Aa
no question, just sharing
Went to the hepa Dr yesterday to discuss treatment. He wants me to treat as soon as I can make a decision. I walked in thinking I had my mind made up to treat with VIC triple therapy. But now I'm more confused than ever. He said he would not choose VIC. He said VIC only has a 65% success rate, while INC is 85%. He said VIC will eventually be taken off the market. I told him my fears of taking Incivek and he understood, but said the odds of curing with INc are so much better. But he said if he were me, he would go into the all oral trial. It's in phase 2. And I would either treat for 12 or 24 weeks. He said the people in this trial are responding extremely well, some people becoming UND in days. Also he said there are almost no side effects. He said he thinks the trial should be my first choice. He said second choice would be Incivek. They are also doing a trial for Incivek that is in phase 4. So I would get treatment for free either way. Lastly he said if I'm stil bent on treating with VIC then its my choice and he will treat me with it. But I will have to go thru my insurance and pay. This is a hard choice!!
If you are on the same trial as me, and you fail, you do get rescued with ifn and riba (I haven't heard of anyone failing so far, just sayin). You can also quit and do the triple if you want. But you can't just quit the triple and get into a BMS/PSI study very easily. If you don't like the triple you may have to wait quite a while for another chance with another drug combo.
How many people work for your company? More than 50? Is there an HR department? Do you have a disability policy?
The all oral trial sound like it may be easier on your body, long term health, and your job even though it is 14 days in a row and once a week post. If at all possible, I would be going that route.
If fmla applies, maybe you don't need to advertise.
The all oral trial sound like it may be easier on your body, long term health, and your job even though it is 14 days in a row and once a week post. If at all possible, I would be going that route.
If fmla applies, maybe you don't need to advertise.
The lady I know from the other forum who did the same trial that I am on (and I think you are contemplating) took a two week vacation. She drove three hours to get to her site in another state and stayed there for the two weeks. You may want to ask if there is a participation stipend so that you could afford something like this. It was her personal "break". After that, many of the sites are very accommodating. Mine was. They can have you come in very, very early, as long as there is a nurse to draw your blood.
You only need to be concerned about taking your meds with breakfast at a particular time everyday and go to the appts and get your blood drawn when you are supposed to. It is nobody's business why you want a two week break. You can tell them it is "family business" (which it is). I translate that as a nice way of saying "don't ask me anymore questions". If they do, you could always say "I'd rather not say". Even if you don't want to take the two weeks as vacation, you could swing it by asking to come in early for the blood draw on those days when it is only an hour.
Is this particular job the only one around? My hairdresser has changed jobs several times and now is in business for herself. We have followed her around and now I drive an hour to see her because she is that good.
OH has a point. You may very well have to take time off anyway. If you take the triple, it could come over you without any predicting it. Wouldn't it be better to have a carefully planned two weeks than something random.
As a former manager I would have to say that I was always very frustrated when someone would get sick on and off and always unpredictable. I certainly wouldn't be bothered by someone taking off in a planned fashion because then I could plan how to fill behind them.
I wonder if there is something else that makes you hesitate? The drugs perhaps?
You only need to be concerned about taking your meds with breakfast at a particular time everyday and go to the appts and get your blood drawn when you are supposed to. It is nobody's business why you want a two week break. You can tell them it is "family business" (which it is). I translate that as a nice way of saying "don't ask me anymore questions". If they do, you could always say "I'd rather not say". Even if you don't want to take the two weeks as vacation, you could swing it by asking to come in early for the blood draw on those days when it is only an hour.
Is this particular job the only one around? My hairdresser has changed jobs several times and now is in business for herself. We have followed her around and now I drive an hour to see her because she is that good.
OH has a point. You may very well have to take time off anyway. If you take the triple, it could come over you without any predicting it. Wouldn't it be better to have a carefully planned two weeks than something random.
As a former manager I would have to say that I was always very frustrated when someone would get sick on and off and always unpredictable. I certainly wouldn't be bothered by someone taking off in a planned fashion because then I could plan how to fill behind them.
I wonder if there is something else that makes you hesitate? The drugs perhaps?
Well the one plus is that they said I can come in early in the morning, as early as 7am. The nurse said I could come in at 7 and she will draw my blood and give me the pills and it would take about a half hour. The first day I have to go for 13 hours. And day 7 is a 8 hour day. So I might be able to pull it off to be at work by 9. I need to tell my boss something in case something goes wrong. I just need to get thru those 14 days!
Can't you just tell them you have a serious condition that needs treatment, it's a personal thing and you are not comfortable talking about details with anyone just yet....then never tell them what it is, ha...
Have you looked at the pages here with people's side effects on triple therapy?
Do you really think work won't notice you losing your hair, acting emotional, getting rashes, running to the toilet, should I go on?
I'm sure there's something you can tell them.
Maybe we can brainstorm on this.
Do you really think work won't notice you losing your hair, acting emotional, getting rashes, running to the toilet, should I go on?
I'm sure there's something you can tell them.
Maybe we can brainstorm on this.
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