can relate to this illness i would appericate if you could also help me along this tuff road for me i feel im in hell and im being punished for something i did in a past life if that makes any sense please keep in touch dublinangel1
That means that he started on Aug 6th with a viral load of 5,432,149.
And on September 4th would be ONLY 4 weeks and his viral load went down to 731.
And that is wonderful!!!
So he truly is now on Week 8 of treatment. Hang in there. So far his results are great.
I have not taken the opportunity to welcome you on the forum, but am doing so now.
I understand what you say about your husband not being the same as before treatment. This is temporary and it should even out at a certain time. If it doesn't, it will surely do so after treatment.
The treatment drugs themselves can put us in a very big brain fog. Some have it worse than others. Some cannot even say a sentence without getting lost in it and don't know or forget what they are talking about. So it might not even have much to do with the other medication he is on.
I have not had that severe brain fog, but I sometimes do feel like I am locked into a bubble and can't come out. It is very difficult to comunicate when you are like that. Sometimes it feels like your thoughts are totally empty. There is nothing in the brain. One just stares into a space and the space doesn't even seem to be there. It is difficult to describe and no one will be able to get through to you, as you cannot even get through to yourself.
So don't expect to have your quick witty husband by your side for a while... Just know that he loves you, and he surely does... He always speaks so highly and lovingly of you.
God bless,
Marcia
I cannot find any of his notes where he said he had his PCR done, but I do also think that he just received the results of his 4 week PCR. And that is some great results he has there!!!!
my husbands brain is not was it used to be hes on his 8 week from the paper work from the hospital it says from the 6 of august 2008 his V/L was 5432149 then from reading from the next patient result report from the 4/9/08 his V/L was 731 im not sure what all that means im just reading it from the reports if that helps
I looked into my notes. Almanu started tx on August 6th. That was the day of his first shot. So him saying that he just did shot 8 on Wednesday and it is correct and he is in his 8th week of tx.
Marcia
All three in my prayers Dublinange1 almag and CoWriter
I almust sure hes on hes 8 week of treatment so i think the almost 4 log drop is hes 4 week result, that will give him a good chanse of clearing at w12 dont you think Co.
Angel please if you know please entlighten us its not really funny to have to guess.
It also seems like your husband is a bit dizzy right now he could need help with remembering taking hes meds.
Hes got a good chance of clearing this shiit in my opinion.
Evev when not on meds this HCV infection cripples the lifes for many of us with mood swings, fatigue ,depression and a lot other issues.
You have both so much to gain i think if he can go through with treatment, and that he is fairly young increases his chances of reaching SVR aswell.
You are both in my prayers.
ca
Dear dublinangel:
I'm concerned about your hubby. On his profile he says he started treatment with a viral load of 5,000,000 and now at Week 8 his viral load is 700.
And on the message he sent me, he said "before I started treatment it was 5,000,000 after week 6 my viral load is 700"
However, on his introduction post he said that at "week 8 viral load on 6th of August it was 5,432,149" and "now on the 4th of September it's 731"
So the only thing that seems to stay the same in what he says is that he started with a viral load of 5,000,000.
But so far he's said several things that are contradictory. So far he's said.....
after Week 6 his viral load is 700
at Week 8 his viral load is 700
at Week 8 on August 6th his viral load was 5,432,149
on the 4th of September the viral load is 731 (and if it's true that Week 8 was in August, then September would be WEEK 12.....not 8.
Regardless....if he started with a viral load of 5,000,000 and if September is really Week 12 and he has a viral load of 731.....he certainly met the required 2 log drop and it would show good response to treatment. That's the good news.
However, it is concerning that he's saying so many different things and he thinks he's at Week 8 of treatment but may really be at Week 12.
When exactly did her START treatment???
Please know that my comment is made out of concern and not criticism.
so many people in so much pain... my heart aches
hang in there alan.. when you feel like lashing out take a long long walk and just breath... the past is what it is and you cant go back and change anything, you can just move forward... only god knows why...
and dublinangel... you are an angel ...
nothing else to say
thanks for being a member of this site, i guess when you see it in black and white you get to see how much of a monster ive become, the xanax is just till the antids kick in, im mean its in 2 weeks, i know you concerened about me relapesing, for does of you don know my story i ws a heroin addict for 20 years untill i met my wife, and as an addict i wont turn around and say i wont relapse.you have just got to trust me, this tx is hell for me now, ive had phycololical problems in the past and suffered sexuall abuse when i was 12 to 14 and tx is brining it all back vividly, ill make it tru this love, weve been tru worse. alan xxxxxxx
i love you so so much xxxxxx
How many weeks has your husband been on treatment and how long has he been taking anti depressants?
These drugs take some time to reach their full potential. I know exactly what you are gong through, since I became very difficult and angry while I was treating. I found the effexor was a big help; it was the best AD I tried. It is very difficult to withdraw from, but it was the most effective for me.
Perhaps you could convince your husband to participate on the forum. It might be helpful for him to find other people that have similar experiences.
Best of luck to you,
Eric
thankyou so much im taking all advice on board i will keep trying and believe me he gets all the time on his own he wants never any pressure i work parttime so kids are with my family so we dont bother him to much its the walking round like a zombie and th mental torture with the verbal abuse i cant handle .but i will try harder c how things go over the next few weeksthanks again dublinangel1
I potter around on my own also and cope better when there is NO pressure on me to 'do' or 'behave' or 'help' others.
On my not so good days my partner shields me from visitors and makes the decisions around my son's outings, mates around etc. I retire to my bedroom or potter around ignoring everyone and looking after myself only. I am truly grateful to them as I just tell them I'm not having such a good day I'm left alone, or sometimes, a sudden energy drop in the middle of a good day, and they take over.
After shot day, my brain can be foggy at any stage over the next four days (usually for one of the days), and I'll be a little more sensitive and emotional; the family watch out for it and let me vent (sometimes) and kind of ignore me but love me.... then I realise what I'm doing and retire with another paracetamol to relax and take myself out of the daily equation to find a warm fuzzie spot and know that it will pass. Perhaps your husbands playstation is that warm fuzzie spot - if it takes him away from what he's feeling that's a great thing even if he's on it a lot - just remind him to eat!!!. My specialist said to do whatever it takes; not only are our brain's foggy, but there is a lot going on in our bodies with the side effects which can sometimes be magnified and sometimes seem trivial.
I told my son that it could be likened to walking around with a slight headache or toothache that sometimes gets worse and is sometimes okay - it would be easy to be a little irritable and certainly feeling a little fragile, and pain itself mucks up your cognitive thinking.
I really don't think now is the time to psycho-analyse our past; on my bad days I concentrate on ANYTHING that doesn't remind me of ANYTHING that's not 'nice and now'. This is a marathon and we just have to concentrate on whatever it takes to get through. For me it's trying to appreciate what I HAVE got and not going anywhere near the negatives. The past is what makes us what we are now - 'kewl' 'alive' 'trying to be healthy' loving very wise people!!!!
Don't take it on board yourself, there may be nothing you can do apart from listen to him (occasionally) and let him be (a lot). I did think of having my own "bedroom" for the course of tx but luckily my partner sleeps like a rock and doesn't notice when I sometimes potter around in the middle of the night.
Be careful about trying to get him to change the meds - my partner took 6 paracetamol yesterday for a migraine (which he gets severely but only occasionally). I was concerned, but it's his body and his decision. We all have to take responsibility for what we put in our mouths and if your husband has concern or it not coping encourage him to go to his doctor... perhaps he will come to the realisation himself about whether the meds are not right, but at the moment, he's trying to do everything within his power to get through. I'm sure you love him and miss his old self, but right now, I would treat him like a geriatric patient - gently lovingly and without pressure; if he rants and raves, politely remove yourself and the kids - go for a walk... try very hard to keep on with your own lives without him and gently let him know if he's disrupting it too much. If it gets too much please ring his treating doctor yourself.....
All the very best at this really difficult time.