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Avatar universal

never give up hope

I am new to this forum. I am 55 years old and have been fighting the fight for over 10 years.
I have tried the "Interferon/Ribovine" on three seperate occasions. I don't know if it might have
worked because it turns out I am alergic. I have stage 4 liver disease and just about every
symtome one could have.

I have always been an active and athletic person. In the begining it was hard not being able
to do all the things I used to do. Now I do what I can and try to stay active.

I am far from an expert on hepc but I can tell you. You can't sit around feeling sorry for yourself.
Pull yourself up out of that chair and do something about it. See your doctor regularly. Get on a
healthy diet, try to stay fit.

Above all else. "NEVER GIVE UP HOPE'' There are new treatments comeing.

Hope I helped
changling
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Avatar universal
I finally go to my first real appointment tomorrow at Chapill Hill!! Not looking forward to it at all, but maybe ill get the info that we have all been waiting for? I dont know how long it takes them to get your results on your blood work. But ive been having joint issues, badly, seems like they are just coming apart! Im hearing pops and cracks in my neck and back that ive never heard! Luckily it doesnt hurt to type, cause it hurts to write, and im a writter. Every joint I got hurts, and I have no idea what it is thats causing it! My knees are killing me, this stuff has come and go for a few years, but its worse than ever now. But thanks for the words of courage to Changling, cause I know you are right. Im supposed to be going to the beach after the doctor, but I dont know if ill be able to even carry a chair out on the beach at this point! I hope that the doc has some advise or is of somekind of assistancce. Im on Suboxone, so pain pills is out of the question, except Tramadol, Ultram, that is one thing that you can still take with Suboxone, why I dont know, but thanks to everyone and I will let you all know what the doc says tomorrow before im off to the beach to hopefully feel better, somehow? Im a little down...I know it sounds that way, but I still do have hope and im not going to give up! Prayers for good news or atleast something positive would be great~!  I appreciate you all!
Helpful - 0
1669790 tn?1333662595
Wonderful outlook changling.  I think a positive mental attitude and an attempt to continue an active life if very important throught trt.  We can't allow the trt to take over our lives, but we need to make adjustments as needed.  My exercise is my mental therapy and I'm doing my best to continue, but at a slight lower intensity.  Hope the next attempt is successful.
Helpful - 0
408795 tn?1324935675
Refreshing to read your post!  Welcome to the forum and good luck with the fight.  
Helpful - 0
1467213 tn?1304214305
I began treatment on Tuesday last week and took my 2nd shot last night.  I am grateful that my symptoms are mild however, today I seemed to be very emotional. So thanks for the pep talk, I needed it today and appreciate everyone on this site.  Welcome to the site and good luck to having successful treatment in the future.
Helpful - 0
Avatar universal
I hope I will be as strong and optimistic as you are, what scares me are the sides and if I can't handle them will the Doctor give me a chance to deal with them and help with I think everyone is calling them helper drugs or will he pull me off them? I meant to ask him last time, but had about a million questions and not enough time.

Hang in there and good luck!
Helpful - 0
Avatar universal
Im sorry. Allergic may not have been the correct word to use. I should have said that I
have an intolerance to these drugs.

The first time I was Inter/Ribo I was on it for about two weeks when I became very sick.
Vomiting, diereia,nausiea and cold sweats. I could not even keep down water. I became
so dehydrated that I ended up in the ER. My doctor took me off the drugs.
Unwilling to give up I tried again and again with the same results.

I am optimistic however. There are new breakthroughs comeing. The one I am most
excited about is the DNA based drug. Eventhough FDA approval my be a few year
down the road.

Thank you for your interest

Changling
Helpful - 0
179856 tn?1333547362
Great attitude. I hope that the non-ifn/riba drugs come out soon and they can help you. I never met anyone who was allergic to the meds before can you tell us what your symptoms were like?
Helpful - 0
Avatar universal
You have a helpful attitude, nice to "meet" you.
Helpful - 0
Avatar universal

A great attitude .....good luck  to you ..and welcome!

Will
Helpful - 0
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