its back

[cam76]

Well it's been almost 4 years clean of hep c and it's back

[Dee1956]

Hey there I am with you.  After I finished treating a friend took me out to have a pedicure for my Birthday.  Not thinking I went.  They drew blood.  I freaked out.  All I could think was that now I would get it from this.
I was so panicked about it I went back, without my friend, and asked them how they disinfected.  I talked to the owner, expressed my concerns, she said that there are many many different things that manicures pedicures can spread.  She said they were well aware and did use disinfectant.  I will never do that again.  Taking your own tools is no assurance to me.  I don't think they sterilize the tubs you put your feet in.
Like you I will do it myself :)
Take Care Dee

Cam, I am very happy the you do not have HCV

[desrt]

I was also diagnosed with fatty liver after SVR. It still showed 5 years post-tx but had apparently resolved 8years post. Besides diet, make sure your blood sugar and insulin resistance are under control.
Best of luck.

d

[AWorriedMom]

NASH stands for non-alcoholic steatohepatitis. It is damage caused to the liver and can result in cirrhosis. Here is a link to information on NASH.
http://digestive.niddk.nih.gov/ddiseases/pubs/nash/

[nygirl7]

Cam,

Hopefully now that you know you are still negative you'll have some peace.

I hope that you're liver is starting to heal.  Go to a real hepatologist - even if it's for a one visit consult. At least a GI with a big hep practice. Unfortunately GPs don't know much about the lifer. Mine told me my hep was back seven years later! I was like no why are you confusing me...it's the antibodies, you didn't do a
PCR.

PCR was negative. I wish I got paid what he does ;)

Deb

[dontworry_behappy1]

Congrats on not having Hepatitis C.  It amazes me how little GPs know about Hepatitis C.  Just because you test positive for antibodies doesn't mean you have Hep C.  But GPs failure to know or explain that fact add to the questions ending up on this forum by many scared and confused people.   They say about 25% clear hep c on their own and only test positive for antibodies.  I bet that percentage is higher than that.

Just remember you will test positive for the rest of your life.  The only way to know if you've been re-infected is to get a viral load test.  If you don't have a viral load you don't have chronic Hepatitis C.

Best to you

[cam76]

no hep c fatty liver now and i thank she said nash what ever that is just try eat better now

[susan400]

Another thought occurred to me.  Years ago, some of the labs didn't test down to as low of copies as they do now.  Could it be that the 'error' in the test was caused by the original lab having the lower count test?  I know years ago, the viral load test only went down to like 50-100 copies and now they go down to 0-15 copies.   Just wondering.  Susan400

[nygirl7]

So you are not positive but you have Nash?

[Sarah1949]

I've thought of this before Susan. I honestly think if you go to manicure places you should definitely bring your own tools. I used to go to one where you could buy your own stuff and they kept it in a plastic for you for when you went back. Still, I would worry they might go in my bag for a missing tool and use it on someone else. If I were to do it again today, I'd keep my own tools and even polish with me. Heck, the polish they use is goopy half the time anyway. :)

[flyinlynn]

Hi
I am released to hear it is not hep c back again a little confused as you posted you had a viral load but very glad you seem to not have been reinfected after all.

Sorry you continue to have health problems I guess everyone will say work with your doctor to turn these NASH issues around.

Good luck
Lynn

[cam76]

ok i dont have hep c it not back. but i do have bad fatty liver i think she said nash and she said hep c  dont come back but the fatty liver is a real problem now

[cam76]

ok i dont have hep it not back but i do have bad fatty liver i think she said nash and she said it dont come back but  the fatty liver is a real problem now

[Dee1956]

I am so sorry for your news, I was shocked to see that it is back for you.
I am very very sorry.
I am in shock.
Keep in touch

[flyinlynn]

Here is a link to the prescribing information from the package insert for Olysio  it tast the precautions a big one is to avoid sun exposure some people have had bad skin reactions due to sunsensitivity while taking Olysio

https://www.olysio.com/shared/product/olysio/prescribing-information.pdf

[Redbare]

So sorry to hear, what's next?

[yary5629]

Hello, like to know if you have info on safety issues with olysio. Thanks

[dontworry_behappy1]

Good luck at you 9/22 doctor appointment.  Just remember that your viral doesn't determine how damaged your liver is.  You could have a viral load of 12 million and have stage 1 liver damage.  Or you could have a 1 million
viral load and have cirrhosis.  Your Hepatitis C viral load can change to less or more at anytime.   I take it that your GP told you that you can get back Hepatitis C at anytime without re-infection.  This would be a good time to write down these question...and ask the Specialist your seeing on 9/22 what a high viral load means and does Hepatitis C come back after you've been
cured.  Please come back at let us know what the specialist says.  GP's
often give miss information when it comes to Hepatitis C.  I still can't believe what my GP told me about Hepatitis C.   Is amazing the untruths a GP can tell you about Hepatitis C.  

Best to you

[cam76]

well i dont think i was refected was going on my 4th year check .my dr said it could come back .well its back .but i'm not giving up i will try again .and i think she said my viral load was 12 million i think .did not wont to hear that

[dontworry_behappy1]

Didn't find the article that you referenced.  But if you want my personal opinion on the subject ......I would say yes there is safety issues.  This isn't new news.  

Best to you and wishing you a Hep C Free (cured) outcome.   One you can enjoy for the rest of your life.

[flyinlynn]

Hi Fred

I tried to find the article from HCV advocate about protease inhibitor safety you mentioned with no luck. Would you have a link for it? Which meds were they specifically discussing?

I never was able to treat with a protease inhibitor like Incivek (Telaprevir) because I already had cirrhosis by the time it was released.

The new treatments like Sovaldi a HCV NS5b polymerase inhibitor, Olysio a HCV NS3/4A protease inhibitor, and Ledipasvir a NS5A replication
complex inhibitor are different from the old Telaprevir. Thus far they seem to have a very good safety profile unless you have some additional information I have not as yet run across.

Who are the "all of them wrong" is that about 12 weeks SVR being a cure? I guess what you are referring to. In the older study information 24 weeks was considered a cure but now the consensus seems to be:

"Patients who achieve SVR12 are considered cured of HCV infection."

http://www.thepharmaletter.com/article/gilead-s-ledipasvir-sofosbuvir-achieved-100-svr12-among-chronic-hepatitis-c-patients-in-japan

I was going to check at 24 months if I was still clear ar 12 weeks as a just to be very, very sure check, but from everything I have read 12 weeks SVR is now considered cured of hep C

Good luck to all
Lynn

[FRED220]

I cant wait for the day to come that I will be Hep C free and halt my liver damage. Hope you are correct and all of them WRONG. In you opinion what do you think of the article date 9/7/2014 that was posted by HCV Advocate where it was mentioned that protease inhibitors had major safety issues?

[dontworry_behappy1]

Did you read what " Idyllic " wrote?  Hepatitis C doesn't go into remission.  If you have treated your hep c and relapse then you will have a very high viral load within months of finishing treatment.  It's more likely that "cam76" has been re-infected with Hepatitis C or is just testing positive for hep c antibodies.   I and numerous others have been cured of hepatitis c and collectively know that you can't get hepatitis C back without re-infection.  
I think the chances are like a 1% chance that could happen.  So it's a 99%
chance you won't get it back without re-infection.  That's even better than paternity test results.  I think that they have to say at least 1%.  In paternity they give you about a 97% it's your kid.....and your the parent.  I think 1% change you got hep c back and never really cleared the hep C virus is a 1 in a billion chance......and maybe 1 in a trillion.

Best to you

[nan535]

What new  treatment would depend on what genotype you are. Right now the new treatments include the meds Sovaldi (Sofosbuvir) and/or  Simeprevir ((Olysio). Depending on your genotype, your doctor will prescribe the appropriate treatment. There are more new meds that are very soon to be approved.  Most patients who have been treated with a Sovaldi-based treatment over the last 8 months were undetected for the virus by week 4 of a 12 or 24 week treatment. Some are now reporting SVR12 (cured)  but others have relapsed. Nevertheless, even the livers those who have relapsed have all gotten a break from the relentless attack of the virus while they remained undetected.
   My husband was treated with Sovaldi & Ribavirin for 24 weeks. His platelet count actually improved over the 6 months he was on treatment and is in normal range. However his hemoglobin which has been below normal since his transplant, dropped further during treatment.  Post treatment it is holding steady in the 10 range.  His Alt and Ast are still in the normal range 5 weeks post treatment, despite his having relapsed. So I would say that despite his having relapsed, his time on treatment definitely helped his liver. How long these positive results will continue remains to be seen.

Keep us posted. There are many here who will be happy to give you advice based on their personal experience with Hep C and the new meds.  

Nan

[susan400]

I know this sounds weird, but I've heard of people contracting Hep C from nail salons that don't sterilize their equipment properly.  I went to a nail salon before for my one and only pedicure/manicure.  They did draw blood.  Now that I know about this being a possible exposure method for many who did not have obvious risk factors, I will never go to a pedicure/manicure place again.  I will do my own at home.  It's just not that important to me and I really don't want to have carry around my own tools and have to explain to some nail tech that I'll probably never see again.  Anyhow, I'm just thinking that if one did get SVR, and got reinfected this way..., well I'd be quite frankly P/O'd.  Susan400