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892215 tn?1389718706

long time no post....need answers

hello everyone I dont know if you remember me but I havent been around for a while. I have been on treatment now for going on my 4th month. I was diagnosed with neutropenia last week and put in a bouble for a week still waiting to see hepatolagist since ai ve moved to cali doctors have been a mess. so anyway they gave me a shot a neupogen and advised my to not taki my injection untill I see specialist on 28th and he will probally lower my dose. now I am running temp 100.3 rising slowly from last night I dont have any symptoms of anything abvious but my head neck and back are killing me shoud I go to er of what so sick of this **** just cant wait untill its over but still want to finish so I dont have to do this again please help me out it seems you all are the only ones who know anything.  thanks summer
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87972 tn?1322661239
Hi Summer,

Of course we remember you. Sorry to hear you’re having so much trouble with treatment. Do you have a good doctor in California? I live in northern California, so let m know if you need a good doc here.

As far as the neutropenia goes, the Neupogen should work rapidly; I wonder why they are recommending dose reduction of the interferon as well. Do you have copies of your labs? Do you know what your absolute neutrofil count is now_

Sorry about punctuation… my word processor gets weird sometimes… it might be neutropenic as well .

Hang in there

Bill
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Avatar universal
I would go to ER.  Tell them your history and find out what is causing the pain.  During tx I went to ER with severe back pain and it turned out to be bacterial pneumonia.  Don't wait around on this - go to ER and get some answers.  Good luck and please post to let us know how it goes.

jd
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892215 tn?1389718706
I have no clue what my numbers are now I am supposed to go to lab this week and then see specialist on 28th temp is now 100.5 what do you think shoud I go in or maybe this could be withdrawl from missing dose of pegasys...
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Avatar universal
Summer, when I was neutropenic they hospitalized me when my temp got to 100.4. They also made me stay in the hospital until my tgemp went below 100.4. That seemed to be the magic number for me. I hope you feel better soon.
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892215 tn?1389718706
OK i'm going in as much as I dont want to....I just left there 4 days ago after they held me hostage for a week...but better to be safe right ok post when I get home...
Helpful - 0
87972 tn?1322661239
Hi Summer,

Sorry, I didn’t read your whole post. Yeah, I’d go in… it might not be anything to hospitalize you over, but better safe than sorry. Be sure to take your meds with you… sometimes hospitals might not stock things like ribavirin or interferon.

Best to you, and let us know what happens—

Bill
Helpful - 0
717272 tn?1277590780
Low neutrophils can allow bacterial infections to develop.  Where is the back pain? It could be a bladder infection or kidney infection (pain in the lower back towards one side or the other).  A urinalysis will find that quickly and be fixed with antibiotics.  Some people have infections every time their neuts drop.

Interferon destroys platelet and neutrophils.  Dose reduction is one way to contol neutropenia, but using neupogen is better.  They will want to check you to see how well the neupogen worked before allowing you to restart the IFN again.  That's pretty standard.  Hope you find the infection and feel better soon.
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Avatar universal
I remember you, sorry to hear that you are not feeling well.  I got sick late in tx., people on the Forum convinced me to go to the ER.  Temp. 39.5 (103.1) Heart rate 120.  I'm so glad I went, They gave me fluids and ran a series of tests, Puemonia, gave me Antibiotics then sent me home.  With all the sx you can never be sure whether its a sx. or if something else is going on.
I also suggest you go to the ER, peace of mind. .

Bill mentioned taking your meds with you, good idea.

Let us know how you are doing!

Take care - Lynne
Helpful - 0
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